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About Me
lupie1981
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About Me
I am a 26 year old female with severe Systemic Lupus Erythmatosus. I have one 9 year old son and a fantastic fiance. I was diagnosed in July 2004 after I started experiencing some severe joint pain and swelling. Since being diagnosed I have had a mini stroke due to CNS vasculitis due to SLE, diagnosed with lupus nephritis (which causes me severe edema), chronic cerebritis (brain inflammation)also due to SLE. I have chronic fatigue, joint pain and swelling and have technically been in a flare since original diagnosis almost 4 years ago. I was managing a medical ofc at the time and have had to quit the job that I loved so much.
I am a 26 year old female with severe Systemic Lupus Erythmatosus. I have one 9 year old son and a fantastic fiance. I was diagnosed in July 2004 after I started experiencing some severe joint pain and swelling. Since being diagnosed I have had a mini stroke due to CNS vasculitis due to SLE, diagnosed with lupus nephritis (which causes me severe edema), chronic cerebritis (brain inflammation)also due to SLE. I have chronic fatigue, joint pain and swelling and have technically been in a flare since
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Hey hun, how are you? I'm so sorry you're having a rough time. I will keep praying for you.
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hope your day is peacefuland loving sharon
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Hope u r feeling better
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Im sorry that you arent feeling so well. I know how what you;re going through. Hang in there. You will get better :)
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So how are you doing? I have been pretty sick so i haven't gotten on in awhile. I had lupus cerebritis twice in 4 months.
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Treatments
- Plaquenil Working / Worked
- Cellcept Working / Worked
- Prednisone Working / Worked
- currently on 40 mgs have been on it non stop for almost 4 years
- Lisinopril Working / Worked
- Take for high blood pressure due to long term prednisone use and lupus nephritis
- Avapro Working / Worked
- Also take for high blood pressure related to long term prednisone use and lupus nephritis which causes high blood pressure
- Protonix Working / Worked
- Have to take daily for stomach protection due to multiple meds
- Fosamax Working / Worked
- I take this to protect my bones due to long term prednisone use
- Provigil Working / Worked
- works sometimes...
