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JulierRae 
11:01am Thursday
Good Morning Everyone!! I am sorry I haven't written in a while. I have been feeling ill due to abdomnal pains and throwing up. I went to see the doctor yesterday and he put me on Reglan as he thinks that the cancer or the treatment is causing my bowels to be slowed down. He also gave me percaset pain medication. I was having pains yesterday so I took one before bed.
I also got back my CA-125. It was not good news, I went from 1135 to 2450. Marmee, head of Sewickley Oncology said that it is too soon to say about the Avastin/Cytoxan combo and it is not abnormal for the CA-125 to go up before it goes down. She was encouraging.
I have been feeling down because of the CA-125 test and the pain. I am glad however that the doctor seemed very confident that this Reglan will work. I take it every 8 hours.
I feel like all I do is go to the doctors. My mom is a SAINT for taking me everywhere. The Red Truck is done and I will be driving again next week if I am feeling up to it. I have an appointment with Dr Krivak and he is always good to talk to.
I see my therapist on Tuesday and it will be good to see her. I think I am feeling down and it would give me a chance to talk about it.
Thank you so much for your encouraging words. I need all of them I can get. It is hard because I was really banking on this Avastin.
I hope you all are well. I wish you all peace. I am sorry I am not myself and reading this it is a downer. Forgive me. I will let you know how Dr Krivak was tomorrow. I love you all Hugs - Julie
Comments
Good Morning Everyone!! I am sorry I haven't written in a while. I have been feeling ill due to abdomnal pains and throwing up. I went to see the doctor yesterday and he put me on Reglan as he thinks that the cancer or the treatment is causing my bowels to be slowed down. He also gave me percaset pain medication. I was having pains yesterday so I took one before bed.
I also got back my CA-125. It was not good news, I went from 1135 to 2450. Marmee, head of Sewickley Oncology said that it is too soon to say about the Avastin/Cytoxan combo and it is not abnormal for the CA-125 to go up before it goes down. She was encouraging.
I have been feeling down because of the CA-125 test and the pain. I am glad however that the doctor seemed very confident that this Reglan will work. I take it every 8 hours.
I feel like all I do is go to the doctors. My mom is a SAINT for taking me everywhere. The Red Truck is done and I will be driving again next week if I am feeling up to it. I have an appointment with Dr Krivak and he is always good to talk to.
I see my therapist on Tuesday and it will be good to see her. I think I am feeling down and it would give me a chance to talk about it.
Thank you so much for your encouraging words. I need all of them I can get. It is hard because I was really banking on this Avastin.
I hope you all are well. I wish you all peace. I am sorry I am not myself and reading this it is a downer. Forgive me. I will let you know how Dr Krivak was tomorrow. I love you all Hugs - Julie
Comments
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Dear Julie
I`m so sorry to hear that you`re still ill. Did you have both flue shots this year, possibly it is one of the strains? You`re fortunate that you have such a wonderful mother, who is helping you through all of this. Please keep me posted on what Dr. Krivak says! Lots of love and strengthm
xxLinda
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Hello Julie. I hope you feel better soon and that this is just a flu bug getting the best of you. It is great having your mom with you through all of this I am sure. Wishing you to feel better this weekend and good appointments next week. Big warm florida hugs! Beth
Good Afternoon Everybody!! I went to get my blood and unrine tested for tomorrow's office visit and Avastin treatment at Sewickley Onocology. Also I had a PCP appointment with Dr James. He was happy that the dryness behind my ears cleared up with the cream. But he did say I have to be more careful about my diet for my Cholestrol is slightly elevated. Also continue with the iron pills he prescribes. He also gave me a B-12 shot.
I got home and had an early lunch becasue I was going to take a nap. I was sooo tired from the beginning of the morning. The nap did help as I am feeling much better now. I made a pot of coffee for Bob and I when he gets home shortly. Nick had a BUSY day. Frist School, then Extended Day, then Basketball Practice. HE wont be home until 5:40. I hope he has energy for homework.
I didn't get anything done today because of me napping. Maybe tomorrow. Tomorrow I have another busy morning. at 8:30 am the is a Mass of Intentions for me done by my Aunt Toni. She is my Grandmother's sister and a wonderful person. Then we are going to Eggs-N-That for breakfast. It is a little place but it always has cars there. We went a long time ago and it was very good. Then from there I have my office visit at 10:30 and my Avastin treatment after that. I find out my CA-125 results. I need positive vibes and prayers from you all!!! I am nervous. I really need this to be good news. My mom is coing in with me which is good. 4 ears are better than 2 and all the stuff.
Tonight we are having perogies. I want to eat right away as soon as nick gets home because he will probally be starved and give him time for homework.
