17 days till surgery
June 30, 2009 9:14am
i am in my count down mode, im very anxious to get surgery over with and hopefully start feeling normal agian. my syptoms have gotten worse and …
brokenbutterfly75
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About Me
brokenbutterfly75
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About Me
married to a wonderful man, have 2 wonderful boys, work fulltime, and was diagnosed in feb with poloystotic fibrous dysplacia of the skull and in may with chiari malformation. im very interesteed in learning from others dealing with either of these, it has defiantly turned my world upside down and change my everyday life.
married to a wonderful man, have 2 wonderful boys, work fulltime, and was diagnosed in feb with poloystotic fibrous dysplacia of the skull and in may with chiari malformation. im very interesteed in learning from others dealing with either of these, it has defiantly turned my world upside down and change my everyday life.
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what to do???
May 12, 2009 9:00am
today is one of my not so great days.
i got a full nites sleep but im just exahusted, i cant stop stressing over the fibrous dysplasia and the chiair …
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Support Groups
Close Financial Challenges
my husband got hurt lost jobs, and financialy we hit rock bottom i was working 2 jobs he was trying to work one driving a truck getting no sleep and we still werent making it, and it started to ruin our marriage and lives til we found care one credit
Treatments
- Budgeting Working / Worked
- Credit Counseling Working / Worked
- this has been a huge help, i wa spaying a fortune every month and still over bal and late now for the over 4500.00 we pay 182.00 a month and the credit cards cut out the fees and lowered our intrest rate and now they report to the credit bureas differant so it dont hurt us as bad i highly recommend careone
- Cut Up Credit Cards Working / Worked
Close Fibrous Dysplasia
hi,im a 34yr old female, married to a great man and have 2 wonderful boys,and went to the er for a severe headache that was coming on suddent and then would go away, ended up with a diagnosis of polyostic fibrous dysplasia of the skull,only case they had ever seen ive started going to uva for treatment and am still sorting thru doctors, i have the birth mark that puts me at more risk for the mccune albright version.. and really just need to talk with others that understand what im dealing with.
Open Arnold-Chiari Malformation
recently diadnosed with my 2nd rare disease, chiari malformation... im confused, lost , scared and totaly dont have a clue what to do, im married with 2 kids...now what.
