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georgiana7 
12:15am, August 5, 2009
So, my last colonoscopy now shows that the diverticulum have returned, I now have Crohn's and Colitis and I had inflammation. I can't believe that this all has returned less than 2 years after my colon re-section. This is just mind blowing. I continue to have so much pain, they have also found a second hernia which I will need to have them both repaired if I could just lose some weight. I'm frustrated with these diseases and with my doctors. I wonder if maybe they are missing something else. I can't have a normal life or function like a person my age should be able to. I saw my pain management doctor a week ago and he is referring me to a rheumotologist because I am having swelling in my hands and feet and I have a lot of joint pain. He is thinking that I have IBD or Crohn's arthritis. I couldn't believe that this was even possible. How do I find an excellent doctor, I need relief from all of these problems and pain. I have no one to ask. So, whomever reads this, maybe you can offer some advise. For now, I am trying to stay positive, but as time goes on it gets harder and harder to do so....
Comments
Hi Georgiana,
You have been away for a while. I was hoping that you forgot about this disease. You should try to get on the drug Asacol. Since you have been diagnosed with IBD and Crohn's, you can leagally be prescribe the drug. It is the best hope drug there is for an over- active colon immune system. It is also called Mesalazine. The drug is not well absorbed and is kinda like calamine lotion for your colon. There are many similaries in my mind between poison ivy and DD. Poison ivy burns holes in our skin not because of the plant chemicals directly. It is because our own immune system attacks us because the plant makes our cells look like invaders.
Since you are having many symptoms of an immune system gone on high alert (arthriritis is another auto immune disease), you have nothing to lose by trying it. There are some risks, so your docs can monitor you to make sure you respond correctly to the drug.
Best Wishes,
John
4strikes
Hi John, I did stop coming on for a while and I really wish I could forget about these diseases, but no such luck. I am faced with this daily. The constant pain is a reminder. I suppose I have a lot of anger from having the surgery and then less than 2 years later I find out it all came back. I'm not comfortable with my doctors and don't know who to ask which ones are great. So, I am at the mercy of the ones I currently have. Right now they have me on Lialda. My doc told me I should notice a difference, which I don't, but she still insists that I take the crap. I just don't know what to do I guess. I will definitely look into that drug and mention to her at our next appt. Thank you for caring. :) Always, Georgiana
georgiana7
John, I am on Lialda, isn't that the same thing as Asacol? Just curious.
georgiana7