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  • About Me

    Image of floro1101

    floro1101

    Female, 39
    Camarillo, CA, USA
    Member since June 9, 2008

    • About Me

      I am a 38 year old female, married with 2 sons. I am blessed to say that I am a stay at home mom. Worked for the government for 13 years as an Accountant and decided to resign after the birth of my last child. I take each day as it comes and keep a positive attitude (though at times with MG can be difficult to do).

      I am a 38 year old female, married with 2 sons. I am blessed to say that I am a stay at home mom. Worked for the government for 13 years as an Accountant and decided to resign after the birth of my last child. I take each day as it comes and keep a positive attitude (though at times with MG can be difficult to do).

  • Recent Activity

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  • Journal

    • Journal Entry for October 18, 2009

      Mood October 18, 2009 2:45am

      It has been awhile since I've been on this site.  I am happy to say that my MG has been under control for the past 10 months.  I …
    • Journal Entry for February 24, 2009

      Mood February 24, 2009 1:12pm

      Still having a tough time tapering off the Prednisone.  Gotta take the good with the bad I guess.  One day at a time..........
    • Hanging in there

      Mood January 21, 2009 3:55pm

      Still trying to get off the Prednisone.  Kinda scared that I will not be able to function without it. 
    • Journal Entry for December 1, 2008

      Mood December 1, 2008 12:43am

      Well still on Prednisone.  Can't seem to get my MG under control without it.  I feel great, but I do not want to be on Prednisone at …
    • Feeling good!

      Mood October 24, 2008 10:21am

      For the past 2 weeks, I have been feeling pretty good.  God is good!  I love that I have energy and my eye sight has been …

    Read Journal

  • Hugbook

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    • Good Luck

      From SaraG January 22

      I am glad to hear that you are well enough to go off the Prednisone. I'm sure your dr feels you are ready. Hope that things go well for you. Keep me posted. Sara

    • High Five

      From SaraG October 24, 2008

      So glad to hear that things are going well for you. I hope it continues. I'm hanging in there, too. Take care. Sara

    • I’m With You

      From SaraG October 10, 2008

      I'm hanging in there. How about you? Hope you have a good weekend. Keep the faith!!!! Sara

    • Hug

      From suigeneris October 10, 2008

      thanx for the message, really appreciate it. take care.

    • I’m With You

      From SaraG September 22, 2008

      So glad that you are doing ok. I have been so busy, I hardly have time to think!!!! Hope it settles down soon. Sara

    Read Hugbook

  • Goals

  • Support Groups

    • Close Myasthenia Gravis

      Acout 3 months ago I was diagnosed with MG. I started with the droopy eye lid and felt tired all the time. My family doctor referred me to an Opthamologist for the eye problem. She then referred me to a Neurologist. I was finally told that I had Ocular MG. I have been on Mestinon for a while now and does not seem to be working. Tomorrow I will be starting IVIG for 5 days at a high dose. Neurologist hopes this treatment will put me in remission. After reading some of the blogs, sounds like a number of people have not had much success with this treatment. I am afraid and really do not know what to expect. I am grateful to all who have shared their story.

      Treatments

      Prednisone Working / Worked
      Gave me relief. Worst side effect is insomia.
      Hemorrhoidectomy Too Soon to Tell
      had surgery yesterday, feeling some discomfort. Yesterday after anethesia wore off, I did have alot of pain. Will keep you up to date!
  • Friends


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