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About Me
lyn200830
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About Me
i am a mother of 5 beautiful children are oldest boy has nf1 and are youngest son has autism are 2 boys in the middle where both diagnosed withadhd so are hands are full. but we wouldnt trade it for ne thing. are oldest which is the only girl helps out alot. we are very proud parents
i am a mother of 5 beautiful children are oldest boy has nf1 and are youngest son has autism are 2 boys in the middle where both diagnosed withadhd so are hands are full. but we wouldnt trade it for ne thing. are oldest which is the only girl helps out alot. we are very proud parents
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Support Groups
Close Neurofibromatosis
my husband and i have a son are oldest son has nf1 he is currently taking thalidomide. so far the tumor has not grown any more. which is always good. he has a tumor rapid around his optic nerve in his left eye and a tumor going down the left side of his face. he has been through 3 sugerys so far. one to debulk the tumor in his eyelid and another to get as much tumor off the left eye to releave pressure and the other one took a tumor off the left side of his face. he is now 11 years old.
Treatments
- Thalidomide Too Soon to Tell
Close Autism / Autism Spectrum
hi i am a mother of 5 children are oldest son has nf1 are 2 middle boys have adhd and are youngest son was just diagnosed with autism last year. we have are hands very full. we have only one girl who is the oldest and very helpful. we are very proud parents.
Treatments
- Avoid Certain Foods / Chemicals Working / Worked
- are son is on a organic diet which seems to be helping
- Early Intervention Not Working
- my son was doing thearpy at home and we where then told he had to go to early child hood develoment. which did nothing accept upset my son even more. where he would just scream
- Occupational Therapy Working / Worked
- a ot would come to the house. as long as she could then she was taken from us but before she left she gave us list of things we could do with him. which has helped
- Play Therapy Working / Worked
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