Slow as a snail
May 31, 2008 6:17am
About a year ago, one of our grandkids called me Gramma Snail. At first I thought that he was eluding the slowness of movement that I often …
normac2
12:45pm, December 3, 2008
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About Me
normac2
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About Me
I'm Unique.--- A wife, a mother, a grandmother, a goof ball, an adventurer, a believer, ---- I could go on .... I was diagnosed with PD over 11 years ago and fortunately the disease has progressed slowly. I'm starting to have more limitations now but I try to stay positive and live life to the fullest. My husband and I are full time RVers and have done some volunteer work when we travel. We want to continue our lifestyle but are starting to make adjustments due to my Parkinsons . I have a very supportive husband and family. I am truly blessed!
I'm Unique.--- A wife, a mother, a grandmother, a goof ball, an adventurer, a believer, ---- I could go on .... I was diagnosed with PD over 11 years ago and fortunately the disease has progressed slowly. I'm starting to have more limitations now but I try to stay positive and live life to the fullest. My husband and I are full time RVers and have done some volunteer work when we travel. We want to continue our lifestyle but are starting to make adjustments due to my Parkinsons . I have a very supportive
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Interests
computer, reading, **canoeing ** camping, grandkids,
computer, reading, **canoeing ** camping, grandkids,
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Recent Activity
Friday
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normac2 turned 60 12:00am
November 11
November 9
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normac2 gave DeannaK flowers 12:46pm
Thank you for your support DeannaK. I'm usually very upbeat and positive- just a slip! I've had Parkinson's…
November 8
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normac2 wrote a discussion post in the Parkinson's Disease support group: care giver 9:01pm
Does everyone out there have someone that they can call a care giver? My husband has ongoing depression…
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Journal
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A first step for me
May 21, 2008 9:40am
Writing a journal that others can read is a very big step for me! I've had PD for over 11 yrs. and still find it difficult to …
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Hugbook
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Hug
Sorry to hear that you don't think the future looks promising. I took am in the same boat as I cannot picture my husband as a caregiver down the road. He has put my Parkinson's on the same level as his Diabetes for diseases.....he has no clue. We are going on a Parkinson's cruise in January and I think that will be a big eye opener for him. Some people just aren't cut out for care givers. My mom who is 74 figures that it will be her and I living together eventually and helping each other out! Not a bad thought since she lives most of the time in Barbados and I know the heat and the sea help my body. Sorry for rambling....up to early. If you need to chat send me a note.
Deanna 
I’m With You
Flower
I ENJOYED OUR BRIEF "CONVERSATIONS" WE' HAD. I HOPE YOU WILL SEND ME A MESSAGE SOON.
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Photos
normac2 hasn’t uploaded any photos yet
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Support Groups
Close Parkinson's Disease
Treatments
- Comtan Working / Worked
- Started Comtan when mirapex d/c
- Ibuprofen Somewhat Helpful
- I have shoulder, back and foot pain some of which I can attribute to PD. The Ibuprophen helps me to sleep at night and I take it as needed during the day - particularly during off periods. It takes the edge of the pain and allows me more mobility but does not make me pain free.
- Mirapex Working / Worked
- I started taking Mirapex approx. two years ago and was very reluctant to take it at first due to the potential side effects of falling asleep suddenly and compulsive disorders. I can say that it has been effective. I went without it for a short time and noticed a definite change in my mobility and other PD symptoms. I did not have any issues re falling asleep but question that I eat compulsively. Mirapex discontinued... What a change! in a matter of weeks my cumpulsive behaviours are gone!!!
- Sinemet Working / Worked
- I started taking Sinemet CR 200/50 3xdaily approx. 2 yrs. after diagnosis. It made a dramatic difference and controlled my symptoms well. After 4-5 yrs. of taking med , I developed bothersome to severe dyskinesia. I felt that the dyskinesia was harder to put up with than untreated PD. Thankfully, I was referred to a mobility clinic and was privileged to have a top notch neurologist who fine tuned my meds. I now take Sinemet CR 100/25 (one and a half tabs 6x daily} This controls symptoms.
Close Depression Supporters
My husband has suffered from depression for over 38 years. For many years, we didn't have a " tag" that we could attribute his sick time to. He'd call in sick for work with vague complaints ie nausea, fatigue, headache etc. and say he had the flu. Over the years these bouts of unwellness have become more frequent and have lasted longer. He spends all day in bed sleeping deeply and takes very little fluids or nourishment. i am feeling burned out!
Treatments
- Music Working / Worked
- Music can set my heart to sing! It relaxes me and gives me diversion from my frustration and anxiety. i enjoy classical, easy listening and Christian music.
- Talking Working / Worked
- I can't hold concerns, stresses, anxiety within me. I need to talk it out with a confidant who will listen --- just let me ramble -- .
- Prayer Working / Worked
- Gods word tells us that we are not to be anxious and we are to give our burdens to Him . He promises us an inner peace that passes all understanding will fill our hearts and minds. i have experienced this but often forget to go there.
