Hi this is me
May 2, 2008 1:52pm
Hi everyone. Just thought i would write down some of the stuff i have and ramble on a bit. I only found this site today and am so happy …
funtabulous 
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About Me
funtabulous
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About Me
I have 8 chronic illnesses or ailments at present. Narcolepsy is the big one, can't work and always tired and sick. I try so hard to be happy with life and my lil sister who has cerebral palsy. Love my friends and helping where i can. I think that life is a privillage not a prision sentence and that people need to laugh every day.
I have 8 chronic illnesses or ailments at present. Narcolepsy is the big one, can't work and always tired and sick. I try so hard to be happy with life and my lil sister who has cerebral palsy. Love my friends and helping where i can. I think that life is a privillage not a prision sentence and that people need to laugh every day.
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Interests
Love animals, life and sci fi but not all at once lol. Live my life to different music tracks, if you know instantly what that means then i am not alone. Love the internet and meeting new people even in the middle of the night
Love animals, life and sci fi but not all at once lol. Live my life to different music tracks, if you
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Recent Activity
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Journal
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Hugbook
Moment of Peace
The "clear" addy??? Yep.
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Funny Face
Hey you. How you doing? Just checkin in with ya. Will be in touch. xxxx
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Celebration
Wow a fellow Kiwi. So good to hear from you. Yes that was me. And yes my boss is great. Thats why I've stuck with the same job for so long. He allows for my N. How you doin? Keep in touch, please. Sort of feel quite alone in NZ. I never met the other girls on that tv doco, but did go along to a couple of support group meetings. They were crap. Maybe different now, that was a few years ago. Do you know anything about the NZ support group?
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I’m With You
Hey how you doing. Haven't been online for ages. So cool to find a fellow Kiwi. Ya know what I mean, its as if you are the only person in the world with this god dam stupid illness with the god awful name of narcolepsy.
Hug
You are not alone fellow Kiwi. Come visit us at KIWIS FROM AOTEAROA, where you can meet like minded people from your own little neck in the woods! Love to see you there..HUGS Jo.
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Photos
funtabulous hasn’t uploaded any photos yet
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Support Groups
Close Narcolepsy
Was misdiagnosed with about 5 different mental illnesses before i was tested for narcolepsy. My main problem is cataplexy and its so bad i can't work. i sleep during the day as it helps with the cataplexy. i get sick all the time and never sleep.
Treatments
Close Menopause
when i was 26 my periods changed and i was diagnosed with early menopause. Now 8 years later and many drs past, it is totally official i have menopause!!! like the hot flushes and unpleasent symptoms weren't a dead giveaway. nothing has really helped with the symptoms but most have gone away now, but have a new problem, post menopausal bleeding, oh joy
Treatments
- Estradiol Not Working
- made me feel sick and generally unwell
- Estrogen Patch Working / Worked
- worked for a time, cost prohibitive
- Progesterone Not Working
- didn't work or change a thing
Open Obesity
I have yoyoed my weight for so many years, i was slim till i was 17 and put on 50kgs which i then used bulimia and anorexia to lose. 10 years ago after yet another horrid male i decided to put on my protective coating, some call it 70kgs. Now i have dealt with most of the baggage and want to lose weight but its harder as i have ruined my body
Treatments
- Avoid Certain Foods / Chemicals Not Working
- Jenny Craig Working / Worked
- became bulimic and anorexic to help my weight loss, the programme works but the cost is high.
- Physical Exercise Working / Worked
- cost prohibitive and my lifestyle and many illnesses won't let me continue this
- Weight Watchers Working / Worked
- helped immensely, it was one of the gateways to my eating disorders
- Sleep Working / Worked
- Not kidding studies have proven that if you get enough sleep weight comes off. once i got my CPAP machine for sleep apneoa I lost 22kgs and did nothing different but sleep!!!
- Nexium Working / Worked
Open Irritable Bowel Syndrome (IBS)
Just when I thought i had enough illnesses i started getting pain in my back and stomach, cramps and pain that would stop me from getting the few hours of sleep i used to get. Nothing seems to work and i am getting sick and tired of being sick and tired
Treatments
- Aloe Vera Somewhat Helpful
- Only just started on it but seems to be a bit helpful with the pain
- Avoid Certain Foods / Chemicals Not Working
- Mainly cos i am not that good at aviodance lol.
- Buscopan Working / Worked
- its just not doing what i need it too i am sick of pain and wind
- High Fiber Diet Too Soon to Tell
- ICKY
- Imodium Somewhat Helpful
- Nexium Somewhat Helpful
- Been on this for years for reflux but doesn't seem to do much for IBS
- Peppermint Working / Worked
- Always helpful for wind
- Probiotics Too Soon to Tell
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Groups
