Journal Entry for April 20, 2009
April 20, 2009 8:17am
Progress
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Goal End Date is Jul 31, 08 483 days ago.
jr4693
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About Me
jr4693
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About Me
I was diagnosed in July 05 with severe COPD. Fought this for a year and finally learned to live with it. Then along came diagnosis of Fibromyalgia and soon to follow two brain tumors revealed themselves. One meningioma and one low grade glial ...followups every 6 months. Some days typing is hard. Making sense and putting words together. But I keep on trucking! I raise a 16 year old son alone and this too keeps me going.
I was diagnosed in July 05 with severe COPD. Fought this for a year and finally learned to live with it. Then along came diagnosis of Fibromyalgia and soon to follow two brain tumors revealed themselves. One meningioma and one low grade glial ...followups every 6 months. Some days typing is hard. Making sense and putting words together. But I keep on trucking! I raise a 16 year old son alone and this too keeps me going.
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Interests
I like to do things that require no brain power now. I love making jewelry and have been blessed with a talent for silk floral design as well. I play a online computer game to keep sane, and love most in life to spend time with my son.
I like to do things that require no brain power now. I love making jewelry and have been blessed with
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Journal
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Journal Entry for March 18, 2009
March 18, 2009 7:55am
Realize finding a companion is not an option...as no one seems to be to encouraged for damaged goods so I am changing my goal to get up and get …
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Hugbook
Ray of Sunshine
It was good to see you post on the board. It's good to see you back. How is the Acaii juice coming? I take it and reservetrol. They are both good antioxidants. Hope you are feeling much better. Gee your son should be nearing his senior year? Have a good week ahead!
Hug
Of course I remember you silly. YOU just had your sonn, and you were struggling along and then the tumors were found. That guy came to live with you to help you, but ended up draining your resources, but you always had a joke or something funny to say. I will always remember you! Hugs! JOAnn PS I am so glad you are still here with us!
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Hug
Wow, I am so happy to see you back. I wondered what happened to you and in fact worried about the worst. So, Needless to say, I am delighted to see you posting here. Take care and God bless. Hope you will stick around now. Hugs! JOAnn
Hug
Thinking of you today and hope your doing alright. We are all thinking of you and wishing you well. Love and best wishes from all of us, Holly
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Hug
I have missed you and wondered if you are ok. It would be great to hear from you. Hugs! JoAnn
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Photos
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Support Groups
Close COPD & Emphysema
I was diagnosed with Very Severe COPD in 05, and told I needed to be on a transplant list because I am not old enough and didn't smoke enough to have it this bad. I recently went to Mayo clinic searching for answers and was just sent home with nothing but more meds. I sit in a chair all day because even taking a shower gets me winded. I also was told & treated for Hpylori which caused ulcer as well as a diaphragmatic hernia. But add the brain tumors and I forget it all!!
Treatments
- Advair Not Working
- trying it again instead of forad After a few days my throat swelled and I really could not tell it did anything!
- Albuterol Somewhat Helpful
- Just had this increased to 2 puffs, 4 times a day!
- Foradil Not Working
- Someone else told me they had chest pain on this and I had that as well so stopped to see if it goes away.
- Serevent Working / Worked
- After having been on the advair and off then taking this my tubes opened right up and i began sounding like a barking dog.
- Spiriva Working / Worked
- I simply can not breate without this one and the foradil!
Close Fibromyalgia
I have resisted this diagnosis for a year now..not sure why. I think I just don't need any more wrong with me. I have very severe copd with chronic pain. Have a awesome son, two dogs and just started on lexapro so things are looking up a little..
Treatments
- Lexapro Working / Worked
- Just seemed to cry all day and always in so much pain I just couldn't come out of the depression. Started the meds and it feels like the pain is easing up as well.
Open Sciatica
Back injury years ago left me having surgery removing my tailbone now I am just scar tissue wrapped around nerves. If I knew then what I know now.
Treatments
- Stretching Working / Worked
- Been struggling for years..and watched it progress daily ...had lipo which didn't help and now the whole area of my back from under my arms to top of legs stays in pain!
- Hydrocodone Working / Worked
- I use it when the pain isn't so bad!
- Oxycodone Somewhat Helpful
- 5mg helped about the first two hours then wore off!
- Oxycodone Working / Worked
- So far so good...I just dont' want to get into taking these drugs but I also want a life.
- Epidural Injection Working / Worked
- So far so good just had first one so we will see!
Open Brain / CNS Tumors
Type: Meningioma51 Yr old female raising a 14 yr old son alone with severe copd and now brain tumors. Just found out yesterday so don't know alot yet but am scared to death!
Treatments
- glimepiride Working / Worked
- Well i know I fell in a store right back at the beginning of the copd problem ..then again off th e washing machine ..I barely remember being completely disoriented both times and the 2nd time the doc did nothing. Just wonder if this affects how I breathe?
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