Journal Entry for March 14, 2009
March 14, 2009 12:46pm
Here I am again. I seem to be doing pretty good with the IPF. Had another CT scan and there is some progression but not dramatic or …
beachnana
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About Me
beachnana
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About Me
Retired from teaching 45 years ago to marry, went back to school got 2nd degree in health data management and worked with coders, nurses and docs for 15years and retired in 2001. Raised three kids, 2 boys and girl, have 6 wonderful grandkids aged 3 months-13. Oldest of my boys lives as a bachelor near Augusta, GA. Luckily the others are local and I see them often. My dear husband, Joe, died 28months ago following surgery for knee replacement. Hospital was asleep at the wheel and he was left desaturating following his surgery for a day and a half and no intervention was made till too late. His huge and loving heart just couldn't take it and we lost him.
Retired from teaching 45 years ago to marry, went back to school got 2nd degree in health data management and worked with coders, nurses and docs for 15years and retired in 2001. Raised three kids, 2 boys and girl, have 6 wonderful grandkids aged 3 months-13. Oldest of my boys lives as a bachelor near Augusta, GA. Luckily the others are local and I see them often. My dear husband, Joe, died 28months ago following surgery for knee replacement. Hospital was asleep at the wheel and he was left desaturating
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Beachnana,I know how You feel.Some days are not to bad but then here comes the hard ones.I am like You I don't like telling My Family just how bad I feel,sometimes I don't think They get it,Every thing I do is makes Me tired,even to walk in WalMart.So hang in there and take care.
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Thankyou...for the reply, take care of yourself too.
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Thanks for the comment ? LOL it doesn't seem to have "taken" but I appreciate the thought :)
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Thank you so much for your words of encouragement. They meant more than I can say.
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I am with you. I go to the Simmions Center too, Dr Gibson is my Dr. to have not seen him because my Md. up till a month ago was Dr. Rossas. I am 31 with Pulmonary Fibrosis, was on O2 not any more. If you need to talk you can e-mail me at Gabbyj21@aol.com Jenny
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Close Pulmonary Fibrosis
I was diagnosed in Dec. of 2007, and didn't get on Oxygen till after Xmas. I go to Simmons Center for interstitial lung disease at UPMC and see Dr. Kevin Gibson. Just yesterday I was scripted for home Oxygen due to exercise intolerance. I use 3-l @ nite and 2 during the day unless seated and reading or watching tv. I am now puffing with just a trip to the garage. The fast progression since Dec. has me scared that this is going much faster than anticipated. I am starting to get depressed. My daughter who has been so great to me is in denial about all this and I believe (though she hasn't said so, but the undertone is there, for sure) that I am some how or other clinging to my infirmities and that positive thinking and exercise will solve my problems.
Treatments
- Positive Thinking Too Soon to Tell
- Wellbutrin Working / Worked
- only the oxygen and now Ill have it during the day so I am hoping it will improve my quality of life. I have been so worn out with shopping and such that I have avoided situations that leave me breathless.
