juliec3's Journal

that there is absolutely NO comprehensive, coordinated, daily supportive treatment program for this Chronic Fatigue crap.

If so, the American health system is REALLY f*ed.

I've been to Cleveland Clinic:  told to take a vitamin.  Yeah, so much for a world-renowned hospital.

Considered the Bridge in Utah: actually just a $16k 'vacation' ($1,000 a day for 16 days, except day 1 and day 16 are travel days, and if you have insurance, there's a supposed 'discount' of $8,000, but they didn't verify that my insurance would cover that ahead of time, didn't ask for medical records (which made my Mom very suspicious), and offer a 'free', one-time follow-up visit, OR the director told me I may want to move to St. George.  WTF?  And who's going to pay for all of that?)

Contacted several other type of recovery/rehabilitative type of programs (although none was really specifically geared toward CFS, around the country):  not covered by insurance, cost ranged from $10k a month to much more than that.

Emailed a supposed supportive 'community' in South Carolina for people with CFS and Fibro that I got from a national support group foundation:  never got a response.

This really, REALLY sucks.

WHAT are people who don't have, lol, friends left, or family that will help, supposed to do?

Lying in bed on my PC reading 'hugs' on this site is only minimally helpful.  Sorry, but there's only so much support that can come from long distance, impersonal emails.

I've had it.  Period.

How much Darvocet can one take with Tequila to go asleep for a LONG, LONG time?

Yep...that's where I'm now at.