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  • Image of madsy

    About Me

    Hi, I live in Alaska and have a wonderful husband and three sons. I have been suffering for CP for 7 years. It started with a herniated L5/S1 disc and gradually went to degenerative disc disease starting at L5 and is currently working its way up my spine. I also have facet degeneration and the endplate on the bottom of my L5 is cracked and degenerating as well. I have Neuropathy in my right leg that makes touching my skin painful. There are days where I feel like the skin on my leg is being stabbed with a knife, on fire, extreme itching or it's splitting apart. The first 6 years I went to very doctor I was referred to. I have seen a Neurosurgeon twice and they say there is nothing they can do. In that time I had 4 EPIs and none of them worked. I was to the point of giving up and became very depressed from lack of pain care. Finally in the last year I found a doc willing to prescribe me pain meds. I don't feel it's enough as I still can not work but I felt so grateful to get something. I will soon be going to get a second opinion form another surgeon this month because my EMG test results came back positive for nerve damage. I am not getting my hopes up. I have learned not to get my hopes up with any Doctor anymore but always hope for the best.

    Interests

    My interests include my Family. Advocating for pain relief and scrap booking. I love to scrap book when my body will allow it. I just finished my scrap book room, I have a sit down and stand up work area and designed it around my needs. I also love to decorate. I love gardening, camping and 4 wheeling and fishing. Although this year I was not able to do much of any of that. I still and try to do things I love but in small increments and rest when I need to. I am a spiritual person and I find that my beliefs and prayer help me. I also realize others have their own belief systems and I am not one to judge others. We all have one thing in common and that is CP/IP and we need to support each other and help educate each other as no one truly understands what we go through on a daily basis unless you are going through it too. Most of my closest friends are other CP/IP patients who I have met online through support and advocacy groups. I look forward to making new friends here.

  • Recent Activity

    Tuesday

      November 19

      • madsy gave krissypissy a hug 8:42am

        Hi Krissy, I have only posted a few times but I have read a lot on here to get the feel of the forums…  

      November 15

      November 13

      • Journal

        • trying to quit smoking!!

          Mood August 3, 2008 2:57pm

          I have been trying to quit smoking for the last few days. My first goal is to just make it 24 hours without a ciggy but man oh man is it hard.

        Read Journal

      • Hugbook

        Give madsy a hug



        • Flower

          From LisaNeedHelp November 23

          Hey sweet girl you! Thank you so much for your kind words. I completely agree with statement that we attract takers. I'm going to find a book or something to help me change this about myself. I think it comes from putting my niceness out on the table for everyone to see, so I have to learn to keep more of my niceness inside. Hard, right? The ass keeps sending me messages. He goes through phases, he will be mean, then sweet as pie, then upset and threaten to harm himself, then the cycle starts all over. I wish I could change my number but I believe that costs some money of which I have none. I'll just delete them when I get them. I'm very hurt but I will be fine after a bit. Thank you again for your support!!!! Much love, Lisa

        • Hug

          From LisaNeedHelp November 13

          Hey, I just read your profile, we have the same problem!!! I have a herniated L5-S1 and nerve pain down both legs... I think we're going to be great friends... Hehehe!!!!!!!!!!!

        • Hug

          From LisaNeedHelp November 13

          That's awesome!!! How did you find that link? It's exactly the same!!! Someone here has major problems... I love to have smart friends, and you are super-smart!!! So... what do you think about being friends?!?! :-D

        • Hug

          From rllabelle1960 November 13

          here is a hug :) Robbin :)

        • I’m With You

          From TamiSt November 12

          Hi Love bug, I am getting stronger everyday, whatever happened to me, knock ed the wind out of my sails. Yes, I want to IM, so easy to cover alot of ground. Thank you sweetie for the hug, and always I have one for you. Love you, Tami

        Read Hugbook

      • Support Groups

        • Close Chronic Pain

          L5/S1 herniated disc, Degeneration through the lumbar area in discs and facet areas. Neuropathy in legs.

