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About Me
marycanelas
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About Me
I am 38 years old, happily married to a wonderful supportive man, and have 2 beautiful boys, now 7 & 9. I worked as a Payroll Tax Consultant for years, and have not been able to work for almost 3 years now due to my illness. I am also a yoga instructor, which is truly my passion and keeps me going. I do not teach very much, but practice often and it brings me great peace.
I am 38 years old, happily married to a wonderful supportive man, and have 2 beautiful boys, now 7 & 9. I worked as a Payroll Tax Consultant for years, and have not been able to work for almost 3 years now due to my illness. I am also a yoga instructor, which is truly my passion and keeps me going. I do not teach very much, but practice often and it brings me great peace.
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Interests
reading, boating and kayaking, hiking( not much now ), yoga, anything and everything outdoors! Of course playing with my boys, just being with them makes me smile! singing and country music
reading, boating and kayaking, hiking( not much now ), yoga, anything and everything outdoors! Of course
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Recent Activity
Recently:
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1 hug received, 1 hug given
Friday
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marycanelas gave dani11brunson24 a prayer 8:28am
I am thinking of you and watching for the good news to arrive! How are you doing? I hope you are holding…
October 21
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marycanelas wrote a discussion post in the Lupus support group: elevated liver enzymes 8:26pm
I experienced this back in May 09, and went into liver toxicity, my doctor took my off my imuran, and…
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marycanelas commented on SSWarning’s journal entry Started bleeding & no help 8:22pm
I am having the same inability to focus and I am forgetting everything so much so sometimes my husband…
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marycanelas gave SSWarning a chocolate 8:18pm
thank you , I am an emotional wreck, crying, angry, no tolerance, no patience, its the worst I have ever…
October 16
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marycanelas gave KristieK a ray of sunshine 12:03pm
thank you Kristie! I just got home from 3 days in the hospital, I certainly did not need that. Things…
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Journal
marycanelas hasn’t written any journal entries yet. -
Hugbook
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Hug
I HAVE LIKE A WEEK OR LESS TO GO AND SHE WILL BE HERE, CAN'T WAIT TO POST PICS OF HER. HOW R U DOING?
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Flower
I hope you are doing better! How are you doing emotionally? Have you talked with your doctor about it? I feel for you, that is no way to live life! I've experienced it before. I know if I wasn't taking anti-depressants right now, I would be crying alot. But of course my emotions are still wanting to come out and it's getting harder to control it!
Stay strong!!! -
Hug
I saw you were having a difficult time with the Lupron, your doctors, and the pain. I so wish I knew what to tell you, except I'm here for you. Big Hugs
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Hug
I hope you feel better soon!!! We are all here for you to give support and lend an ear. Anytime you need to talk or just rant, don't hesitate to contact me. I'm really glad the Lupron is starting to work for you!
Stay Strong!! 
Shout Out
Mary--How are you my friend?? I am praying for you--I hope your surgery goes well--please let me know how you are doing---Miss You!
Hugs
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Photos
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Support Groups
Close Lupus
I have been diagnosed with MS 3 years ago at age 35. I have 2 beautiful boys, now 7 & 9. I was recently diagnosed with SLE and put on Plaquenil. I am currently on IVIg therapy one day weekly, its a big committment, but I did not respond well to interferon and/or chemo drugs, so we are giving this a go. I would love to know if there is anyone else out there like me. I suffer with crippling fatigue, and alot of pain in my legs, deep throbbing, and also joint pain. I severely impacts my quality of life. any support would be appreciated.
Treatments
- Clinoril Considering
- I cant tell if it makes a difference or not.
- Effexor Working / Worked
- Klonopin Working / Worked
- Lyrica Somewhat Helpful
- it takes the edge off in my legs from the throbbing but its a suttle difference.
- Restasis Too Soon to Tell
- Plaquenil Too Soon to Tell
- Baclofen Somewhat Helpful
- helps quite a bit with spasms especially in my forearms from using my hands alot.
Close Sjogren's Syndrome
I am a happily married mother, with a wonderful husband and 3 beautiful sons, 7, 9, and 23. I am also blessed to have a wonderful stepson who is 15. I have been recently diagnosed with Lupus (SLE) and then Sjogrens. I am feeling a little overwhelmed about my future, and my health is not well. I have been on prednisone orally for almost 10 months, and my doctor has just started me on Imuran. I am also on Plaquenil, Lyrica and I undergo IVIg therapy ( immune globulin replacement therapy.
Treatments
- Plaquenil Somewhat Helpful
- 2 months into it and I am in a flare up a pretty tough one so its hard to know if its working. no side effects though which is good
- Prednisone Working / Worked
- always helps but very tough to tolerate the mood swings trouble sleeping at night and mostly the weight gain
- Azathioprine Too Soon to Tell
- just started today nervous about it
- Lyrica Working / Worked
- Used to take Neurontin and it seems Lyrica does take the edge off of my muscle aches and throbbing but no miracle.
Open Myasthenia Gravis
Just diagnosed this week, and scared to death. I have small children who need me, and a wonderful loving husband. I also have Lupus (SLE) and Sjogrens
Treatments
- IVIG Not Working
- Prednisone Working / Worked
Open Endometriosis
Just found out i have endo, and I have 2 large endomitiomas, 5cm, one in each ovary. Trying to understand which of my symptoms could be from endo and not autoimmune disease.
Open Lyme Disease
I had Lyme and have been told I now have chronic Lyme syndrome after 3 months of treatment
Treatments
- Doxycycline Working / Worked
- worked
Open Antiphospholipid Syndrome
marycanelas hasn’t entered any details for this support group.
