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  • About Me

    Image of ercooley

    ercooley

    Female, 28
    Culver, OR, USA
    Member since July 8, 2008

    • About Me

      I'm a 27 year old mom, that has had a mystery illness that I've been battling since my pregnancy with my daughter 4 yrs ago.

      I'm a 27 year old mom, that has had a mystery illness that I've been battling since my pregnancy with my daughter 4 yrs ago.

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    • Good Luck

      From debbarker12 March 31

      Props for supporting your friend and trying to help them out!!!

    Read Hugbook

  • Support Groups

    • Close Lupus

      ercooley hasn’t entered any details for this support group.
    • Close Porphyria
      Type: Hereditary Coproporphyria (HCP)

      I'm 27 married with a 3 1/2 year old little girl. I've been sicl since I was 10, but when I got pregnant with my daughter I got much worse. After 3 years of almost every doctor hospitalization for paralyisis they think they know what I have. Porphyria, HCP.

      Treatments

      Dietary Modification Somewhat Helpful
      Im looking for treatments right now with n official diagnoses Im on my own with diet which has made a difference but once in an an attack it is hard to end.
    • Open Ehlers-Danlos Syndrome

      I have a friend who possible has EDS. I'm trying to find out as much about it and treatment, and doctors as possible.


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