2:16 a.m.
July 20, 2008 2:20am
It's 2:16am and i am awake even though i thought i'd be asleep considering how weak and wiped out i felt all day at work. adding insomnia …
civansita 
9:15pm, October 20, 2009
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About Me
civansita
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About Me
I'm 27 and was diagnosed with endo (not sure the stage as i have yet to have surgery and cant have it til i get insurance in jan. 09 thru work) i am currently on lupron, which is helping with the endo pain but given me some other pain such as joint pain and stiffness, which i assume is from the lupron, but will be asking my dr this week when i see him (its either lupus or RA). i also have a bicornuate uterus, which is where the uterus didnt form into a whole uterus instead it has two "horns" and its kinda heart shaped and i have had 3 drs tell me that having kids is too much of a risk for me or a baby as my "uteruses" are too small to go full term and would give me many complications. surgery is an option to try and fuse the two small uteruses into one whole, but its no guarantee that i will be able to get pregnant. so that is depressing for me! i also had scoliosis as a teen and had to have harrington rods placed to fix my 65 degree curve down to a 30 something curve. now i have back pain, mainly shoulders and low back. they think i've got either RA or lupus, too, so i'm on plaquenil and prednisone. it just suuuucks. msg me if you wanna talk.
I'm 27 and was diagnosed with endo (not sure the stage as i have yet to have surgery and cant have it til i get insurance in jan. 09 thru work) i am currently on lupron, which is helping with the endo pain but given me some other pain such as joint pain and stiffness, which i assume is from the lupron, but will be asking my dr this week when i see him (its either lupus or RA). i also have a bicornuate uterus, which is where the uterus didnt form into a whole uterus instead it has two "horns" and
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Interests
reading, writing stories and poetry, currently trying to write a novel but its taking me so long to finish, love photography, both taking and looking at, love animals and the zoos, i have a cockatiel, a ferret and two cats, they are my "children", love watching good tv or movies, love to laugh and love horror movies....
reading, writing stories and poetry, currently trying to write a novel but its taking me so long to finish,
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Here's a little "soup" your way to hope you are feeling better!
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Wondering how you're doing, hope you visit us some time soon ! hugs jilly
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Would love to hear from you. Lynne
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Just dropping by to give you a pretty present wrapped with a bow. Inside you will find friendship, compassion, understanding, lots of love and warm hugs. I hope we hear from you soon. We have missed you....... xoxo
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sending hugs your way. hope you are doing ok. we will all get there it just takes time xxxxxx
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Support Groups
Close Endometriosis
I was diagnosed with endo by my doctor back in feb. after a year and half of other drs telling me i had other issues...i dont have insurance so surgery was out of the question at the moment but TAP pharms got me the lupron thru their patient assist program and i am endo pain free but now having other issues related to lupron...such as the usual hot flashes and menopause things but also bad joint pain and stiffness and unusual bruising. i bruise from the smallest little bump!!
Treatments
- Extended-Cycle Birth Control Not Working
- SEASONIQUE....it gave me the WORST mood swings...i had to go on paxil just to control those. and the pain from the endo never went away. was useless to take SEASONIQE!
- Lupron Working / Worked
- other than some side effects joint pain and bruises pain is gone...for now.
Close Medical Mysteries
i have endo, a bicornuate uterus, and now am dealing with arthralgia and excessive bruising, maybe from the lupron?? i just need people who also have these similar experiences to talk to and learn from.
Treatments
- Lupron Working / Worked
- working good so far other than some side effects....hot flashes!! joint pain bruising all tolerable compared to the endo pain.
- Extended-Cycle Birth Control Not Working
- SUCKED!! at least for me. made me MOOODY..didnt feel like myself felt crazy had to go off of it.
Open Insomnia
i suffer from periodic insomnia, as in 2-3 wks out of a month i am suffering it. it sucks!! looking for help on how to fall asleep faster and stay asleep. tried everything it seems.
Treatments
- Ambien Somewhat Helpful
- worked a little
- Counting Sheep Working / Worked
- wasted my time
- Lavender Somewhat Helpful
- didnt really help either
- Lunesta Somewhat Helpful
- bout the same as ambien
- Meditation Somewhat Helpful
- i couldnt seem to get very relaxed
- Music Somewhat Helpful
- kinda a little, the sounds of the ocean help a little b/c it relaxes me but not enuf to make me sleep
- Reading Somewhat Helpful
- it just put more thoughts into my head
- Valerian Working / Worked
- worked for a while but then stopped helping
- Melatonin Somewhat Helpful
- same as valerian worked for a while gave me odd weird dreams the first month or so but then quit helping at all but i still take it in hopes that it will help...
Open Fibromyalgia
the doctors think i have this along with all my other problems. they are running tests to find out what it is i really have...
Treatments
Open Scoliosis
i was diagnosed with scoliosis when i was 12. Had spinal fusion with harrington rods when i was 15 back in '95. Had a good outcome and had no pain until about 2000 when i started having lower back pain. had some xrays and they said i had bone spurs and pre-arthritis in my lower back. after that its gotten downhill from there. sciatica problems in my right side and down my right leg. arthritis full blown in my back now. they think a pinched nerve in my upper back near my shoulder blade.
Treatments
- Brace Working / Worked
- used this after surgery
- Harrington Rods Working / Worked
- yea. fixed me from a 65 degree curve to a 30 something. curve is still visible when i bend over and i dont have full lung capacity.
Open Rheumatoid Arthritis
at first they thought i had fibromyalgia and now they think its RA....add this to my already large list of things to deal with.
Treatments
- Prednisone Too Soon to Tell
- took the first two pills today a half hour ago
- Tylenol Not Working
- didnt help at all
- Zostrix Not Working
- didnt help at all other than to give me hot flashes
Open High Blood Pressure
just recently been having hbp problems, noticing it a lot these last few months. bought a home monitor and its up sometimes and down sometimes. just want to learn more about how to control it w/o meds.
Open Diets & Weight Maintenance
i just saw an older pic of me from like four years ago and realized i've gained so much weight. i wasnt a skinny chick but i see now how skinny i was compared to now. help!
Open Lupus
first they thought it was RA, now they think it could be lupus....so i'm fairly new to all this and just want to learn as much as i can.
Treatments
- Plaquenil Too Soon to Tell
- only been on it a few weeks...
- Prednisone Working / Worked
- helps a lot
Open Restless Legs Syndrome
i have rls and i hate it!
Treatments
- Paxil Not Working
- i am on paxil for anxiety and it doesnt help my rls
