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BZberta 
7:27pm, July 17, 2009
I have having stomach problems and found out that the scleroderma is in my lung and worsens the fribrosis. They have given me another med and after the cath they will probably put me on another med. I am so weary of taking so much med and I am just tired. But we will see. I just keep praying and trusting God. It seems my presssure has increased from 110 down to 79 and now to 130. Wonder what's going on. I have been off here for a while - just got feeling my best but have been praying for all of you. Love and Prayers, Berta
Thanks for continuing to send your notes. Sorry I wasn't able to answer.
Comments
Today is my 62 birthday. I have been told by the doctors my last tests were not all that good that the pressure was up and I have had some stomach problems to deal with. I really had felt my breathing was better but I will have to have a right heart cath to see if the pressure is as high as they said. So we will do it and go from there. I still believe God is still my Answer and I just put all my trust in Him.
Love and Prayers to all my Daily Strength friends. Berta
i am so disappointed that I am not feeling as strong as I would like too. My days are long and outside it is so hot. My illness really inhibits me from doing much. Just about the time I feel I can accomplish something, another symptom crops up. Right now I am having problems with my stomach and I feel that has a lot to do with the new meds. When I call my PAH doc she refers me to my Primary Physician. She is so nice but she admits my case is complicated and before she prescribes any antibiotics, etc. she is very careful to find out if I can tolerate it. With each medication I have hopes of feeling better but most of the time I just get weaker. I am starting to take medicine for my stomach now as I stay nauseated and weak. O well life goes on even when we are miserable. I just pray each day God would give me strength to have at least of few days of feeling normal - how ever that feels. I just wonder if it all is just the progression of the disease. Thanking God for every day He gives me. I would love to be with my son and daughter and their children more but I guess that is not going to happen.
I am thankful for facebook that I can keep up with their lives.
Sorry this is so stressful but this is just what I feel.
I'll never give up on praying for all my DS friends. Love and Prayers, Berta
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hey friend,,,, so sorry to hear that you are having a rough time of it.... wish we could snap our fingers and feel better...... I think everyone has a right to feel sorry for them selves cause I do it often.... I just need to know what to expect and that is not going to happen with what I have... So just hang in there and God will bless you with some good days hopefully.......Love Ya
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That a good prayer. God please bless us with some good days. God is good and I am closer to Him than I have ever been. I am a minister's wife and feel if it wouldn't be for this sickness I could do more. But then again God knows and understands. Thanks for your encouragement.
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Hello, my name is liven and I understand just how you feel. I have crest syndrome, fibromyalsia and pulmonary hypertention. All summer has been really tough for me. I got down in my back and I'm just starting to be able to walk without a cane. I live with my 28 yr. old son who has cerebral palsy and is legally blind. I get pretty discouraged sometimes. Thank God when I start feeling hopeless he puts people in my path that lifts me up. I hope you know that their are people out here that understand how you feel and are praying for you.
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God wants so much for us to be whole and healthy. Even in our illness He wants for us to know joy and happiness. What I find the most difficult since the death of my husband is just how quickly the world is to toss me out in the trash. That really hurts and has caused so much harm in so many ways. God's blessings surround me daily and this is what I focus on to pull me through. But with just a little support and caring life could be so much improved. But then that is just the world we live in and letting go and letting God is the only way to cope. Love and (((hugs))) Patricia
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Goal Updated
Berta, I am so sorry that you are having such a difficult time. I will keep you in my prayers. Take care and let us know as you get to feeling better (and I know you will)
Hugs,
Anna
PearlB
Hi Berta. Just wondering how that right heart cath went. Prayers and hugs. Eiliene
eilienej