is this the end
November 18, 2009 9:33pm
i do not know what to say except that i have wasted my life for over 30 years. i felt it was my duty to put up with abuse, no communication, …
twinklee1
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About Me
twinklee1
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About Me
i am cool.......lol i got diagnosed at an old age. have 2 grandchildren; have an incredibly wonderful disposition.....and a very weird sense of humor. i guess it is what it is; i do not like it; but i am still me. this is an addition written on 1-19. i cannot handle this disease. i do not want it. i am not a better person for it; i do not want the card i have been dealt. i am not accepting it. period!!!!!! end of story i guess.
i am cool.......lol i got diagnosed at an old age. have 2 grandchildren; have an incredibly wonderful disposition.....and a very weird sense of humor. i guess it is what it is; i do not like it; but i am still me. this is an addition written on 1-19. i cannot handle this disease. i do not want it. i am not a better person for it; i do not want the card i have been dealt. i am not accepting it. period!!!!!! end of story i guess.
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Interests
bridge, interesting things and people. and really strange and weird things.
bridge, interesting things and people. and really strange and weird things.
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Recent Activity
Recently:
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2 hugs received, 2 hugs given, 2 journal comments, 1 journal post
Yesterday
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twinklee1 commented on kimmie42’s journal entry Journal Entry for November 21, 2009 12:49am
i am in amazement that this all turned out so well for you all. mend your body and soul. i send you my…
Thursday
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twinklee1 gave lynn4 a thumbs up 12:12am
lynn, that is me with the grands from my daughter (from my first husband). this one had nothing to do…
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twinklee1 gave opal2705 flowers 12:08am
thank you that you care. and yes i do see one for years. i just have a rotten husband. twinks thank you…
Wednesday
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twinklee1 wrote a journal entry: is this the end 9:33pm
i do not know what to say except that i have wasted my life for over 30 years. i felt it was my duty…
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twinklee1 changed their mood to Horrible 9:32pm
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Journal
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is each day different?????
September 30, 2009 12:25am
please respond if possible to this.
i take my copaxone shots and pain meds--the little they give me.
everyday is different. somedays …
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lost a friend
September 25, 2009 2:16am
hi all
a friend of mine could not take my misery one night; wrote me; told me it was not handable for her. i do understand. i am so …
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help----joint pain (not the kind you smoke)
September 4, 2009 11:25pm
hey guys
i have been on copaxone for two months. i have fibro and arthritis--i know what those pains are.
now i have hip pain in the …
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what we make of them
July 25, 2009 3:56am
i am so sorry and distressed that so many of us are in so much pain. they have pain mgmt. clinics can help you get the meds that the doctors do …
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Hugbook
Hug
Sending you vibes of emotional well being.
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Hug
sounds like your going through depression, I know the feeling, worthless, guilty, just wanting to sleep cause thats the only escape....are you seeing a psych for this? Depression & MS go hand in hand, I've painfully discovered...Maybe tomorrow will be a better day & get some help if you haven't already. I care!!
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Hug
No, I don't live in Canada. I live in Chicago. Some drugs are just way cheaper than others, usually because they are no longer under patent and generics are available. Contrary to what many people think, generics really do work just as well and are required by law to have the same active ingredients as name brand. Docs get kick-backs from Big Pharma for promoting the latest expensive drugs, but this is not always in the best interest of the patient. I go to Walgreens. My pharmacist is very helpful in finding substitute drugs for those that are just way too expensive.
Thanks
thanks for the added support! I've worked my way off of about 6 medications and now am just on one and suprisingly I'm doing fairly well. I am seeing a brand new doctor in just over a week so we'll see where that will get me! :) thanks again
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Photos
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Support Groups
Close Multiple Sclerosis (MS)
: Relapsing-remitting MSi got diagnosed at age 66. kept telling them i thought i had ms; they kept telling me i was too old to have it. Hahhhh....the brain scan showed lots of lesions. i cannot get too down about this even though my symtoms at horrible and i only have at most 4 good hours on a good day......BUT, i still live in the USA, do not have a dirt floor, drive a Porsche, and look fairly good. I also find most thing amusing. i sleep a huge amount of time. i need some really cool, expensive, and weird looking canes. anyone got any ideas? my love to you all; this really is a stupid thing we have....but it is what it is i guess. there is absolutely no way to turn back the clock; so i guess we just have to be happy that we do not live in a county with dirt floors and have this, cause they are people who do. and we have to be better off on that alone and we have a computer and folks to talk to.
Treatments
Close Fibromyalgia
x. with fibro about 15 years ago. no one believed me. how the pain could be full blast or gone in 20 minutes. even clothes hurt. it is a nightmare. last year dx. with MS. they think i have had that for 15-20 years according to cat scan. i am 67 and dx. at this age when they should have caught this 15 years ago when i reported the same symptoms. it is pain,, pain. and yes, you feel like a druggie when you ask for something for pain. heaven forbid when you have to change drs. twinks
Treatments
- Aqua Therapy Not Working
- made me feel worse
- Cyclobenzaprine Working / Worked
- helps keep muscles relaxed.
- Elavil Not Working
- did nothing.
- Lyrica Working / Worked
- a godsend for nerve pain.
- Morphine Working / Worked
- finally something that works. no side effects at all. i take Opana every 6 hours.
- TENS Not Working
- it was a great money maker for the pain clinic.
- Adderall Working / Worked
- it keeps me awake. no side effects, no depression. i am awake and functioning instead of sleeping.
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Groups
