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  • About Me

    Image of Destynismeemee

    Destynismeemee

    Female, 53, Married
    St. Charles, MO, USA
    Member since June 21, 2008

    • About Me

      I am a wife for 33yrs, a mom of three children and a grandma to 1 granddaughter. Family is my life.

      I am a wife for 33yrs, a mom of three children and a grandma to 1 granddaughter. Family is my life.

    • Interests

      doing anything with my family, crocheting, baking, I used to like cooking but the smells make me sick. Bookkeeping, bingo, church, scouts

      doing anything with my family, crocheting, baking, I used to like cooking but the smells make me sick.

  • Journal

    • just venting

      Mood September 4, 2009 7:24pm

      I am now on the patch, the doctor thinks I was trying to hard to get off the medicine. Anyway I am now on the patch at 10 mg. the first two weeks I …
    • just making a note for myself

      Mood August 1, 2009 7:57am

      Still trying to get off the medicine, but every time I think I am close I get the pain back. I have noticed that my moods also set off the pain. And …

    • This entry is private

    • Journal Entry for February 13, 2009

      Mood February 13, 2009 9:43am

      I went to my oncoligist office today. My numbers didn't come down as much as I thought they would being on the imuran, in fact they went up. But …

    • MRI with contrast

      Mood February 7, 2009 12:40pm

      I am feeling really really bad. Yesterday I had an MRI with contrast, I thought this would be a breeze. Well they but this thing over my stomach and …

    Read Journal

  • Hugbook

    Give Destynismeemee a hug



    • Present

      From lidlone Monday

      Happy birthday! Haven't heard from you for a long time - how are you doing?

    • Hug

      From gulfy November 2

      How did your surgery go? did it help you?

    • Hug

      From vturley October 28

      Thanks so much! i appreciate the support.

    • I’m With You

      From bjlovesnan October 2

      Thanks Sweetie..One more question. Have you ever had any problems with your Ferritin being high. Mine came back 306 overload on Iron. It can cause your organs to fail like your pancreas, heart and kidneys.

    • Chicken Soup

      From lidlone September 29

      Sorry you've been having such a bad time right now. Hopefully you'll get it all under control soon and not have to deal with the pain.

    Read Hugbook

  • Support Groups

    • Close Pancreatitis

      Last year I was in the ER for pain, they saw a blockage in the head of my pancreas. After many attempts to get at it they sent me to a teaching hospital who did a fine needle biopsy which came back as pancreatic cancer, had Whipple procedure, after sending the smear out they said it wasn't cancer but Auto Immune Chronic Pancreatitis

      Treatments

      Azathioprine Working / Worked
      This medicine makes me have alot of aches and pains in addition to the normal aches and pains. Not sure if it is working though, I have had a cold since early Novemeber.
      Demerol Working / Worked
      Fiorinol Working / Worked
      for the bad headaches I get
      Oxycodone Working / Worked
      still trying to get the right dosage
      Pancrelipase Somewhat Helpful
      On Viokase 8,
      Protonix Working / Worked
      for acid reflex
      Tramadol Working / Worked
      Taken for break through pain
      Wellbutrin Working / Worked
      working
      Hydrocodone Working / Worked
      I take 750 mg every 4-6 hours when needed.
    • Close Pancreatic Cancer

      I was told I had less then 6 months to live, that I had adeno carcinoma pancreatic cancer. After they performed the Whipple I was told that is was not cancer but Auto immune chronic pancreatis

      Treatments

      Whipple Procedure Somewhat Helpful
      One and a half years ago I had the whipple procedure done, they thought that it was cancer, the surgery took 18 hours, you are right walking was a big help in getting better. I was sent home with 3 tubes and a feeding tube. It took more then 6 months to recuperate, I have some problems now, but that is because I did not have the cancer, I have auto immune chronic pancreatitis.
  • Groups

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