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About Me
iamwoman
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About Me
I was DXd with MS long after I had problems starting at age 13/14 but never went to Drs about any of the troubles. My family has alot of OA & RA so I just figured..... ?!?!?!? I also have Crohns Disease and Heart Disease. BUT I have THE BEST Caregiver..he is also my lover, best friend and husband. That helps alot.
I was DXd with MS long after I had problems starting at age 13/14 but never went to Drs about any of the troubles. My family has alot of OA & RA so I just figured..... ?!?!?!? I also have Crohns Disease and Heart Disease. BUT I have THE BEST Caregiver..he is also my lover, best friend and husband. That helps alot.
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Interests
I love to read and it will be sad if/when I lose my sight. But I will then get books on tape. I really enjoy our 4 grand-girls everytime we get to see them. They make me feel better !!
I love to read and it will be sad if/when I lose my sight. But I will then get books on tape. I really
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Journal
iamwoman hasn’t written any journal entries yet. -
Hugbook
Hug
hey woman--hugs sherrya
Hug
Iam sorry, I do hope you feel better.
At 43 I need a new mama.............one that like's me :- (
iam in a horrible crying mood.......i wish my brother were alive I MISS HIM SO MUCH, he liked me.
Flower
thank you
getting better day by day
Hug
When it hurts to look back,and your scared to look ahead,you can look beside you,and your best friend will be there,
Hug
thank you.. - Jess*
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Photos
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Support Groups
Close Multiple Sclerosis (MS)
: Seconday Progressive MSDXd in 1997 and that answered many 30 yr old questions. Using powerchair most of the time now.... SPMS is not fun but my husband, children & grand-girls make life sooooo much better!!!
Treatments
- Copaxone Not Working
- didnt work at all... actually had quite a few more lesions form during treatment
- Neurontin Working / Worked
- Was working well but now I have to take more & more each week before I even have any relief at all...... Therefore I am even MORE tired
- Physical Therapy Somewhat Helpful
- just getting started but loving the therapy
- Prednisone Working / Worked
- does not work as well as it used to but still love it !
- Provigil Working / Worked
- helps with the fatigue and helps with the sleepiness I have from the pain meds
- Rebif Not Working
- side effects were just too much plus I had many flare-ups during the treatment
- Solumedrol Working / Worked
- Used to work wonders but now the body is used to it. Still helps some tho
- Swimming Working / Worked
- can no longer swim but it was good while it lasted
- Tysabri Too Soon to Tell
- I have now had 17 infusions - WhooHoo
- Zanaflex Working / Worked
- use this every night before bed so my legs dont jump as much and I can sleep a bit
Open Crohn's Disease & Ulcerative Colitis
Treatments
- Dietary Modification Working / Worked
- Prednisone Working / Worked
- wish I could have more but I am on Tysabri for my MS & they dont like to mix the 2 very often
Open Chronic Pain
I have a few things that cause chronic pain daily. I have MS, Crohns Disease plus had a heart attack in 2004 so we added Heart Disease to that list. Just had back surgery because we needed to remove the cyst growing on my spine where it is broken at L5 because of too many falls. The Neuro Surgeon also filed down some OA & cut off the 3 buldges near S1 ... Doing better each day.
Treatments
- Heat Not Working
- cannot do due to my MS... that disease does not like heat at all...
- Marijuana Working / Worked
- And have my MS Dr's signed paper for it now
- Morphine Not Working
- allergic to this stuff !!
- Neurontin Working / Worked
- every day!!
- Oxycodone Not Working
- allergic to any codines
- Physical Therapy Too Soon to Tell
- waiting to be released from Back Surgeon
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