Summer's end
September 21, 2009 1:45pm
My dear DS friends well summer has come to an end. On 9-27-09 it will have been one year since we lost our dear Lorelei to SMA. You who have been …
elainebr
10:45pm, April 1, 2009
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About Me
elainebr
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About Me
I lost my grand daughter at 7 months to spinal muscular atrophy. Her name was Lorelei and I love her with all my heart.
I lost my grand daughter at 7 months to spinal muscular atrophy. Her name was Lorelei and I love her with all my heart.
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Journal
This entry is private
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This entry is private
This entry is private
This entry is private
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Hugbook
Rainbow
thanks for your conments, thinking of you sweetie, love bluebird xo
Moment of Peace
thanks for the loving, and caring words, i dont know why, lately i have been struggling, yesterday, i went to the doctors office, hoping for some sleeping medication, after waiting for 2 hours, i walked out, ther was still another 30-45 minute wait, thats just not fair, 2 hours,? i made the appointment a week ago, i was so mad, i need a new doctor,.. thanks again for the love,. your friend, Dave
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Hug
Hi there, i read some of your posts, my name is Dave, pleased to meet you, ive been havin a hard time too!! i wanna think, "everything" will be ok,.. but not so easy,... you have found, at the very least, an ammount of peace, and thats gotta be really good, i think,.. your friend, Dave
Hug
HUGS MY FRIEND
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Hug
Hello my friend, just wanted to say hi and let you know that I am doing good and hope that you have a good Thanksgiving.
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Support Groups
Close Spinal Muscular Atrophy (SMA)
My grand daughter was DX with spinal muscular at 3 months and passed away on 9-27-08.
Close Depression Supporters
Lost my only grand daughter September 2008. Can not seem to recover lost hope not pulling out of this. Living becoming hard
