RA DRUG Orenca
July 30, 2009 10:40pm
I have been having extreme ra flareups
My doctor had me get my first unfusion of Orenca
The nurses say it works well for most people and quickly but …
funchar3 
4:26am, October 12, 2008
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About Me
funchar3
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About Me
mother.wife, grandmother 6 years with Ra 1 1/2 years bedridden from ra I was married 16 1/2 years then divorced, remarriaded, husband committed sucicide 4 years later, became widowed remarried, I have also survived the death of a 17 year old brother, 28 year old sisters sucicide, death of an infant child, but ra is trying to tnake my soul I need help as I have always been positive and I try to live each day Ra has taken intimacy with my love, my ability to sew, cook, play the piano, dance the hula and other dancing, camping travel, mobility, friends who can't bear to look at my deformed hands and feet, etc. I survived a heart attack 7 years ago and heart surgeryI am on enbrel once a week and was on methotrexiate I went from not being able to roll over in bed, to not getting out of bed to a walker, then no bed a recliner, to walking 3 months, to no walking and sleeping in a recliner1 year to a hospital bed and wheelchair to bedridden. I would love to hear from you about your experience, diet, etc.I have gained50 pounds where at first I lost 40?????? I love heavenley father, and my family!They are always pretty busy so I don't get to see them like I would love too. I miss so many birthday and family celebrations because I am stuck in bed.Keep trying to get up in my houer lift so I can go to things.It hurts me so much to have their lives and mine flying by and no contact. Sadly I watched this happen all my life as my parents owned 5 care homes and 1 nursing home. I somehow never thought it would happen to me with my wonderful children.Things change in life. We are all guranteed of that happening!
mother.wife, grandmother 6 years with Ra 1 1/2 years bedridden from ra I was married 16 1/2 years then divorced, remarriaded, husband committed sucicide 4 years later, became widowed remarried, I have also survived the death of a 17 year old brother, 28 year old sisters sucicide, death of an infant child, but ra is trying to tnake my soul I need help as I have always been positive and I try to live each day Ra has taken intimacy with my love, my ability to sew, cook, play the piano, dance the hula
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Interests
cooking-recipe collecting- music-dancing-writing-journaling genealogy-flower arranging- entertaining-table scapeing community service-theater- movies-little women-an affair to remember-Always-The Bucket List-Pretty Woman-Secret-Dragonfly, & many more!
cooking-recipe collecting- music-dancing-writing-journaling genealogy-flower arranging- entertaining-table
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Journal
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Need help
July 1, 2009 2:25am
I would like to hear from anyonewith rhumatoid arthritus who is in a wheelchair.
Iam trying to find out what kind of cushion you use.
I have a roho …
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Happy Valentines Day
February 13, 2009 2:44am
I have found it hard to get to this as I have been so up and down with my emoyions.
I just found out medicare denied a battery operated …
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Shout Out
Just checking in to see how the orencia worked for you. I hope you got some good results. I've just had one infusion so far. The second is in a few days. Drop me a line.
Sandy
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Hi Char, I am back on line. I had some computer problems. I am fine & doing well. Hope all is well with you....Hugs, Connie
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I'm doing ok. How are you?
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Sending you warm wishes and hugs.
Flower
Yes, the sadness and emptiness always is there. We fill our lives with things and events so we can avoid that pain. But truthfully, we can never get away from it. My ex sister in law finally sent me the dvds of Alicia. But I don't think I can watch them...at least not yet. I pray that I will be able to watch them again some day and have a smile on my face again. I have learned so well to put that pain beside and pretend that i am just fine. And I understand about the ra. I am not diagnosed with that but they don't know what is wrong...why my hips hurt so badly that i can barely walk. So, they don't know how to treat it. Sending you lots of hugs and praying thaty ou feel better. .ove, lana
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Close Rheumatoid Arthritis
Treatments
- Positive Thinking Working / Worked
- Writing Somewhat Helpful
- Meditation Somewhat Helpful
- Enbrel Somewhat Helpful
- Methotrexate Not Working
- Remicade Not Working
