still striving
November 7, 2009 6:57pm
couldn't cut it today. really did do too much yesterday. daughter warned me. so today did just a little. rain coming. body complaining. went to …
Progress
60 %
Abotsd
1:32pm, October 3, 2009
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About Me
Abotsd
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About Me
I have been sick for more than 20 years. I do not blog about it and I feel lonely. Am on a new treatment the last two years and now am feeling much stronger and still lonely. Sleep studies showed I had sleep apnea and no deep sleep. My Dr. started me on XYREM , SODIUM OXYBATE, and I began to sleep deeply. The first day after I woke up I BEGAN to remember things from the radio, and books and life that I HADN\'t thought about for years. Then I began to tear down the morning gloryvines that were covering my windows! tHE light came in! Now I am on the road to recovery, a long slow journey . I have 4 children and 4 grand- children and a supportive husband and I thank G-D. Now I have to learn to live again. I am not the same person I was and may never be again. Loss of confidence in myself, depressive, anxious. Unfamiliar and unwanted feelings.
I have been sick for more than 20 years. I do not blog about it and I feel lonely. Am on a new treatment the last two years and now am feeling much stronger and still lonely. Sleep studies showed I had sleep apnea and no deep sleep. My Dr. started me on XYREM , SODIUM OXYBATE, and I began to sleep deeply. The first day after I woke up I BEGAN to remember things from the radio, and books and life that I HADN\'t thought about for years. Then I began to tear down the morning gloryvines that were covering
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Interests
family, dog, yoga, books, health, of course, people, fun.clothes, movies, theatre, politics.
family, dog, yoga, books, health, of course, people, fun.clothes, movies, theatre, politics.
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Recent Activity
Recently:
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8 journal posts, 3 hugs received, 2 hugs given, 2 discussion posts, 1 journal comment
Yesterday
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Abotsd wrote a journal entry: still striving 6:57pm
couldn't cut it today. really did do too much yesterday. daughter warned me. so today did just a…
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Abotsd gave foxie77 an I'm with you 5:27pm
thanks for the pill popping tricks. sometimes it goes down easy and other times i just about upchuck.…
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Abotsd gave SisterKathy an I'm with you 5:16pm
thanks for your kind words.…
Friday
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Abotsd wrote a journal entry: ready to rest 11:52pm
did it all today. bike,treadmill, and then exhausted, went upstairs to sr.lounge, had tea and conversation.…
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Abotsd gave Libra an I'm with you 11:40pm
anytime,anywhere. using xyrem (sodium oxybate) made only by jazz pharmascuticals. presribed for me by…
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Journal
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ready to rest
November 6, 2009 11:52pm
did it all today. bike,treadmill, and then exhausted, went upstairs to sr.lounge, had tea and conversation. half a piece of something like cake, and …
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convalesing
November 5, 2009 4:47pm
did the yoga class. hurt my shoulder. used the machines. so exhausted now. took a codeine. back in bed for a while. cancelled haircut. will go …
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striving
November 4, 2009 3:33pm
got up. got dressed. got to gym.by 8:am. did the machines. wore myself out. couldn't take class. went home and my throat is sore again. trying to …
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starting all over again
November 3, 2009 3:02pm
did yoga class. omg. had to sit down before anyone else. got real tired. did ok. was limber but not enough energy. will try again on thursday. doing …
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Hugbook
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High Five
Good! Glad the tip helped. I hate when the pills go down sideways and fill stuck!geesh cannot handle that at all!
Moment of Peace
feel good have a great day
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Flower
Hi!
Sending you a bouquet of mums and daisies from my yard. Recently I've had Fibro-days and Fibro nights, and haven't been on the board. Coming on at least once a day is one of my goals.
I was diagnosed with Fibro in '97, and have been struggling with it since then. I finally had to stop working in 2004. Sometimes I have to remind myself just how much I love life. I also have extreme reactive hypoglycemia, and the Fibro plays havoc with it. Well this is certainly a miserable message ! Lo, I'm sorry!! It's just been one of "those days".
Wishing you a pain-free and wonderful evening. I'm interested in your drug therapy, and would love to chat about it. Huge Hugs! Suz 
Hug
Hi! Commented on your journal!
Hug
Hi, I'm the same age and have had fibro as long as you have, I've learnt to live with it as you have , want to be friends? lol M
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Photos
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Support Groups
Close Fibromyalgia
Treatments
- Psychotherapy Working / Worked
- changing my mind and my life, less pain and more pride.
- Writing Working / Worked
- Cognitive Behavioral Therapy Working / Worked
- Elavil Working / Worked
- Ambien Working / Worked
- Amiodarone Working / Worked
- Boniva Working / Worked
- Crestor Working / Worked
- Folic Acid Working / Worked
- Imitrex Working / Worked
- Protonix Working / Worked
- Provigil Working / Worked
- Restasis Working / Worked
- Vitamin B12 Working / Worked
- Vitamin D Working / Worked
- Vitamin E Working / Worked
- Xanax Working / Worked
- Xyrem Working / Worked
Close Chronic Fatigue Syndrome
suffering for more than 20 years with fibromyalgia and cfs. taking new drug for 2 years, xyrem, only thing that helped me. with provigil and oxycodone. thank g-d for good doctors
Treatments
- Pain Management Clinic Working / Worked
- restorative sleep was the answer for me. though i still tire easily i lead a more active life than before, like i stayed in bed a lot,
- Physical Therapy Working / Worked
- enabled me to start an exercize class for seniors.
- Psychotherapy Working / Worked
- having more faith in self. praising my sucesses not just mourning the failures.
Open Anxiety
i'm a married woman (43yrs) i am 67 and have been suffering from fibromyalgia for at least the last 20 yrs. i never thought i was anxious, my mother was, my daughter was, and i was the cool one. but lately, i notice i'm just as nervous and frightened as anyone. wha happened? therapist says that my coping mechanisims don't work anymore and until i develop new ones i have to just deal with my basic and deeply rooted fear. am working with exercise, friendships, xanax, and therapy !
Treatments
- Xanax Working / Worked
- therapy for chronically ill people. a miracle at my age to learn so much.
- Physical Exercise Working / Worked
- most anxious in the morning go to senior yoga and aerboics and weight work. love it. side effect i look much betteer.
- Psychotherapy Working / Worked
- feeling more confident about judgement and abilities to function. talking more to new people. feeling freeer. funnier.
Open Sleep Apnea
have had fibromyalgia for 25 yrs. or so. had sleepstudy. am using cpap and xyrem for sleep 2+ years and doing much better. still somewhat sick some of the day. am learning a lot from these groups. thanks.i have been married 43 yrs. have 2daughter, 2 sons, 2grandboys , 2 grandgirls. coping with depression and anxiety.
Treatments
Open Sjogren's Syndrome
ned to learn more. have fibromyalgia, also. am almost 70 and have very dry eyes.
Treatments
- Restasis Somewhat Helpful
- twice a day. good relief.
