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  • Image of djbds1

    About Me

    I am 26...currently a student at American River (city) Colege in Sacramento...music major. For the past 12 years, I worked in the restaurant industry, graduated from the Culinary Institute of America in 2002, and did private catering for a number of years. As a result of being EXTREMELY overworked on a job in 2004, I developed two severe hernias (right...then 3 months later, left). They were both repaired, however, I developed inguinal neuropathy (in the groin) as a result. The three inguinal nerves; ilio-inguinal, ilio-hypogatric, and genitofemoral. In early 2006, I underwent the surgical removal of those nerves called an inguinal neurectomy. That procedure was meant to make my condition improve, however; my condition got worse...A LOT WORSE. Post-traummatic/post-surgical neuropathy is my current diagnosis. The symptoms are pain signals in the groin, a bit of my right lower back just out to the side/hip, front of the hips, front and inner right thigh, inner left thigh, lower abdominals, and genitals...the pain; shooting, stabbing, burning, radiating, tingling, wrenching, pricking, scraping...and so on. Since 2006, I have undergone 5 more MAJOR operations in attempts to corect and/or improve the condition. I have underwent bi-lateral ilio-inguinal nerve blocks, taken around 35-40 different meds (out of which, about 4 are useful...Lyrica, Methadone, Wellbutrin, Ritalin...all for PAIN), TENS, phys therapy, bio-feedback, MRI and radio-imaging, and Spinal Cord Stimulation. I had my first stimulator implant performed in 2007...rather than having the leads implanted into the spinal area (epidural space), they were implanted DIRECTLY into my inguinal region...this is called Peripheral Nerve Stimulation or PNS. My first implant was done INCORRECTLY, and subsequently, I developed a staff infection 6 weeks later...the entire unit was removed and I ended up packing a 6 inch wide incision with a giant inner pocket...with gauze twice a day for three months until it closed on its own. I was confident in my current pain specialist to perform a second implant. It was successful and has been useful in my pain treatment ever since. My career as a chef has been put on a serious hold as the medical condition has severely disabled me. I do teach cooking classes as a monthly guest chef at Whole Foods Market in Sacramento...that gives me a small amount of pleasure. My girlfriend Ami, my father, my mother, and my close friends have been there every step of the way. I cannot explain enough how much I owe them for supporting me, HOWEVER, I feel guilty complaining to them about the SAME stuff all the time...and therefore...I am here for support from all of you!! Thank you all for being here to help.

    Interests

    Things I can still do: Cooking, DJ'ing (not while standing though), music production, school (yes, I said school is an interest!!), loving my girl, hanging with friends (even though I do not have many anymore...some people just dont want to be your friend when you are in a time of need)... Things I wish I could still do: Skiing, sailing, hiking, biking, basketball, soccer, football, running, DJ'ing (an entire set while standing...even all night!!), long day at the beach, cooking in a kitchen all day every day, walking for more than 30 minutes, etc...

  • Recent Activity

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  • Journal

    • Update...PLEASE READ THIS!!!

      Mood August 9, 2008 3:00pm

      Well, regarding Ami and my baby to be born...my pops knows...my mom knows...Ami's mom knows, HOWEVER...she has not told her "dad".

      He …

    • Little Dave...

      Mood August 3, 2008 2:04pm

      I just found out some amazing news!!

       

      My better half is 8 weeks pregnant!! So I guess that makes her my better 2/3rds??

       

      I am at a loss for …

    • Month from HELL...

      Mood June 23, 2008 2:41pm

      OK...so I have decided that putting any hope in my pain going away for a weekend is gone...

       

      I went camping this past weekend...it started out …

    • Feeling so-so...

      Mood June 1, 2008 2:00pm

      Life is an amazing thing...an amazing gift.

       

      Pain is an amazing thing...an amazing curse.