          Treatments

          Acupressure Somewhat Helpful
          Even though it hurt it helped a little with MF pain
          Chiropractic Adjustment Not Working
          Heat Somewhat Helpful
          Lidoderm Somewhat Helpful
          Meditation Somewhat Helpful
          Neurontin Working / Worked
          Physical Therapy Somewhat Helpful
          TENS Too Soon to Tell
        • Close Back Pain

          L5/S1 herniated disc, DDD, Facet degenerration in L5 area, End plate on L5 is carcked. My L5/S1 disc is almost bone on bone. I have been dealing with this for 7 years,

          Treatments

          Acupressure Not Working
          Bedrest Working / Worked
          I am in bed a lot
          Carisoprodol Somewhat Helpful
          Helps to tale the edge off
          Chiropractic Adjustment Not Working
          Cortisone (Injection) Working / Worked
          Some times works
          Darvon Not Working
          I don't take it
          Epidural Injection Not Working
          I had 4 and they didn't help and actually made the pain the worse
          Heat Working / Worked
          Tkes my mind off of ot occacsionaly
          Physical Therapy Not Working
          Relaxation Working / Worked
          Occasionaly
          Stretching Somewhat Helpful
          TENS Somewhat Helpful
          Takes my mind off of it
          Benzoyl Peroxide Working / Worked
          works long enough to where I an be comfortable as long as I dont over do
        • Open Anxiety

          I started having Panic attacks in 1993 and severe anxiety. I also have been dealing with chronic pain for the last 7 years which has made my anxiety worse. I am hoping to meet people and read any advice I can get my hands on. Also to get support for my axiety problems.

          Treatments

          Ativan Working / Worked
          I take it only when I am in afull swing panic attack. It works very well for me.
          Breathing Exercises Too Soon to Tell
          Klonopin Working / Worked
          It helps to keep some of the anxiety intto turning into full panic attacks
          Meditation Considering
          Paxil Somewhat Helpful
          Positive Thinking Somewhat Helpful
        • Open Autism / Autism Spectrum

          My son who us 22 yrs old was diagnosed with autism when he was 7. Now I have been trying to deal with the challenges of having a grown up son with Autism. He is also facing many challenges himself.

          Treatments

          Early Intervention Working / Worked
          Really helped even though he was not diagnosed until he was 7. He still recieved early intervention starting at 2 yrs. old when they had diagnosed him developmental delay.
          Independent Living Skills Working / Worked
          It's working. He is in a program though the school district that they have available after he graduated. This will be his third and final year at this program that helps to teach him daily living skills.
          Occupational Therapy Working / Worked
          Picture / Word Schedules Working / Worked
        • Open Diabetes Type 2

          My 21 year old son has type 2 and he also has Autism so I have to be careful and watch him and make sure he takes his meds,eats right and exercise. He was diagnosed with type 1 when he was 15 then after insulin injections and problems with BSL going too low they ran more tests and said he had type 2. For the last 6 months his sugar levels have been high. His A1C tests have always been in a normal range until the last 6 months when he went up to a 9.I am here to find support and help.

          Treatments

          Avandia Somewhat Helpful
          Just started this abouta month ago his numbers went down a little.
          Byetta Considering
          Just had this precribed to my son but trying to figure if I want to go with this or not.
          Eating Healthier Foods Working / Worked
          It definitely helps but my son sneaks foods. Due to his Autism and his ability to undertand how important this is we are working on an eating schedule.
          Insulin (Regular and NPH) Working / Worked
          It worked for a while when he was first diagnosed but the insulin was adjust to a smaller and smaller amount to where I was injecting him with tiny dosage amount due to his blood sugars going too low. Then he was diagnosed with type 2 and not the original diagnosis of type 1.
          Metformin Working / Worked
          It worked really well for many years but lately it hasn't worked like it did. Doc just increased the doasage amount.
          Physical Exercise Working / Worked
          It works if I can get my Son to do it on a regular basis which we are working on now.
      • Groups

      • Friends

      • Snapshot

        madsy hasn’t been active on the site in a while. Why not give madsy a hug?

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