ercooley
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About Me
ercooley
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About Me
I'm a 27 year old mom, that has had a mystery illness that I've been battling since my pregnancy with my daughter 4 yrs ago.
I'm a 27 year old mom, that has had a mystery illness that I've been battling since my pregnancy with my daughter 4 yrs ago.
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Recent Activity
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Journal
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Hugbook
Good Luck
Props for supporting your friend and trying to help them out!!!
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Support Groups
Close Lupus
ercooley hasn’t entered any details for this support group.Close Porphyria
Type: Hereditary Coproporphyria (HCP)I'm 27 married with a 3 1/2 year old little girl. I've been sicl since I was 10, but when I got pregnant with my daughter I got much worse. After 3 years of almost every doctor hospitalization for paralyisis they think they know what I have. Porphyria, HCP.
Treatments
- Dietary Modification Somewhat Helpful
- Im looking for treatments right now with n official diagnoses Im on my own with diet which has made a difference but once in an an attack it is hard to end.
Open Ehlers-Danlos Syndrome
I have a friend who possible has EDS. I'm trying to find out as much about it and treatment, and doctors as possible.





