Hi, I am so very happily married to a great guy who has supported my poor health from day one. We have a teenage son and the sweetest little dog you could ever meet. She is my baby & she's always by my side when pain decides to surface. I'm hoping to communicate with others that share the same experiences that I have (my husband listens but he doesn't know where I'm coming from sometimes) & because I'm limited physicaly this is the best way for me.
Hi, I am so very happily married to a great guy who has supported my poor health from day one. We have a teenage son and the sweetest little dog you could ever meet. She is my baby & she's always by my side when pain decides to surface. I'm hoping to communicate with others that share the same experiences that I have (my husband listens but he doesn't know where I'm coming from sometimes) & because I'm limited physicaly this is the best way for me.
I am an aspiring song writer...on good days I can finish a song in the same day. I also love karaoke..I love it so much that I have a system installed in surround sound so when I feel like singing strong I can sing my heart out. I use both song writing & karaoke as pain control for the minor pain because they distract the mind from the pain, & the less pain meds I take the better I always say. :0)
I am an aspiring song writer...on good days I can finish a song in the same day. I also love karaoke..I
August 24, 2008 1:24pm
Hey Everyone,
Just wanted to let you know what happened on Friday. The good news is that my doctor does believe that there is something wrong (she …
August 7, 2008 9:36pm
I spent the whole day in bed because the pain was contiuous & it wouldn't here of anything beyond …
July 22, 2008 1:46am
I'm really trying to make the most of what I have but these last few days have been a challenge. Yesterday was really bad & …
thank you for the input as i'll ask my doctor about this and see what they can do. the doctors in vancouver bc canada are not always sure what they can suggest. but will keep you posted joanne
thank you i hope things will get better for you as well it can be very hard but dont like the idea that im sick all the time just been under so much stress and losing hair maybe you mighr give me some ideas to inprove each other thoughts and well being thank you again . jo
Thanks for the hug. I'm always happy to have a new friend. Malena
Hugs, I hope you are doing well.
Thanks I will do that. I do have a question though---- are you on any medicines? I was on elmiron but was taken off as my hair was falling out. I am trying to get off that nerve pill but I will have to do it slowly. How has your IC been the past few years? does it get better? Laura
Endometriosis is nothing new to me, I have been down this road before. I have had my fair share of treatments, been the lab rat for experimental drugs, & had to turn to surgeries as a last resort. In addition to the Endo I also have moderate Interstitial Cystitis, complex migraines, scar tissue, & a tortuous colon with a little bit of IBS.. the only disease I had & can say is gone for good is the Adenomyosis..that left with my uterus that day. :0) I try to take it one day at a time. :0)
I have had moderate IC for about 8 yrs now. I've been on treatment & had nerve injections but both failed to bring any pain relief..now I'm taking my pain meds as I need them. Consuming liquids is complete torture weather my bladder is full,half full or even empty.. I'm lucky just to drink a glass of water in a day anything more & I'll suffer for it later on that night. I don't have the frequency..its the pain..that sharp searing pain that you know you can't stop from coming.
Complex Migraines 7/07- Awoke to room spinning right & left, couldn't move off the bathroom floor & got sick several times. EMTs broke a window to get in & I was admited 4 days w/ the worst migraine. At home I remained dizzy, nausiated, no tolorance to motion,light, heat or sun & had a sleep mask to travel. These migraines never disapated until 3 months later. I can't tolerate heat & sun these are triggers for a migraine & I'm deathly alergic to Aspartame.
