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  • Hug

    purplecat0172 (05/07/09)

    How is your sister doing?


  • Prayer

    TAS1969 (05/05/09)

    THANK YOU. MY PRAYERS ARE WITH YOU AND YOUR SISTER. WE ARE ALL DOING MUCH BETTER NOW. YOU JUST STAY STRONG AND POSITIVE. GOD WILL PROVIDE THE REST. TAKE CARE AND REST TOO. LOVE TAS


  • Hug

    Willemina (05/04/09)

    Hi Jan, The swallowing problems were most uncomfortable but the Marshall Protocol researchers told me it was part of normal immunopathology and it would improve with the treatment. It did. I didn't do anything special - just kept to the usual diet restrictions, the antibiotics and the angiotensin receptor 2 blocker. I haven't had the problem for about 6 months. Right now I just have a burning, itchy patch on my back, a stuffy nose all the time (Dr can't find a cause for that), an inflamed scar, a neck that gets tired quickly, various cramps, a 'frog' in the throat and general tiredness. It sounds like quite a list but all are pretty tame. I can work, so it's obviously not bad but when I get home I am exhausted. I hope your sister will soon be able to swallow and get rid of all the tubes. You two have had such a long and difficult run. Take care. Willemina


  • Prayer

    purplecat0172 (05/01/09)

    I'm sorry to hear about your sister. My brother went with MMS (Miracle Mineral Supplement) and ended up not having to have the lung transplant. Please look into that for your sister. Take care and be blessed. Keep me informed. It is good to hear from you.


  • Rainbow

    Willemina (04/27/09)

    Hi Jan. That swallowing problem must be awful. I had something similar but less severe for quite a while. Food would get halfway down the back of my throat and then suddenlt, I wouldn't be able to swallow. It'd make me gag till I could get rid of it and it'd be very uncomforatble for a while but it never got to the stage that I couldn't eat. I'm still overweight! How are you coping with all this? Hope the lumbar puncture results lead to some positive treatment. Love, Willemina


  • Little Love

    Willemina (04/26/09)

    Hello Jan, So nice to hear from you again. It must have been great to see your sister up for your nephew's wedding. How does the neurological sarc affect your sister? I get 'flutters' in the cheeks when I relax. They come suddenly, last about 3 or 4 seconds and then disappear for a few days or a week. I'm advised this is a normal part of immunopatholy but then I only have sarcoidosis of the lungs as far as I know. I'm gradually decreasing my MP medication now as my body's immune system is starting to kick in by itself again. I wish the same were happening to your sister. Take care. My prayers are with you always. Willemina


  • Little Love

    TAS1969 (03/28/09)

    JUST WANTED TO SAY HELLO. HOW ARE YOU AND YOUR SISTER FEELING? PRAY ALL IS WELL. HAVE A WONDERFUL WEEKEND AND WEEK. TAKE CARE, STAY POSITIVE. TAS


  • Hug

    purplecat0172 (03/18/09)

    Thank you. I've been away for a little while so I'm just getting this message. :)


  • Rainbow

    Willemina (03/09/09)

    Hello Jan, Your sister seems to be having such a terrible time. I hope she improves at the Cleveland Clinic. It's still such a mystery disease. Take care. I will keep praying for you both. Love, Willemina


  • Rainbow

    SoftFlower (03/03/09)

    Good morning to you Jan in Louisville, KY! I hope your feeling well and having a nice morning. Is so cold here, 25f with bright clear skies and blowing snow. What is your weather? I hope your have a very nice day, Love you lots, Holly

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Total Hugs


28 Hugs

7 Prayers

6 Rainbows

6 Flowers

4 Rays of Sunshine

2 Little Loves

2 Presents

1 Thumbs Up

1 Good Luck

1 Moment of Peace

1 I'm With You

4 Holiday Hugs
Total received
63 Hugs
Total given
226 Hugs
Spread some love!

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