Today I am trying to find an answer …
Today I am trying to find an answer to how to make it through Christmas since my son died.
Join Now
lisadearlisa 
6:53pm Saturday
Ive had MS since 1993 and I have experienced a lot of things but i think the worst is having others treat you differently. I walk with a limp so people avoid taking me places, hey i still have shopping to do and i like the park. I have limited use of my left arm so its difficult to cut food so people avoid taking me out to eat. Hey i like to get out and eat too!!Since getting MS, my brothers decided it was best for me not to drive so i am a busser, no big deal, u get out u meet people. On the bus the first row of seats are reserved for disabled or elderly and they have a sign saying that. So why is it that i keep getting asked to give up my seat, which i do for the elderly as long as the MS is ok. I have an older sister that is mentaly retarded and since i was diagnosed everyone treats me like they treat her. They call me honey, sweetie, and want to do everything for me and i just want to scream get away from me im still me. And the stares, people stare unbelieveable, I have gotten so rude its scary. When someone out and out stares at me Ill just ask them "see something u like", or " give me ur address and ill send u a pic then u dont have to be so rude" or "i know what my problem is I have MS and it can be helped but honey unfortunately for u ugliness cant be helped". I just hate it when people stare and i tell them so, i dont beat around the bush. Id like to know how others deal with this.
Comments
You might also like ...
I'm a down to earth person who …
I'm a down to earth person who accepts everyone as they are and I try to see the good in all people because I believe …
Christmas is my favorite time of …
Christmas is my favorite time of year and now I'm so depressed that I can't even enjoy any of it. I've been drinking …
hello, my mother has ms but won't go out anywhere, i used to offer to take her but she wouldn't go, she just sits at home listening to radio, i haven't noticed anyone staring as have been on a bus with her. doesn't it make you feel worse reacting to these people. i expect u must feel like a leper and its not nice but u haven't done anything wrong so u can go out with your head held high
JUNE4
I have MS for about 4.5 years now. But an onset symptom of ON about 24 years ago. Not diagnosed in between. Until a suspect stroke in ER caused an MRI to be done, then they said within 2 hours that I had MS and I had MS for a long time.
The first 2 years were pretty rough. My DL came up for it;'s normal renewal about a year after I was diagnosed. In this state, they require DL renewals be done in person. I was so unsteady, had difficultly using my arm they would not renew my DL without a doc signature saying I could drive, me taking the written test and they made me take a road test before they would renew my DL. The written test, I passed on the spot. The road test did not include the highway, because GD I have only ben diagnosed with MS five months ago & I didn't feel capable of controlling a car at high speeds, so I thought it was PRUDENT that I didn't try. They slapped a 2 mile restriction onto my DL that it took another 2 years to get removed & 4 doc's to explain that MS does not prevent me from driving. So I got very used to the bus at that time. The Bus Drivers were very nice to me & remain nice. I still avoid freeways, but I want to get back to driving on one soon. Part of my 4-5 years aeway from free way driving, was that damn restriction on my license at a time I needed to return to a semblance of "normalcy" and the WI winter weather. I don't want my first go at freeway driving after 4-5 years to be on icy roadways.
My MS has stabilized since the first 2 rock years. Everything is just harder, if you understand that explaination.
I hope Tysabri makes your MS better.
Lynn
nnyl1
Hi new friend, I was dx in 91 so about the same time as you. I have learned over the years to not worry about what others think they are going through their own troubles I am sure. We have to worry about ourselves and be the best we can be no matter what obstacles are put forth to us.
I like this Dr. Seuss quote..."those that mind don't matter, those that matter don't mind."
The cards that life has dealt us may not be the perfect hand, it's how we play those cards is what matters.
I have to be thankful for what I do have and not dwell on what I don't. Being angry and stressed out only makes matters worse. I know, believe me. Been there, done that! Still do it the odd time.....
"I just hate it when people stare and i tell them so, i dont beat around the bush. Id like to know how others deal with this."
I just smile and keep on keeping on!
hugs,
Sharon
mooseyinn
I understand the pain of this. My ex started treating me like I was 2 or 3 years old and basically wanted me to lay in bed all day and not do anything. He was also a tad embarrassed by the scooter at the stores...I think sometimes its worse when they treat you like nothing is wrong and expect you to work a job when you are not able...Its hard all the way around. I am always having strangers ask me if I sprang my ankle or something because of my cane or at church well meaning ppl will try and tell me God can heal me...I know he can and I always say he already has... I would rather be healed of hatred, bitterness, anger, jealousy, and a whole slew of other adjectives than MS...
good luck to you...as Sharon said, just keep smiling and keeping on!
Tekoa
Keep on going and don't let anyone else's reactions bother you. Keep on being strong and doing what you like to do. What's important is that you're still you!
closer