A Thanksgiving Poem
November 25, 2008 3:39pm
I wrote this poem for Thanksgiving last year, but I think it's still appropriate:
Today We Count Our Blessings
Today we count our …
ukelady
11:06am, June 11, 2009
-
About Me
ukelady
-
About Me
I'm a 48-year-old electronics design engineer working in space sciences research. Aside from having the perfect job for me, I also have a wonderful husband of 21 years, and a wonderful 20 year old son. Everything was going great; then I was diagnosed with young onset Parkinson's Disease in September of 2006. I love to play musical instruments, especially the ukulele. I also love to draw and do crafts. I'm determined to keep doing these things and not let PD run my life.
I'm a 48-year-old electronics design engineer working in space sciences research. Aside from having the perfect job for me, I also have a wonderful husband of 21 years, and a wonderful 20 year old son. Everything was going great; then I was diagnosed with young onset Parkinson's Disease in September of 2006. I love to play musical instruments, especially the ukulele. I also love to draw and do crafts. I'm determined to keep doing these things and not let PD run my life.
-
Interests
Ukuleles, science fiction/fantasy books and movies, crafts, drawing, computer and video games
Ukuleles, science fiction/fantasy books and movies, crafts, drawing, computer and video games
-
-
Recent Activity
- Sorry, there is no activity in the My Activity feed.
-
Journal
-
This entry is private
-
More normal results. Good news, but I have questions.
November 17, 2008 11:06am
My EEG results came back normal, too. I guess I should be glad, and I am mostly, but I still have questions. If it wasn't a seizure …
-
Such a relief...
October 30, 2008 10:50am
My brain MRI came back as normal as can be. Whew! I am so relieved. I didn't even realize that I was that worried about …
-
Just had a brain MRI
October 20, 2008 11:44am
Had my second brain MRI this morning. I bet they don't find anything; nothing much going on up there! The reason we're doing …
-
-
Hugbook
Thanks
im glad i still have friends on this sight been gone for a long time
Flower
Hey Marian! Sorry, I haven't been on here a lot lately to commuicate. We're moving AGAIN, about 60 miles to the south. Oh well, I like it better there. Just wanted to drop by and say Hello and check on you! Hope you're doing ok! This move has me in a tailspin! LOL! {{hugs}} ;)
~tj
I’m With You
This is what friends here are all about, we got yer' back!
" Stand By Me By Ben E. KIng "
When the night has come
And the land is dark
And the moon is the only light we'll see
No I won't be afraid, oh I won't be afraid
Just as long as you stand, stand by me
So darlin', darlin', stand by me, Oh stand by me
Oh stand by me, stand by me
If the sky that we look upon
Should tumble and fall
or the mountains should crumble to the sea
I won't cry, I won't cry, no I won't shed a tear
Just as long as you stand, stand by me
And darlin', darlin', stand by me, oh stand by me
Oh stand now, stand by me, stand by me
----- guitar -----
And darlin', darlin', stand by me, oh stand by me
Oh stand now, stand by me, stand by me
Whenever you're in trouble won't you stand by me, oh stand by me
Oh stand now, oh stand, stand by me
Hug
Stopping by to say hi, long time no see and stuff... sending happy thoughts to you!
-
Hug
Well...my biopsy was negative for Sjogren's...so, guess this is ALL Fibro...unless a miracle happens and one of my 'MANY' doctors comes across another answer. Thanks for all your support & concern! Hope you have a great weekend! ;)
~tj
-
Photos
-
Advertisement -
Support Groups
Close Parkinson's Disease
It started with tremor, slowness and stiffness in my left hand. It was difficult to type and play my ukulele. I had been struggling with fatigue, weakness, dizziness and GI symptoms for over a year, and had seen a lot of specialists, including a neurologist who ordered a brain MRI. This test was normal; no MS, no brain abnormalities at all. When the tremor started, I went back to him, and he diagnosed me with PD. Shock! Denial! Slow acceptance. I feel better now, though.
Treatments
- Requip Working / Worked
- This stuff really works for me! At first, nothing happened, but now that I'm up to 3mg 4 times a day, the difference is amazing. I can walk normally, I can play my uke!
- Physical Exercise Working / Worked
- It really helps to exercise every day, especially with the stiffness and pain. My shoulder hasn't felt this good in years. It also helps with balance and flexibility.
Close Anemia
I've had anemia twice in the last couple of years (that I know of). I've had a colonoscopy and an upper GI endoscopy, and everything's normal. No one can figure out why this happens.
Treatments
- Iron Considering
- The first time I was anemic, they had me take iron supplements even though my serum iron level was actually high (ferritin normal). The anemia went away, though.
Open Migraine Headaches
I've been having migraines for years, but now the doctor thinks I might be having auras which include vertigo, nausea, vomiting and olfactory hallucinations. I also have Parkinson's Disease, but the neurologist thinks that is unrelated.
Treatments
- Caffeine Somewhat Helpful
- I've noticed that if I have a headache coming on, sometimes a little caffeine will head it off.
- Imitrex Working / Worked
- Miracle drug! I hardly ever have to take more than one. I don't think I've had any side effects.
- Ibuprofen Not Working
- I have always taken Advil for minor pain and it works for that but it does nothing for my migraines.
Open Hemochromatosis
I am a Parkinson's patient, and I recently signed up for the Parkinson's genetics project at 23andMe. As a result, I learned that I have 2 copies of the mutated H63D gene, which puts me at risk for hemochromatosis
-
Groups
