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jmcfadden
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I see that you have changed your mood to horrrible :(. I hope that you feel better very soon!
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I was also dx with MG this past year, and I do have Lupus (SLE) and Sjogrens too. I have been receiving 50 grams of IVIg once weekly for the past year, and its hard to tell if it helps me. I do not have any side effects at all, and I think I get a bit of energy boost the day after, I was wondering what you notice and how much and often you get the infusions. I have not found anyone else yet that receives them one day weekly on going like I do. My legs too are shot, I almost cant do stairs anymore, its very painful and difficult and I am falling quite a bit, thanks for your input and hang in there , its nice to know we are all not alone. I hope you have a wonderful day! Mary
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I hope that you are doing well!!!
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I know MG is hard to live with. hang in there.
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Close Myasthenia Gravis
Treatments
- Azathioprine Not Working
- med. made me really sic. cause flu like side affects
- IVIG Considering
- couldnt really tell any difference






