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  • About Me

    Image of CoonCat

    CoonCat

    Female, 39
    USA
    Member since June 21, 2008

    • About Me

      I'm the sole caregiver for an elderly parent who can't walk and is brain injured. I'm also disabled with mixed connective tissue disease (borderline lupus), really bad GI problems (IBS, GERD, Barrett's), polyarthritis, Raynaud's Syndrome, osteopenia, lung/heart problems caused by the MCTD. Other issues include food allergies, being OCD and struggling with suicidal tendancies. AND, I have absolutely NO family support. They don't want to help with my mom and have never accepted my own illness.

      I'm the sole caregiver for an elderly parent who can't walk and is brain injured. I'm also disabled with mixed connective tissue disease (borderline lupus), really bad GI problems (IBS, GERD, Barrett's), polyarthritis, Raynaud's Syndrome, osteopenia, lung/heart problems caused by the MCTD. Other issues include food allergies, being OCD and struggling with suicidal tendancies. AND, I have absolutely NO family support. They don't want to help with my mom and have never accepted my own illness.

    • Interests

      Maine Coons

      Maine Coons

  • Journal

    CoonCat hasn’t written any journal entries yet.
  • Hugbook

    Give CoonCat a hug



    • Flower

      From aubleeanna September 28, 2008

      Today, I am offering you flowers to brighten your day and bring a smile to your face. You are a good person in a bad situation. I feel for you, sweetie, and will always be here for you. peace and love ... Kyle Anne

    • Hug

      From aubleeanna September 17, 2008

      Just wanted to offer you another gentle hug. I'm still on your side. peace and love ... Kyle Anne

    • Hug

      From aubleeanna September 9, 2008

      More gentle hugs coming your way. Be good to you, sweetie. I'm concerned aboutya. I'll always be on your side. You can't continue to do it ALL. It's going to take a toll on your own health. Please know that I am here for you. peace and love ... Kyle Anne

    • Hug

      From MYSTERYPERSON_55 August 29, 2008

      hi my friend and thanks for your support it does help greatly.

    • Hug

      From MYSTERYPERSON_55 August 10, 2008

      i am trying my friend not to get down but it is hard right now my trust and defenses are up and will slowly come down.

    Read Hugbook

  • Support Groups

    • Close Food Allergies

      allergic to several types of nuts, vegetables and fruits, and certain spices (like ginger)

      Treatments

      Avoid Certain Foods / Chemicals Somewhat Helpful
      sometimes there's stuff in there that i don't know about and have unavoidable reaction; hard to eat outside of home
      EpiPen Considering
      so far benedryl has stopped it, but had bad reaction to benedryl
    • Close Lupus

      Treatments

      Celebrex Not Working
      didn't work and gave me bad hives localized to my fingers; tried on-again-off-again for a few years & hives stopped when i wasn't on it and came back when i was; decided to just stop taking it because didn't improve my condition at all anyway
      Cellcept Not Working
      stopped taking it due to horrible side effects and no relief from the lupus symptoms
      Methotrexate Not Working
      stopped because didn't really help and just gave me horrific, painful sores on my tongue -- couldn't even eat
      Plaquenil Too Soon to Tell
      tried a few times and didn't really help; horrible nausea made me very sick; ok--after being off it for 3 years, just started back on it again and starting with nausea again and now even worse side effects that are getting intolerable, so I'm not sure I should continue
      Prednisone Somewhat Helpful
      helps a little, but not much...without it, though, i can't function...would like to try to get off it after 18 years and see if i can tolerate...so, i may feel a little worse, but already feel bad, so what's some more pain and fatigue?
    • Open GERD & Heartburn

      lots of GI problems, such as IBS, GERD, Barrett's...started at the age of 11 and has progressively gotten worse

      Treatments

      Antacids Working / Worked
      Maalox every morning and PRN, Gaviscon after supper and at bedtime and as needed -- I guzzle this stuff and it does work, but sometimes i have to take more than what bottle says...Tums and Rolaids works somewhat in a pinch when not at home with the liquid antacids
      Avoid Certain Foods / Chemicals Working / Worked
      pretty much eat almost nothing for any relief; eat yogurt, drink V8, drink SlimFast (Ensure makes me really nauseous and dizzy), stick to major low-fat diet, only diet frozen food seems to work with regard to solid foods; CANNOT eat out or have homecooked food
      Carafate Not Working
      worked well when i took it, but was constipating
      Dietary Modification Working / Worked
      pretty much eat almost nothing for any relief; eat yogurt, drink V8, drink SlimFast (Ensure makes me really nauseous and dizzy), stick to major low-fat diet, only diet frozen food seems to work with regard to solid foods
      Domperidone Somewhat Helpful
      taking it for a few years now since took Propulsid off the market and better than nothing; i do notice when i don't take it 3x a day (even when i don't eat)
      Ginger Not Working
      tried it and found out i'm highly allergic to it (break out in hives and throat closes up)
      Nexium Not Working
      wasn't strong enough for my symptoms
      Prevacid Not Working
      wasn't strong enough for me
      Prilosec Not Working
      worked for a long time, but my GERD got so bad that it stopped working
      Protonix Working / Worked
      this is the only thing that works and i have to take 80mg a day, so doctor has to get special dispensation; without it i'm always choking and cannot eat at all
      Raising Bed Position Not Working
      helped a little, but caused major arthritis flare ups and couldn't get a good night's sleep
      Reglan Working / Worked
      this did work for many years to help nausea subside somewhat, but i became intolerant to it; also made me sleepy
      Tagamet Not Working
      worked at the very beginning, but not strong enough now (almost two decades later)
      Amitiza Not Working
      this stuff was horrible gave me horrific stomach pains and made me sick
      Librax Working / Worked
      before this i used to be doubled over in sharp stomach pain after eating can make you sleepy though
    • Open MCTD

      diagnosed with polyarthritis in 1990, but started with symptoms when I was 10; then docs added MCTD diagnosis; "lupus" classification seems to be on-again/off-again; MCTD has also attacked my GI system in a huge way, as well as heart and lungs

    • Open Raynaud's Disease

      just suffering with this stupid Raynaud's -- i wear lots of layers and gloves to get through each day -- i've got it really bad and not a day goes by that i don't have blue/purple fingers

      Treatments

      Norvasc Somewhat Helpful
      this actually helped very much but lowered my blood pressure so much that i had fainting spells
    • Open Dementia

      I am the sole caregiver for my elderly mom, who had brain surgery about a decade ago and on top of that has vascular dementia. It comes and goes. When she has her "episodes," it's like being in an altered state. It's really rough on me, but so hard for her, too. Double breaks my heart and very tiring to be on this rollercoaster with no support from any family or friends who leave it all to me alone.

      Treatments

      Exelon Not Working
      My mom woke up in screaming night terrors and shaking (like mini seizures), so stopped it.
  • Friends


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