still striving
couldn't cut it today. really did do too much yesterday. daughter warned me. so today did just a little. rain coming. body complaining. went to …
I have been sick for more than 20 years. I do not blog about it and I feel lonely. Am on a new treatment the last two years and now am feeling much stronger and still lonely. Sleep studies showed I had sleep apnea and no deep sleep. My Dr. started me on XYREM , SODIUM OXYBATE, and I began to sleep deeply. The first day after I woke up I BEGAN to remember things from the radio, and books and life that I HADN\'t thought about for years. Then I began to tear down the morning gloryvines that were covering my windows! tHE light came in! Now I am on the road to recovery, a long slow journey . I have 4 children and 4 grand- children and a supportive husband and I thank G-D. Now I have to learn to live again. I am not the same person I was and may never be again. Loss of confidence in myself, depressive, anxious. Unfamiliar and unwanted feelings.
I have been sick for more than 20 years. I do not blog about it and I feel lonely. Am on a new treatment the last two years and now am feeling much stronger and still lonely. Sleep studies showed I had sleep apnea and no deep sleep. My Dr. started me on XYREM , SODIUM OXYBATE, and I began to sleep deeply. The first day after I woke up I BEGAN to remember things from the radio, and books and life that I HADN\'t thought about for years. Then I began to tear down the morning gloryvines that were covering
family, dog, yoga, books, health, of course, people, fun.clothes, movies, theatre, politics.
family, dog, yoga, books, health, of course, people, fun.clothes, movies, theatre, politics.
8 journal posts, 3 hugs received, 2 hugs given, 2 discussion posts, 1 journal comment
Abotsd wrote a journal entry: still striving 6:57pm
couldn't cut it today. really did do too much yesterday. daughter warned me. so today did just a…
Abotsd gave foxie77 an I'm with you 5:27pm
thanks for the pill popping tricks. sometimes it goes down easy and other times i just about upchuck.…
Abotsd gave SisterKathy an I'm with you 5:16pm
thanks for your kind words.…
Abotsd wrote a journal entry: ready to rest 11:52pm
did it all today. bike,treadmill, and then exhausted, went upstairs to sr.lounge, had tea and conversation.…
Abotsd gave Libra an I'm with you 11:40pm
anytime,anywhere. using xyrem (sodium oxybate) made only by jazz pharmascuticals. presribed for me by…
couldn't cut it today. really did do too much yesterday. daughter warned me. so today did just a little. rain coming. body complaining. went to …
did it all today. bike,treadmill, and then exhausted, went upstairs to sr.lounge, had tea and conversation. half a piece of something like cake, and …
did the yoga class. hurt my shoulder. used the machines. so exhausted now. took a codeine. back in bed for a while. cancelled haircut. will go …
got up. got dressed. got to gym.by 8:am. did the machines. wore myself out. couldn't take class. went home and my throat is sore again. trying to …
did yoga class. omg. had to sit down before anyone else. got real tired. did ok. was limber but not enough energy. will try again on thursday. doing …
Good! Glad the tip helped. I hate when the pills go down sideways and fill stuck!geesh cannot handle that at all!
feel good have a great day
Hi!
Sending you a bouquet of mums and daisies from my yard. Recently I've had Fibro-days and Fibro nights, and haven't been on the board. Coming on at least once a day is one of my goals.
I was diagnosed with Fibro in '97, and have been struggling with it since then. I finally had to stop working in 2004. Sometimes I have to remind myself just how much I love life. I also have extreme reactive hypoglycemia, and the Fibro plays havoc with it. Well this is certainly a miserable message ! Lo, I'm sorry!! It's just been one of "those days".
Wishing you a pain-free and wonderful evening. I'm interested in your drug therapy, and would love to chat about it. Huge Hugs! Suz
Hi! Commented on your journal!
Hi, I'm the same age and have had fibro as long as you have, I've learnt to live with it as you have , want to be friends? lol M
suffering for more than 20 years with fibromyalgia and cfs. taking new drug for 2 years, xyrem, only thing that helped me. with provigil and oxycodone. thank g-d for good doctors
i'm a married woman (43yrs) i am 67 and have been suffering from fibromyalgia for at least the last 20 yrs. i never thought i was anxious, my mother was, my daughter was, and i was the cool one. but lately, i notice i'm just as nervous and frightened as anyone. wha happened? therapist says that my coping mechanisims don't work anymore and until i develop new ones i have to just deal with my basic and deeply rooted fear. am working with exercise, friendships, xanax, and therapy !
have had fibromyalgia for 25 yrs. or so. had sleepstudy. am using cpap and xyrem for sleep 2+ years and doing much better. still somewhat sick some of the day. am learning a lot from these groups. thanks.i have been married 43 yrs. have 2daughter, 2 sons, 2grandboys , 2 grandgirls. coping with depression and anxiety.
ned to learn more. have fibromyalgia, also. am almost 70 and have very dry eyes.