What a weekend!!
September 22, 2009 6:14pm
What a weekend we had as my hubby started with a few twinges and pains in his chest Firday night which he just blew off as indigestion. It came and …
melsrest
12:37pm, August 4, 2009
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About Me
melsrest
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Recent Activity
October 26
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melsrest gave ChrissyMatt1 superhero status 8:02pm
you're my hero right now as a hug is the one thing that does help. I wish my family understood that simple…
October 25
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melsrest wrote a discussion post in the Crohn's Disease & Ulcerative Colitis support group: Please help me off the roller coaster 4:14pm
I was diagnosed 26 years ago with crohns and was put into remission withing 6-9 months. 3 years later…
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Journal
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Where & how is every one
September 6, 2009 11:14am
I've been out of touch and for that I am sorry. For some reason my emails stopped and I figured I better check in and see what was happening with …
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What a week!!
July 12, 2009 3:40pm
So sorry I haven't been here and around to give supoprt. I happened to get a message from my ex-stepdaughter that her mom had passed a week ago …
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Vacation Time!!!
April 21, 2009 7:18am
We are off to the beach today for 5 days of fun,relaxation and inspiration!! We will be attending a 4 day gospel concert and walking the beach. I …
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When is enough ,enough??
March 18, 2009 10:21am
As if dealing with the crohns and depession isn't bad enough I was sick Sunday an din trying to get to the bathroom so I could barf in the toilet …
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Hugbook
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Hug
I'm sorry you're having a hard time. I know how hard it is to deal with depression.
Hug
thinking good thoughts for both of you. Remember to take care of yourself so you can take care of him.
Hug
Thinking of you my friend... and sending tons of hugs and smiles your way. Take care... xxx
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Flower
I am very grateful for your friendship and caring... support from my friends here makes so much difference.
Sending warm thank you hugs back for you... take care... xxx 
Ray of Sunshine
thanks for your support
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Photos
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Support Groups
Close Crohn's Disease & Ulcerative Colitis
I was diagnosed in '84 at the age of 25. I had quite a time convincing the doctors there was something wrong. I went into remission really quick one properly medicated but then 3 years later it reared its ugly head and it has been an up and down battle ever since, I had to have a resection in 2002 but couldn't quite recover. I became more ill in 2005 and had to have a feedng tube put in.
Treatments
- Asacol Somewhat Helpful
- it only worked temporarily and then stopped being absorbed. The pill would just pass through my system whole
- Avoid Certain Foods / Chemicals Working / Worked
- I have found I do well to stay away from acidic foods. unfortunately that means little to no Italian Fresh fruits and veggies do not digest. My intestines are so inflames adn infected that I cannot break down and absorb properly.
- Azathioprine Working / Worked
- worked a bit bu tit began to effect my liver counts
- Dietary Modification Working / Worked
- feeding tube, FAA. I still experience a lot of diarrhea but at least with the Lomotil I can absorb and hold my weight a bit better
- Entocort Working / Worked
- only temporarily
- Lomotil Working / Worked
- makes life a bit tolerable so I can go out a little
- Methotrexate Not Working
- did not help
- Prednisone Working / Worked
- worked great in the beginning but the doctors did not monitor the effects on my bones and I fell and damaged one leg. Over the years now it does not have the same great effect it had in the beginning
- Probiotics Too Soon to Tell
- Remicade Working / Worked
- worked somewhat well in the beginning bu tit would not hold as long as the doctors said it should
- Surgery Somewhat Helpful
- the resection helped to stop the vomiting as they took out what they considered the worst parts that may have been causing the blockages but I didn't get better. I was still not able to go back to work and now I've ended up on disability since I cannot get past teh fatigue and bathroom
- Humira Working / Worked
- It is making life a little more tolerable but I still cant work
Close Loneliness
I have battled with loneliness most of my life. I thought I had pretty well made it through and was doing better until I was hit with a chronic disease that took me out of the work force and even out of church services and so there is little to no contact with anyone.
Open Financial Challenges
I have struggled for years,31 to be exact, with money and making ends meet but have found lots of ways to stretch money and make ends meet so I would be glad to offer our experiences to anyone who may need help. I know how scary it is when there is not enough money to get through the week, especially when you have children. My first husband expected me to feed 5 of us on 10 to 20 a week. I bought a budgeting book but learned to write down EVERY penny you spend to see where your money is going.
Treatments
- Budgeting Working / Worked
- I went to a conference to supposedly get a job doing vending machines and walked out with a new way of setting up our budget. It has taken us from living week to week to having money in the bank for vacations and yearly property taxes adn even right now Christmas monies,
- Debt Consolidation Working / Worked
- We were able to take alot of our debt an dput it on 0% credit cards and even though I know many financial counselors will tell you not to do this we were able to do this for several years by flipping cards until we had our debt paid off, We were even able to purchase my husbands car with a credit card check,escaping the large percent fees you usually get caught with but you MUST pay more than the minimum.
Open Depression
I have battled with depression for over 35 years on and off. Due to some mild brain damage due to viral encephalitis at the age of 2 1/2 I have a difficult time staying on as even keel. High highs and very low lows!
Treatments
- Cymbalta Working / Worked
- I worked WONDERFUL in treating the depression. There was no fatigue and I was able to function like I hadn't been able to in years!! No need for naps and I was actually able to attend some church services which really added to my feeling better. Unfortunately I have severe crohns and it attacked my liver counts so I had to go off it.
- Lexapro Somewhat Helpful
- I helped a bit but had fatigue and couldn't function
- Zoloft Somewhat Helpful
- It helps on and off. It causes a bit of fatigue and even helped to slow down the diarrhea from my crohns