I hope everyone is having a good Thurs. Love and Hugs to ALL- Julie
Comments
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super big comforting hugs! Hi Julie! :) i said a prayer for you angel. :) my family and i will be with you in spirit tomorrow, and will be holding your hand. We hope and pray, that everything goes very well, and that your test results come back with great results. :) please keep us updated. :) We're wishing you the very best angel. :) We hope you, Bob, and Nick enjoy a nice dinner, and nice relaxing, and peaceful evening and night. :) my family and i are sending our very best well wishes, and positive healing energy, and sending positive vibes. :) good luck tomorrow. :)
We send our love, warm friendship wishes, caring thoughts, many blessings, and lots of super big happy friendship hugs, from CT. :)
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Loads of the most positive vibes flying across the pond to you.. xxxxxx
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Dear Julie
I`m sending lots of good luck and prayers that your CA levels have decreased and that your Avastin is doing its job :) Lots of love, as always,
xxLinda
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I am praying for you....hang in there!!!!! Big comforting hugs for you and your family!!!
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Maybe the B12 shot will help with the tiredness? Prayers for you for tomorrow! Please keep up posted. Hope everything works out just fine! Get some rest. Take care!
Past Entries
Goal Updated
Dear Julie! You hang in there . . . joy will come in the morning! You are in hearts and prayers. And please, do not get upset by the CA125. My mother's fluctuates all the time, and yet the C.A.T.scans are clear. Give the new chemo time. And I'm sure you will have a great report soon. I recall Linda telling us her count was 7000! And then hers got down to like 12 or something. Just keep singing that song . . . what goes up has to come down! And remember you are in God's hands every step of the battle. He will care for you!
Love,
XOX
Susan Wales
susanwales
I hope the Reglan helps you - it's been great for my husband. As for the CA-125, I agree that it can fluctuate a lot and not necessarily mean anything. All the best to you. I'm glad you have a therapist to talk to; it makes a world of difference.
lidlone
Julie, Hang in there...your doctors will get to the bottom of this...let them do all the worrying and you just rest and relax as much as you can. I am sure your mom doesn't mind taking you to your appointments at all!!! I hope your pain med works well for you too.....not fun to be in pain....it wears at your emotions too...try to stay calm and centered.....talk it out with your therapist...that will help a lot......you are in my prayers and big, big comforting hugs for you!!!! Stay strong!!!
BlueButterfly55
Hi Julie,
I'm so sorry to hear that you're having pain and feeling poorly - hopefully the doctors will get the meds right and figure out what's causing the pain and discomfort. Here's hoping for a good appt with Dr Krivak, you seem to really trust him and that's always a good thing. Seeing your therapist will be a comfort, too. I'm saying lots of prayers that the Avastin kicks in soon and and your numbers improve - it sounds like, from the other people on DS, that the CA125 can fluctuate before it really begins to drop, so have faith! Many hugs and prayers to you, and to your wonderful family who take such good care of you! xxxx LuEllen
milehighgirl
Hi Julie,
Sorry to hear you've been unwell and in pain. You are so lucky to have such a good Mom to take care of you. You're in my prayers and I hope your app with Dr Krivak will help you and that the therapist will be a comfort to you.
God bless you, hugs and love, Gill xx
MaRhianna
JULIE YOU ARE A FRIEND AND I CARE FOR YOU,GO ON BELIEVING FOR A MIRACLE FOR TOTAL HEALING,KEEP ON PRAYING THE WORD OVER YOUR BODY,HEAVENLY FATHER ,BE GRACIOUS TO JULIE GIVE HER STRENGTH AND COURAGE TO TRUST YOU,PEACE,AND COMFORT HER AS SHE GOES THROUGH SUCH TIME,BY THE STRIPES OF JESUS CHRIST,HEAL HER BODY,IN JESUS CHRIST ,NAME I PRAY,LOVE LUCY..
JOYHOLY
Julie your strength is an Inspiration.
Winslet
Thanks for all your encouraging words. I am going to my Dr Krivak appointment now and hope to have some news for you after that. Thanks for all your prayers and love. I hope you know all of you mean so much to me. The Reglan seems to be doing its job. No pains yesterday or today. Love and Hugs - Julie
JulierRae
Praying for you and hoping that you are feeling better soon! Huge Hugs!
Kahlua13
Dear Julie
Please remember that all of us are entitled to our moments of despair, due to the fact that we`ve been battling this beast far too long. Hopefully there will be a "light at the end of the tunnel" for all of us. I continue to pray that you`ll get better soon! Lots of love and strength, as always.
xxLinda
Lindaheff
super big comforting hugs! Hi Julie, and family! :) You all are in our thoughts and prayers, and close within our hearts, every day. :) We're thinking of you all, and wishing you all comfort, healing, and peace. :) i'm so very sorry you haven't been feeling well. we hope and pray, that you feel much better, very soon. :) it's ok angel, your journal is your sanctuary for your thoughts, feelings, and emotions to flow freely. :) always feel free to write. :) We'll always be here for you and your family. :) Take care angel, rest well. :) We send our love, warm friendship wishes, caring thoughts, many blessings, and lots of super big happy friendship hugs, from CT. :) Enjoy the games tomorrow. :)
Chris1981