usualsuspect's Journal

I haven't communicated hardly at all with anyone lately because I feel like crap. The The tests I went through 2 weeks ago were rather routine and were completely non-conclusive. It showed that when I was at baseline (lowest amount of medicine in my body) I showed absolutely NO improvement in neurologic function with a test dose.(!) Follow me here. If I'm not getting relief of my symptoms from Sinemet it means that I probably am not a candidate for DBS. What my disease is then I don't know. The neurologist has one other type of Parkinson's she'd like to exclude. She says in some YOUNG (God love her) people with Parkinson's they maintain a prolonged Sinemet level so that in order to demonstrate change in function after administration of the drug the person has to go without it for 1-3 days to get rid of traces. According to the neuro she says this cut-off has to occur in a hospital because of complications associated with  abrupt withdrawal. 

 I saw my regular neuro today, whose interpretation of her report was that she feels as if I've got a combination of "regular" Parkinson's and the drug-induced  variety  (I took many psych drugs). I have to agree--from what I know they still can't tell the difference on brain scans. But the main reason I saw the general neuro is for jerking motions around bedtime. I feel like I'm being  jolted  up and down my spine and about to collapse,  ?temporarily losing consiousness.  It's frightening  and  I have drop to my knees. He says it's something called "sleep -associated myoclonus" or something like that. Wasn't very excited about it and told me if it worsened he could get me Klonopin.

Can't even  talk about psych issues, except that with all the neuro problems its hard think positive and I' m scared about where I'll be in another 1-2 years. And I pray a lot.