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BZberta 
7:27pm, July 17, 2009
i am so disappointed that I am not feeling as strong as I would like too. My days are long and outside it is so hot. My illness really inhibits me from doing much. Just about the time I feel I can accomplish something, another symptom crops up. Right now I am having problems with my stomach and I feel that has a lot to do with the new meds. When I call my PAH doc she refers me to my Primary Physician. She is so nice but she admits my case is complicated and before she prescribes any antibiotics, etc. she is very careful to find out if I can tolerate it. With each medication I have hopes of feeling better but most of the time I just get weaker. I am starting to take medicine for my stomach now as I stay nauseated and weak. O well life goes on even when we are miserable. I just pray each day God would give me strength to have at least of few days of feeling normal - how ever that feels. I just wonder if it all is just the progression of the disease. Thanking God for every day He gives me. I would love to be with my son and daughter and their children more but I guess that is not going to happen.
I am thankful for facebook that I can keep up with their lives.
Sorry this is so stressful but this is just what I feel.
I'll never give up on praying for all my DS friends. Love and Prayers, Berta
Comments
hey friend,,,, so sorry to hear that you are having a rough time of it.... wish we could snap our fingers and feel better...... I think everyone has a right to feel sorry for them selves cause I do it often.... I just need to know what to expect and that is not going to happen with what I have... So just hang in there and God will bless you with some good days hopefully.......Love Ya
JenneyJ
That a good prayer. God please bless us with some good days. God is good and I am closer to Him than I have ever been. I am a minister's wife and feel if it wouldn't be for this sickness I could do more. But then again God knows and understands. Thanks for your encouragement.
BZberta
Hello, my name is liven and I understand just how you feel. I have crest syndrome, fibromyalsia and pulmonary hypertention. All summer has been really tough for me. I got down in my back and I'm just starting to be able to walk without a cane. I live with my 28 yr. old son who has cerebral palsy and is legally blind. I get pretty discouraged sometimes. Thank God when I start feeling hopeless he puts people in my path that lifts me up. I hope you know that their are people out here that understand how you feel and are praying for you.
liven
God wants so much for us to be whole and healthy. Even in our illness He wants for us to know joy and happiness. What I find the most difficult since the death of my husband is just how quickly the world is to toss me out in the trash. That really hurts and has caused so much harm in so many ways. God's blessings surround me daily and this is what I focus on to pull me through. But with just a little support and caring life could be so much improved. But then that is just the world we live in and letting go and letting God is the only way to cope. Love and (((hugs))) Patricia
SadTime
Thank you alll for caring. Sad Time I can't imagine living without my husband. He is a great caregiver, but he must get weary. You give me hope and I know letting God is our only Hope and that is why I am His and He is mine. Love and Prayers, Berta
BZberta