One year anniversary has come and gone...
June 17, 2009 11:14am
Well, the 1-year anniversary of my PE has come and gone, and to be honest, I didn't give it much thought. I guess I expected to feel especially …
erieli04
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About Me
erieli04
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About Me
I work as the Director of Marketing and Development for a local nursing agency. Born and raised in PA, lived in the Baltimore/DC area for 4 years.
I work as the Director of Marketing and Development for a local nursing agency. Born and raised in PA, lived in the Baltimore/DC area for 4 years.
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Interests
Art, music, friends, family, being outside, traveling, etc.
Art, music, friends, family, being outside, traveling, etc.
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Recent Activity
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Journal
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Just an update on my filter
February 4, 2009 8:38am
So, my IVC filter was not able to be removed. I went in for surgery and when I woke up I still had the filter. I, of course, was upset and …
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IVC Filter Removal
January 21, 2009 11:41am
So, my IVC filter comes out tomorrow morning. I am really, really nervous about having it removed. I feel sick to my stomach when I think about it. …
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Depression After PE
December 23, 2008 10:09pm
I didn't feel too depressed immediately after my PE – at that point, I was just overwhelmed with all the information that was being thrown …
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Time keeps passing...
December 18, 2008 9:31am
So, it's been almost 7 months since my PE. My INR was staying regulated for awhile, but lately its been all over the place. I've been trying …
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Hugbook
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Welcome to DS. I hope the New Year brings you many blessings. I'm here if you need to talk.
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hey there! and welcome. yes like jeb im a bit of a veteran myself by now!!! seems strange saying that!! but yes, my inbox is also always open.
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Welcome to our unfortunate little club! Feel free to write with any questions...I'm a vet at this by now...
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Photos
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Support Groups
Close Deep Vein Thrombosis (DVT)
DVT in left leg and massive bilateral PEs in late May 2008. At the time, I had been on birth control for about 6 months. Spent 5 days in the hospital and had an IVC filter placed. I'm now on Coumadin (Warfarin). I have my INR taken every two weeks and see a hematologist regularly. Blood tests showed that I have Antiphospholipid Syndrome (Lupus Anticoagulant) – but my doctor thinks it could be a false positive. Going to be tested again in June if I can be taken off Coumadin temporarily.
Treatments
- Coumadin Working / Worked
- Alternating between 10 mg and 7.5 mg. Some side effects – mainly my brain feeling "foggy" and forgetfulness. My INRs have been inconsistent as of late, fluctuating between 1.9 and 3.2 over the past month. That would be pretty good for most, but because of my APS, they want me closer to 3.
- Heparin Working / Worked
- Was on a Heparin drip for 5 days while I was in the hospital.
- Lovenox Working / Worked
- 100 mg subcutaneous injections for 7 days after my release from the hospital.
Close Pulmonary Embolism
DVT in left leg and massive bilateral PEs in late May 2008. At the time, I had been on birth control for about 6 months. Spent 5 days in the hospital and had an IVC filter placed. I'm now on Coumadin (Warfarin). I have my INR taken every two weeks and see a hematologist regularly. Blood tests showed that I have Antiphospholipid Syndrome (Lupus Anticoagulant) – but my doctor thinks it could be a false positive. Going to be tested again in June if I can be taken off Coumadin temporarily.
Treatments
Open Antiphospholipid Syndrome
DVT in left leg and bilateral PEs in late May 2008. At the time, I had been on birth control for about 6 months. Spent 5 days in the hospital and had an IVC filter placed. I'm now on Coumadin. I have my INR taken every two weeks and see a hematologist regularly. Blood tests showed that I have the Lupus Anticoagulant. Going to be tested again in June if I can be taken off Coumadin temporarily.
Treatments
- Coumadin Working / Worked
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Groups
