looking for people in same boat
Brand new to the sight. My fiance has myotonic muscular dystrophy and I am looking for others who have spouses with the disease to chat with …
fiance has muscular dystrophy, I am looking for people to talk with who can help me understand it and have been through it or are going through it
fiance has muscular dystrophy, I am looking for people to talk with who can help me understand it and have been through it or are going through it
Brand new to the sight. My fiance has myotonic muscular dystrophy and I am looking for others who have spouses with the disease to chat with …
awww...what a bitter sweet hug...I'm so sorry she is having so many difficulties! You are quite the guy to do what you have done for her..but, being all modest that you are, you'll probably think you aren't doing enough. And MOVING on top of it? wow! I'm sure it will bring back memeories of so many days gone by once you get there and are settling in!
well, for me..me and the kids are in the process of moving out to their dads'. things got pretty bad where I was and then the boss told us he was going to cut our hours AGAIN..I was so upset! Sooo, he came over to talk about what we could do and the next thing I know he's telling me how much he loves me and misses me and the kids and how he was begging for a second chance with me again and to be a family. It was crazy! Caught me by great surprise I'll tell ya that! we hadn't even PHYSICALLy touched in YEARS!! CRAZY!
So, here we are, moving, settling in, trying to reach a balance in life..
Well, for me
I am ok...HOW ARE *YOU*!! ? We have been wondering how you and the lady have been doing!!! WORRIED! WONDERING???!
is it REALLY you brothah???????
Pop tart - What's our mission - Do we know - But never listen - For too long - They held me under - But I hear - It's almost over - In Detroit - On a Memphis train - Like you said it's - Down in the heat and the summer rain of - The automatic gauze of your memories - Down in the sleep at the airplane races - Try to hold on - To this heart - A little bit longer - Try to hold on - To this love aloud - Try to hold on - For this heart's - A little bit colder - Try to hold on - To this love - Paperback scrawl your hidden poems - Written around the dried out flowers - Here we are still trading places - To try to hold on - Pop tart - Can you envision - A free world - Of clearer vision - For too long - They held us under - But I know - We're getting over - In Detroit - With the Nashville tears - Like you said it's - Down in the heat with the broken numbers - Down in the gaze of solemnity - Down in the way you've held together - To try to hold on - To this heart - A little bit closer - Try to hold on - To this love aloud - Try to hold on - For this heart's - A little bit older - Try to hold on - To this love aloud - And we are still alive - Try to hold on - And we have survived - Try to hold on - And no one should deny - We tried to hold onto the pulse of the feedback -current - Into the flow of encrypted movement - Slapback kills the ancient remnants - That try to hold on - Try to hold on - To this heart alive - Try to hold on - To this love aloud - Try to hold on - And we are still alive - Try to hold on - And we have survived - Try to hold on - Pop tart - You never listen - Skinned knees - Try to hold on - Stop start - What's our mission - Skinned knees - Try to hold on...
Irish or not...PUCKER UP! HEHE!! Love ya brothah!
my fiance has myotonic md and I am looking for people to talk to about my experiences, worries, concerns and general thoughts.