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sisterkitty 
NF is nore common than Cystic fibrosis and MS combined, so why is it virtually unheard of? I had never met another person with NF until I went to NF camp in Brightin Tx., last Sept. where I met many people with NF, through my CTF chatroom. A lot of them were quite severe, while othere were mild. The nice thing was feeling safe with everyone, knowing that we all shared a similar situation. I met Reggie Bibbs,one of the spokespersons for NF. I also did the Portland Marathon with some NF teammates, last Oct.....Somde day we will beat this monster...
