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  • About Me

    Image of LolaO

    LolaO

    Female, 34, Single
    New York, NY, USA
    Member since May 6, 2008

    • About Me

      I am a bipolar congenital amputee with MPD/DID, PTSD, borderline PD who is trying to accept herself just as she is. I was engaged to Pat, a severely disabled guy who died at the end of October '08. I am a LPN and before becoming totally disabled I worked providing home care for disabled folks. Now I'm 2 disabled 2 work.

      I am a bipolar congenital amputee with MPD/DID, PTSD, borderline PD who is trying to accept herself just as she is. I was engaged to Pat, a severely disabled guy who died at the end of October '08. I am a LPN and before becoming totally disabled I worked providing home care for disabled folks. Now I'm 2 disabled 2 work.

  • Recent Activity

    November 1

    October 30

    October 27

    October 25

  • Journal

    • Journal Entry for July 2, 2009

      Mood July 2, 2009 6:46am

    • Pat died last week

      Mood November 1, 2008 7:27am

      He never regained consciounes. It shoudl have been me rather than him.
    • Pat is in the hospital

      Mood August 16, 2008 3:13pm

      Pat had a seizure last Sunday that caused him to fall out of the lift used to move him between his chair and the bed and has been in the hospital …

    • Things seem to be quieting down a little

      Mood July 1, 2008 6:13am

      I have not written anything here for a while. If anything, things have been improving some. While Lisa has made some trouble, she has generally not …

    • Thereis a war in my head

      Mood June 21, 2008 7:50am

      I have been in a lot of pain because there seems to be  a war in my head. Things are much more chaotic than usual as Lisa seesm to be …

    Read Journal

  • Hugbook

    Give LolaO a hug



    • Funny Face

      From kellygrn October 30

      We talked before & I thought we were already friends! Welcome to omy fold.

      KK

    • Ray of Sunshine

      From Libby78 October 21

      Hi there. I saw your profile and wanted to give you a hug :-)

      Hope you have a great day!

    • Celebration

      From LMKuhn76 October 19

      So glad to hear you haven't had any seizures in a while. Great news!

    • Thanks

      From LMKuhn76 October 18

      Thanks for the hug and well wishes Lola! Hope you are doing well :) Love, Lisa Marie

    • Hug

      From LMKuhn76 October 17

    Read Hugbook

  • Support Groups

    • Close Amputees

      I was born without feet and used 2 b able 2 walk on my stumps. I have developed a VERY painful neuropathy involving my stumps that prevents me from butting any pressure on them at all. The docs have been unable 2 give me any relief. from the pain and i cannot even let them touch the floor. II may have 2 use a w/chair permanently.

      Treatments

      Lyrica Not Working
      No help with the neuropathy.
      Neurontin Not Working
      No help with the painful neuropathy
    • Close Hand & Foot Abnormalities

      I was born with nothing in front of the heels of my feet. Congenital deformities of the legs run in my family. I no longer use the prosthetic feet which were made for me when I was in my 20s.

    • Open Cerebral Palsy

      Lindsey, one of my alters, is a spastic quad because of CP.All 4 limbs, her back, neck, and face are all very very spastic.

    • Open Self-Injury

      Sometimes I cut to fel in control of some small part of my life, sometimes to help me feel less empty and dead inside, and sometimes to block my flashbacks of having been incested hundreds of times when I was a kid.

      Treatments

      Group Therapy Somewhat Helpful
      Outpatient Treatment Program Somewhat Helpful
      Psychotherapy Somewhat Helpful
    • Open Personality Disorders
      Type: Borderline Personality Disorder (BPD)

      I was diagnosed with this when I started to cut and make suicide attempts as a teen. I'm no longer actively suicidal but think about it a lot. I still cut, especially to block flashbacks of my being incested.

    • Open Post-Traumatic Stress Disorder

      I was repeatedly incested as a child and now I have horrible PTSD with flashbacks triggered many times every day. Cutting myself and smoking way too much weed are the only things I have found that block the flashbacks.

      Treatments

      EMDR Not Working
      EMDR made things a lot worse
    • Open Rape

      I was raped many times as a child and as ayoung teen it was actually incest and I was afraid to tell anyone about it.

      Treatments

      Marijuana Working / Worked
      Heavy smoking blocks my flashbacks.
      Psychotherapy Not Working
      Never helped no matter how many times I tried
    • Open Sexual Abuse

      I was incested by my grandfather and uncle more times than I can count as a child and as a young teen. I now have PTSD, DID/MPD and SI because of what happened.

      Treatments

      Group Therapy Not Working
      Never helped.
    • Open Bisexuality

      My alters Linda, Lisa and I are all bisexual.

    • Open Multiple Personalities

      IThere are 5 of us, Lola, Linda. Lucy, Lindsey, and Lisa. Of course I may become aware of others in the future. We all are wheelchair users Lisa has never learned to walk and is also deaf and bisexual. She sometimes takes money to have sex. Linda is a bisexual paraplegic with Asperger Syndrome. Lindsey is a spastic quad with severe CP who is transgendered. Lucy is a lesbian with MS. Because of the MS she is in a wheelchair and has lost her sight to the point of being legally blind.

    • Open Paralysis

      All of my alters have paralysis in one form or another. Linda is a T-10 paraplegic and has been so since she was a kid. Lucy has severe MS that keeps her in a w/chair,Lindsay is a spastic quad because of cerebral palsy, and Lisa never learned 2 walk as a kid but the docs have never figured out why.