       

      Receiving gifts on Christmas morning is an amazing …

    Read Journal

  • Hugbook

    Give djbds1 a hug

    • Prayer

      From LostStranger111 Monday

      I am keeping you in my prayers! you are going through so very much right now.. and all on top of your horrific pain. Stay strong my young friend! Love and gentle hugs along with constant prayers ~Debbie

    • Hug

      From LostStranger111 Saturday

      hope things are working out with you and your gf ... Hugs~Debbie

    • High Five

      From Anastacia August 4

      Congratulations on yr great news!! Wonderful!!!!!! xx

    • Hug

      From madsy August 3

      You will be a great Dad!! This should be happy news if it's precieved different don't let that get in the way of the miracle of life you have been blesssed with. Take care, Madsy

    • Hug

      From dolita July 12

      sorry you are feeling bad. HUGZ!

    Read Hugbook

  • Support Groups

    • Close Painful Intercourse

      In late 2004, I suffered two consecutive inguinal hernias; right followed by left. Consecutive operations (Jan '05/April '05) left me with a unusually painful recovery with neuralgia. In Feb '06, I had a neurectomy (nerve removal) in my groin...made the pain 10x worse!! Nowadays...after countless treatments, I experience EXTREME pain during intercourse...the type that usually deters me from even desiring being intimate with the person I LOVE. I cannot stand NOT being able to engage in intimacy!

      Treatments

      Physical Therapy Somewhat Helpful
      Phys Therapy has either been TOO hard on me physically causing extreme pain flares or it has not been frequent or intense enough!! I cannot find a middle ground OR even a good therapist.
    • Close Chronic Pain

      A late 2004 work injury led me resulted in 4 years of horrible surgery after surgery...8 total...post-traummatic/post-surgical chronic inguinal neuropathy

      Treatments

      Cymbalta Not Working
      NO
      Flexeril Not Working
      Heat Working / Worked
      Worked
      Hydrocodone Working / Worked
      LIMITED
      Lidoderm Working / Worked
      Somewhat
      Lyrica Working / Worked
      GREAT MEDS!!
      Marijuana Working / Worked
      VERY LIMITED RESULTS
      Meditation Working / Worked
      HAS POTENTIAL TO BE GREAT!!!
      Methadone Working / Worked
      GREAT MED
      Morphine Somewhat Helpful
      NOT GOOD
      Naproxen Not Working
      Nerve Blocks Not Working
      COMPLETELY WORTHLESS FOR ME
      Neurontin Working / Worked
      LYRICA TOOK OVER
      Oxycodone Working / Worked
      LIMITED
      Physical Therapy Working / Worked
      STARTS PAIN FLARES EVERYTIME
      TENS Somewhat Helpful
      LIMITED
    • Open Heroin Addiction & Recovery

      Recovering Heroin Addict...clean since 2002. Chronic pain sufferer of 3 years...requiring the use of strong narcotic medications...presenting a huge dilemma...

      Treatments

      Narcotics Anonymous (NA) Working / Worked
      Residential Treatment Center Working / Worked
      Suboxone Working / Worked
      Methadone Working / Worked
    • Open Shingles

      My father suffered a severe dog bite about 2 weeks ago...punctured his right hand. About 4 days later, he started getting minimal itching in the right armpit. About one week later, the itching became severe and spread through the right arm, the right side of the chest, and into the back. Soon after, he noticed small red dots that have now developed into full blown Shingles. He was MISDIAGNOSED a week ago before getting a confirmation 2 days later. HELP US!!!

      Treatments

      Valtrex Too Soon to Tell
      Amoxicillin Not Working
      Two first days of regiment accelerated the OUTBREAK...everything got worse. My doctors P.A. prescribed it for the diagnosistreatment of a DOG BITE...she specifically said the diagnosis was NOT Shingles. TWO DAYS LATER I returned and was examined by the DOCTOR who IMMEDIATELY diagnosed the condition as SHINGLES and said STOP TAKING THE AUGMENTIN!!! NOW...TWO DAYS after THAT...I was examined by the DOCTOR AGAIN!!! This time around...he says...you HAVE to start the AUGMENTIN AGAIN!!
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