So, I had my gastro appointment and left frustrated. She says that I have an infection and is going to put me on Cipro and Flagyl! :( I told her about my ER visit about 6 weeks ago so she has her assistant get the info from that hospital. She asks me did they give you anti-biotics, I answered NO. When she got the notes she sees that I had an increased white count, but nothing was done about it.
I'm annoyed, frustrated, drained and I want to give up. This whole time she had told me I had crohn's and that the diverticulum came back after my surgery. So, I call today to find out what I have. Her assistant calls back and says that I don't have crohn's or colitis, she said I have diverticulitis, gastritis and diversion colitis. Are you freakin kidding me?! She claims I don't have symptoms for crohn's or UC!!! The only symptom I don't have is weight loss. What do I do, who am I suppose to go to??????
I feel so lost and alone and I want to curl up in a ball and just die! There is no way this is diversion colitis, I have been having all of this pain since right after the colostomy was reversed. Which was 5-6 months after my resection. I have fatigue, nausea (sometimes vomiting), joint pain/swelling, diarrhea (sometimes bloody), sometimes constipation, depression, weight gain, hair loss, etc. I need advice.....someone help!






I wish I had answers for you, Switching Docs cannot hurt at this point. So many go into the surgery without knowing the possible outcomes. Few try to avoid the surgery. It is oversold by the Docs.
Best Wishes,
John
4strikes
There is a women here that had a colosomy as a first choice many years ago and she sworn by her decision. She had to fight to get it. You need help that is for sure. Could you fly to Connecticut to see my Doc. There is also a really great surgeon that is in his group. It is hard being that far away from home. I don't have much else. I am sorry.
John
4strikes
Hi Georgiana,
I could email my Doc with your journal entry and ask him to look at it as an interesting case? He is a researcher so they love interesting cases. He may not provide you any advise though.
John
4strikes