Feeling Better Than Ever!
July 26, 2009 9:55pm
As I mentioned in an update, I went to see a chiropractor that my sister goes to. She is very knowledgeable and has degrees in nutrition and did a …
Tootsann
9:41pm, July 26, 2009
-
About Me
Tootsann
-
About Me
I have had MS for 18 years. I have tried all of the ABC injections twelve years ago, and was not able to tolerate any of them. After going for all that time with no shots, I actually did pretty well. My MRI did not show any changes. After changing doctors, she insisted that I go on Copaxone. I suffer from chronic pain, and take heavy doses of Morphine and Copaxone, but I am now trying to reduce my amounts and hope to get off of them as much as possible. I am very lucky to still be totally mobile, but get weak after being active for a day. After helping my daughter move into a new apartment (along with my husband)I have been wiped out for a few weeks. I used to take yoga classes once or twice a week, but not had the energy to go for the past few years. I try to do some at home and hope to get back to class soon. I started on Copaxone about a year and a half ago. I have had so much swelling and soreness at the site that I have given myself a vacation for a month, as I couldn't find a place to do my shot - I was too sore all over. I think that the automatic shot tool made it possible for me to go back on them from what I was doing 12 years ago. I wonder if I have felt better since being off of the shots, or if it is just my imagination. I am anxious to see my doctor next month. My husband feels that I have gotten worse since starting Copaxone, but I feel that my MS may have just taken a step down. One good note is that I am trying to reduce my pain medications, and have been able to cut them in half with no bad results. I must be going through a time when my pain is less severe. I also have had hair loss. My hair has gotten much thinner. I wonder why? Has anyone else had this problem? I am not bald, but my hair is getting pretty thin! All in all, I feel so lucky to still be able to do most things, and enjoy my family. I am so lucky to have a great husband who helps out around the house so much, and does a lot of the cooking too. He works at home, so I am very lucky that he can help me out if I am ill, or drive me to the doctor if I am not up to it. All in all, I am a lucky woman. My grandmother had MS and was in a wheelchair by the time she was my age. It could be so much worse!
I have had MS for 18 years. I have tried all of the ABC injections twelve years ago, and was not able to tolerate any of them. After going for all that time with no shots, I actually did pretty well. My MRI did not show any changes. After changing doctors, she insisted that I go on Copaxone. I suffer from chronic pain, and take heavy doses of Morphine and Copaxone, but I am now trying to reduce my amounts and hope to get off of them as much as possible. I am very lucky to still be totally mobile,
-
Interests
I love to do watercolor paintings and collages. I was a graphic designer for about 22 years, but the stress of the job forced me to quit. My weekly classes keep me up with the world and provide so many great friends. I had to miss many classes this past year as I was too wiped out to drive the nearly 1 hour drive.
I love to do watercolor paintings and collages. I was a graphic designer for about 22 years, but the
-
-
Recent Activity
- Sorry, there is no activity in the My Activity feed.
-
Journal
-
-
Fall Back, Spring Forward?
July 17, 2008 1:36am
It is March of 09, and life just keeps getting more challenging. I am usually an eternal optimist, but things are both good and bad.
I am …
-
-
Hugbook
Hug
Glad your okay my friend,
When it hurts to look back,and your scared to look ahead,you can look beside you,and your best friend will be there,
Hug
Hi, I was just reading your bio (looking for people in my age group) and saw where you had hair thinning as well. I certainly believe that copaxone alters your DNA as my hair has thinned and my once very straight thick head of hair is now thinning and curly! Go figure. I have had MS for 8 years now (knew I had it for more than that, but getting a diagnosis here in nowhereville was hard) and been on Copaxone for that much time. I too have the skin dents but don't even go near my legs as the pain is too great from the shot. Arms too just a few times a month. Usually the belly and the arse as there is no feeling there anyway but I have noticed belly swelling consistent with teh shot reaction, but it's the best they have right now. Considering stem cell transplant but... Anyway just wanted to let you know that I am right there with you with the hair loss thing as I am sure others are as well. Stay focused and pain free and again, glad to know I am not alone in the hair dept. Judy
-
Little Love
Anytime you need a friend If you're lonely And need a friend And troubles seem like They never end, Just remember to keep the Faith, And Love will be there to Light the Way Anytime you need a friend, I will be here. You'll never be alone again, So don't you fear. Even if you're miles away, I'm by your side. So don't you ever be lonely. Love will make it alright. When the shadows are closing in And your Spirit deminishing, Just remember you're not alone, And Love will be there To Guide you Home. (Chorus) If you just believe in me, I will Love you endlessly. Take my hand. Take me into your Heart. I'll be there forever, baby. I won't let go. I'll never let go. Anytime you need a friend, I will be here. You'll never be alone again, So don't you fear. Even if your miles away, I'm by your side. So don't you ever be lonely. It's alright. It's alright.
Gold Star
your really doing so well and life is hard enough without the extra stress and strain of health issues....so keep up the great work and good luck to you.
Hug
Stay STRONG!! HUGS, CC
-
Photos
Tootsann hasn’t uploaded any photos yet
-
Advertisement -
Support Groups
Close Multiple Sclerosis (MS)
: Relapsing-remitting MSI have had MS for about 18 yrs. I still walk very well, but have to take a lot of pain medication to keep going. I have a husband who works at home and two grown kids who live about 3 hours away, but we stay very close. I get weakness and pain mostly, but try to keep going to my painting classes and want to get back into my yoga group. Overall, I feel very lucky. I cannot seem to handle any of the ABC drugs, so am only on pain medication now and Ambien for energy. Yoga helps me a lot.
Treatments
- Ambien Working / Worked
- Copaxone Not Working
- I stopped Copaxone, as it was creating skin destruction (actually the fat under the skin) leaving big gouges in my thighs. I had two attacks during the year that I was on it, and it was very hard to handle, the swelling never got any better.
- Klonopin Considering
- Positive Thinking Working / Worked
- Provigil Working / Worked
- Helps to counteract the Morphine and Copaxone and Oxyfast which make me sleepy.
- Support from Friends & Family Working / Worked
- Support from family and friends very important, helps me feel good that they care.
- Vitamin D Too Soon to Tell
- Yoga Working / Worked
- Was working really well to give me energy and loosen me up but I have been too weak to go to class for the past few years. Hope to get back to it.
- Klonopin Working / Worked
- I wrote before that I wasn't taking it, but I have been. Got confused, it does help leg cramps along with Baclofen. I am taking less than before, as it made me more tired.
-
Groups
