JamieRB

Close Hidradenitis Suppurativa

I have had HS since I was 13 I am now 35. They have misdiagnosed me for so many years it's ridiculous. I have eaten every pill and tried every specialist on the planet including the Mayo Clinic. I have gotten to the point where I need to be lanced once a month and it is so expensive I now do most of them at home myself. I get fevers and they are now in my groin waist arms and back of legs and neck. I've dealt with this for years.

Treatments

Clindamycin Not Working

Anti-B's only work for a while and your body grows immune. Then u wait and they appear again and u try something different.

Keflex Not Working

Same as above

Doxycycline Somewhat Helpful

Was one of the best Ive used but everyone is different.

Levaquin Somewhat Helpful

Have used both 500mg and 750mg. Same as before. works a little then stops.

Accutane Not Working

Do not take anything u need to sign a waver for!! Made me very depressed as if I wasnt already lol.

Tetracycline Somewhat Helpful

Same as the others

Surgery Not Working

Spent thousands of dollars and now its like I never did anything. Wish I could have that time back but I cant