    • Open Multiple Sclerosis (MS)
      Type: Relapsing-remitting MS

      Lucy, one of my alters, has advanced MS and is legally blind from it. Her balance is so terible that she has 2 b strapped into her w/chair or she will fall from it. Her speech is VERY thick and ppl have a very hard time understanding what she says.

      Treatments

      Acceptance Working / Worked
      The only thing left.
      Avonex Not Working
      Betaseron Not Working
      Copaxone Not Working
      Physical Therapy Not Working
      Prednisone Not Working
      Rebif Not Working
    • Open Lesbian Relationship Challenges

      Lucy, one of my alters, is a proud lesbian.

      Treatments

      Acceptance Working / Worked
      No treatment necessaruy as it ain't a problem
    • Open Coming Out

      My family knows nothing about my bisexuality. Linda who is also bi and Lucy who's a lesbian are always threatening to come out to my family. They have come out to some of my friends and have freaked out a couple of them.

    • Open Bipolar Disorder

      I was recently diagnosed as bipolar-rapidly cycling. I have mede a few suicide attempts and have been locked up many times.

      Treatments

      Acceptance Working / Worked
      No msatter how crazy I am I can still accept myself as being the real me and not some drugged out zombie.
    • Open Transgender

      My alter Lindsey is aware that she is transgendered and wants to transition to being a guy.

    • Open Epilepsy & Seizures

      My fiancee had seizures his whole life and died from a head injury that resulted from a seizure. My alter Lucy occasionally has a seizure from her MS, and my alter Lisa has classical GM epilepsy that is poor controlled despite meds.

      Treatments

      Acceptance Working / Worked
      The only thing that works when nothing else does
      Depakote Not Working
      Dilantin Somewhat Helpful
      Keppra Not Working
      Klonopin Somewhat Helpful
      Lamictal Somewhat Helpful
    • Open Chronic Pain

      Chronic severe neuropathic pain in my stumps prevents me from walking on them or putting any pressure on them. I am a full-time w/chair user because of this.

      Treatments

      Chiropractic Adjustment Not Working
      Cymbalta Not Working
      Lyrica Not Working
      Marijuana Working / Worked
      The only thing that brings me any relief at all.
      Neurontin Not Working
    • Open Hearing Loss & Deafness
      Type: Sensorineural (Profound)

      My alter Lisa has less than 5% of her hearing. That means that she is really TOTALLY deaf.

      Treatments

      Hearing Aids Not Working
      Lis ahs never found one...evdn the kind u wear around your neck..to help even a little
      Lip Reading Somewhat Helpful
      Lisa does her best to lip read but still gets things wrong quite often.
      Sign Language Working / Worked
      Lisa is fluent in ASL but very few of the ppl she meets know it.
    • Open Eating Disorders

      Lisa, one of my alters, has never had a healthy relationship with food. She has every type of eating disorder.

    • Open Dizziness & Vertigo

      Lucy has severe balance problems from the MS. She has had a few nasty falls.

    • Open Female Sexual Issues

      I used 2 think I was straight but I have discovered that I am bi. I am a multiple and have alters who are bi, lesbian and transgendered.

    • Open Blindness & Visual Impairment
      Type: Legally Blind

      Lucy is legally blind from MS.

      Treatments

      Acceptance Working / Worked
      The only thing that works when there is no hope.
    • Open Bereavement

      My 25 y.o. fiance died after 2 months in a coma following a brain injury. I am devastated.

      Treatments

      Crying Not Working
      Keeping Busy Not Working
      Remembering Not Working
      I just keep feeling worse and worrse
    • Open Dystonia

      I have dystonia from having taken Zyprexa many years ago when maniac . My body is always twisting 2 some extent

      Treatments

      Baclofen Not Working
      Cogentin Not Working
      Klonopin Somewhat Helpful
      I get a litle relief drom Klonopin.
    • Open Healthy Sex

      I'm bi and was engaged to a guy who recently died. I'm a multiple and Linda is also bi...Lucy is les and Lindsey is transsexual and seems 2 have her own alter Larry . . . the guy within her body. I know little about Lisa but she is a nympho and sometimes takes money from guys who are into having sex with a disabled woman.

    • Open Incest Survivors

      I was raped many times by my grandfather and uncle. I told no one about it for many years as they threatened to kill me if I said a word. I still have flashbacks and nightmares on a daily basis and cut and smoke too much weed to try to control them. My grandfather is dead and m,y uncle is in prison for life but i still don't feel safe.

      Treatments

      Psychotherapy Not Working
      I have been betrayed by every therapist I have seen. They keep sending me to psychiatric hospitals against my will.
    • Open Scoliosis

      I used to be taller but because of the worsening of my kyphoscoliosis I'm now a 4'8" camel with a large hump.

      Treatments

      Brace Not Working
      Did not stop the progression.
      Harrington Rods Not Working
      Rods had to be removed and I was left with more of a deformity
      Surgery Working / Worked
      I had two dutgeries and they both failed.
    • Open Interracial Relationships

      I'm Black-Hispanic and my fiance. who recently died, was white. We both had multiple disabilities and it seemed as if we had much more in common than we had in the way of differences. Both of our families had some problems accepting the interracial aspect of our relationship.

    • Open Autism / Autism Spectrum

      Linda, one of my alters, is a severe Aspie or a not so bad Autie and I hate 2 look ppl in the eyes.

      Treatments

      Patience Working / Worked
      It is slowly working.
    • Open Spina Bifida
      Type: meningocele

      Bexause of SB a former lover of mine needs braces and crutches to get around. I have never been able to get her to try using a chair.

    • Open Morgellons Disease

      I don't know if I am crazy or sick. Also I'm not sure if the disease or the treatment is worse. I just so very confused by all of this

  • Groups

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