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DanielleF 
The kids go back to school on August 10th, so we have been busy getting uniforms and stuff for school. I am really looking forward to my freedom again! Last year, I worked a lot at my youngest childs school, but this year I plan on taking it easy. If I work, it will only be 1-2 times a week. I really need more time to do my "wife" duties around the house, but sometimes I just don't want to clean and wash clothes! I was having a real problem with fatigue, but I started B-12 shots, and I think they are already helping. I guess there goes my excuse for not cleaning or washing! I use to be a clean freak, but since IC, I have really relaxed about the house. I was forced to accept the fact that my house does not always have to be perfect, and I realized I do have 3 kids and a husband who all need to learn to be a little more responsible. My plan when school starts is to go back to the gym. I use to go everyday after they went to school, so if all goes well, I will start working on ME again. I am worth the time and effort! Thank God, I finally feel good enough to do what I want again.
I did order my Elmiron from Canada, and it was only $149 compared to $275 in the US. I am now taking it like I am suppose to- 3x a day. I am still feeling good, but when I eat what I shouldn't I can feel a little spasm going on. It is nothing like it use to be, but I know I overdid it with whatever I ate. It is so hard to give up so many things you enjoy eating. I still eat them just not as often. As long as I can tolerate it, I will eat it! oh well, good night and sweet dreams everyone! Love and hugs to all!!
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I took the kids shopping today for clothes. Both of my boys needed jeans and shorts for the summer. My oldest son likes to skateboard, so he wears jeans everyday. I don't know how he does it. It is so hot outside. Last week my husband finished closing in our garage, he made a game room out of it. We ordered a pool table and an air hockey table for the kids. The neighbors are thrilled. A group of friends came over the last two weekends to hang out. I really like it when everyone is here. I am still afraid to drink alachol. Last time I drank, I had a bad flare for 2 weeks. The buzz I got from my drinks was not worth that price!LOL. We still had fun eating and talking.
I wanted to let everyone know I am still doing good. I go to the doctor on Wednesday for another Elmiron instill. I do believe they are helping me. I tried not to take it for two days, and the pain came back. I am one of the few people on this site who has seen results from Elmiron, but I really think it is helping. I do think the cost of it sucks! If it were more affordable, I would take it 3x a day. I only take it once along with other supplements because it cost too much. It is only a matter of time until I go back to work for health insurance. Right now we spend over $750 a month on medicine. This does not include the Elmiron. I am thinking about trying to buy it from a Canadian pharmacy.
I hope everyone has a good weekend!
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I am really happy to hear you are doing better on elmiron instillations, I didn't think the DMSO did that much for me, so I won't continue them. I love the idea of a game garage, I am sure your kids will love it and be the coolest place to hang out with their friends! take care!
I am writing to let everyone know I am doing much better. My new doctor is really helping me a lot. Today was my second instill with the Elmiron. I believe I am finally on the right meds for my IC. The Atarax and the Urispas are making an amazing difference. I will continue to take the Elmiron (only 1x a day) because my doctor thinks it helps. I am also taking Bladder Q 2x a day to supplement the Elmiron. It is much cheaper and it is suppose to do the same thing. I have been drinking DanActive to strengthen the immune system for about 10 days now. Girls from London highly recommend it, so I decided to give it a try. IC is also said to affect the immune system, so maybe it can help in some way. Who knows what will truly make us feel better, but I'll give anything a try!! Take care everyone! Have a great week!
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Can you tell me what Urispas is and where you can find Bladder Q. I would like to know of any medicines that may work, as I've tried a few with no results. Thanks, Deborah
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Bladder Q is a supplement you can buy on line. I no longer take it. I now take the two main ingredients in Bladder Q seperately. They are Quercetin with Bromelain(2 per day- 1600 mg.) and L-Arginine(1.5 per day-1500mg.) Urispas is an anticholinergic agent used to treat bladder or bowel spasms. My doctor told me it is a pain pill for the bladder. The Atarax is an antihistamine used to treat anxiety, to relieve itching caused by allergic conditions, and to cause drowsiness. I take it because I believe for me there is a conection between my IC and severe allergies. I only take 1/2 of a 25mg. pill at night(about 7pm if going to bed at 9 or 10pm) I found if I took it too late I was still tired in the morning. I find I do better on just 1/2 of my dose. It relaxes the muscles in the bladder, and it helps you to sleep at night. I take the Atarax everyday, but I only take the Urispas as needed. Maybe 1-2 times per week. Things are much better for me now. I did start taking the Elmiron 2x a day. I am not sure if you can take the Atarax while pregnant are not, but it is something worth looking into. These medications have made a HUGE difference for me. Good Luck! Hugs to all!
Past Entries
| April 2007 |
Thursday, 4/19
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Tuesday, 4/17
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March 2007 |
Monday, 3/19
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When you go back to the gym start slow and easy IC know when we over do it.
I have an appointment Friday you start a water arobics class. Regular exercise cause too much strain on my over loaded joints.They charge on a sliding scale, so I am praying I will be able to afford this.I don't want to have gastric bypass I want to lose this weight on my own..So we can incourage one another.
JOY
Madamejoy
are the b-12 shots making u eat alot?? i have already gained some weight from not smoking and stopping pain pills, but i need some energy. have a great day, michelle
micholah