Fall already???
September 5, 2008 7:03pm
Seems like I missed most of the summer. Spent the last few weeks babysitting my two Grandkids. Also getting over a major colitis flare that peaked 2 …
Progress
65 %
braewynn
-
About Me
braewynn
-
About Me
Hi.I'm a Mother of 3 and a Grandmother of 2, my family is the light in my life! .I have my own antiques business in an antique mall so I only have to work 2 days a month. Sometimes even that is hard. I am looking forward to connecting with others in my situation!
Hi.I'm a Mother of 3 and a Grandmother of 2, my family is the light in my life! .I have my own antiques business in an antique mall so I only have to work 2 days a month. Sometimes even that is hard. I am looking forward to connecting with others in my situation!
-
Interests
I love reading and herb gardening. Science fiction and antiques. My collections vary with the wind, LOL.
I love reading and herb gardening. Science fiction and antiques. My collections vary with the wind, LOL.
-
-
Recent Activity
- Sorry, there is no activity in the My Activity feed.
-
Journal
-
-
Journal Entry for May 28, 2008
May 28, 2008 8:52pm
Having a good day today! Not much pain or fatigue and I was able to do dishes and make dinner-wohoo!
-
-
Hugbook
-
Photos
-
Advertisement -
Support Groups
Close Chronic Fatigue Syndrome
I became ill in January of 2000.I was working in retail about 70 hours a week. Total exhaustion and my Sons best friend coming down with Mono. was all it took. Within 3 weeks I was so ill my Doctor wanted to hospitalize me. Of course it took months to get diagnosed and that was only because my Dr. had a new P.A. who needed to log in extra hours.I still have my good months and my bad months and have a lot of problems related to the viruses that triggered my C.F.S. but I'm hangin in there!
Close GERD & Heartburn
This problem popped up after taking a dozen or so prescriptions for a couple of years for my Chronic Fatigue.
Treatments
- Antacids Somewhat Helpful
- Avoid Certain Foods / Chemicals Somewhat Helpful
- still working on this!
- Nexium Not Working
- made me very ill-the side effects were worse that what it was trying to cure.
- Prevacid Not Working
- side effects were bad. Worse that the g.e.r.d.
- Prilosec Working / Worked
- works if symptoms not severe. I use this every other day to keep my prescription costs down.
- Protonix Working / Worked
- This one works the best for me and gives me the most relief but is expensive. I have a $50.00 copay per prescription.
- Raising Bed Position Working / Worked
- Helps a lot but not all the time, plus I have to have it raised about 10 inches instead of 5.
- Tagamet Somewhat Helpful
Open Migraine Headaches
Started having migraines after having bouts of Epstein Barr virus and Cytomegalo virus leading to Chronic fatigue syndrome. I also have severe photophobia which often triggers them.
Treatments
- Aspirin Somewhat Helpful
- used with tylenol,motrin and caffeine to make my own migraine coctail.
- Imitrex Working / Worked
- worked but also caused heart palpitations at times.
- Midrin Working / Worked
- Worked but not always strong enough.
- Naproxen Not Working
- doesn't work for me if taken alone and can't take anything else for hours.
- Topamax Working / Worked
- This is the "Holy Grail"!Take this with any other medication and it gets rid of the migraine every time, and faster than other medication alone. *Only problem is that after about 3 year of use I developed a reaction to it where about half of the time I used it it made my arms and hands go numb and lasted about 12 hours. I still use this if the migraine is too bad, its just a trade off with the numbness.
- Tylenol Somewhat Helpful
- used in conjuction with a motrin, an asprin and a caffiene pill.- worked well but upset my stomach.
Open Mononucleosis
I became ill in Jan. of 2000.Spent months getting tests and trying different medications.Finally diagnosed with Epstein Barr(mono) and Cytomegalo viruses and then Chronic Fatigue Syndrome.The viruses really did a number on me with viral onset arthritis,migraines,photophobia,memory loss,gerd, and within the last 2 years ulcerative colitis.I had great results with the antiviral drug Valtex which is specifically for Herpes Simplex Viruses which fits both the mono. anc C.M.V.
Open Asperger Syndrome
Actually it is my 18 year old daughter that has been diagnosed with Asperger Syndrome. I would like to find out more about it and how other people deal with things that crop up.
