Had a great day today cant really …
Had a great day today cant really complain alot of juice. I cant eat eggs like I use to but I love eggs.
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scarlett5202 
When I phoned the hospital this morning, I was assured Danny had settled in well after his move.
I went to meet with my own doctor this afternoon and he was running half an hour behind schedule but it was worth it because he spent absolutely ages talking to me about Danny and his situation. He is going to raise some of the concerns I have been voicing over Danny's meds with the consultant and, although the way they moved Danny to another ward was far from ideal, he feels that the ward managers had difficult decisions to make with the bed closures and had done the best they could. I have to trust him on this.
Regarding Danny's future care, his inclination was that Danny's interests might be better served in a community of similarly afflicted young people since he is young enough to settle in and make new friends. If there is a place like that not too far away, I may be tempted but it would have to be top class in its facilities with ample stimulation opportunities. Why do I sense that this place may not exist?
We spoke about my own health. My blood pressure is fine and blood test results have improved (not sure what they are keeping an eye on and I don't really care!) and I have to have more blood tests in a month's time so I can't complain really. He asked me whether I am depressed and I said how could I be when I was so worked up. He explained that there are different types of depression so he has given me a questionnaire to fill in. I really don't think I am depressed. He wants me to take time out from work but I am not sure. He wants me to think of working 2 or 3 days a week for now but that is not my preferred long term option and I doubt that I would be allowed it as a 'temporary' measure. I offered me a doctor's certificate but I said that I would think about it. I am hoping to take another day off tomorrow to settle myself and, barring other setbacks, I should be fit to return to work on Thursday.
When I was waiting to see my GP, I met a nurse from Danny's old ward. She told me she had seen Danny that morning and that he looked quite glum. Mind you, to be fair, he was becoming more like that because of the limited environment and stimulation.
Anyway, when I went in to see him, I was pleasantly surprised. The room, although smaller had been set out nicely and some of Danny's early supports (knitted teddy, stress ball, octopus finger puppet, plasma ball) were all set up on a corner shelf looking down on him! A very pleasant nurse came in to chat and she handed me a card - his first birthday card (31 on Friday!) The manager came to talk to us and said that he did not have enough time to have the type of talk he wanted with us but that we could do that tomorrow. However, he is going to ask the therapists (occupational, physio) what type of input he needs to make him fit for discharge. He has told them to ignore budgets because he is going to see whether he can get extra support for Danny. However, even if he does not get the answers he wants, he is hoping to use Danny's case as evidence of the extra staff resources they require - I am all for that because, even if it may not help Danny (but I hope it does), it could be useful for any future 'Dannys'.
Danny was very subdued tonight but not distressed. There was a pretty auxiliary nurse (she had set out his room) who was delighted to have met a fellow vegetarian and told him she would look after him! She did not seem concerned that Danny could not verbally respond and she told me she had been chatting with him that morning. Just the therapy Danny needs and pretty too - he may buck up his ideas!
So, although Danny is a little put out, I can see so many positives in the move. The staff seem younger, friendlier and more disciplined in their approach. Not sure what the future holds. Who does?
Tonight I am not going to let my thoughts run away with me. Danny is settled, I should be settled!
(Sorry for the rambles but I am treating this as a therapy and reference point for myself right now. If any friends have stayed with me thus far, I applaud them!)
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Marion I hope you can take some time off
and as far as Danny being moved your right it would have to be a top class place with caring and pactience staff . but Iam still hopeing he can stay there
I like the ideal the manger have about the extra support And resources I hope it work out for Danny ,That was nice about the B,day card
what a sweet nurse:) Iam glad you were please with his room and he had all his things there,
Marion I am keeping you and Danny in my thoughts
love U Caroline
sending a BIGGGGG HUGGGGGGG To Danny
sunnyc
Sounds like Danny is getting some help there, yes keep hold of those positve things Marionx
carina99
Danny cannot stay where he is indefinitely because it is a hospital and I would need to prove that he still needs medical interventions (and I think I can for now but not for long). We do need to find a place where Danny will be able to spend the rest of his life (however long or short that might be) in contentment and comfort.
scarlett5202
I really hope you find a suitable place for Danny, keeping my fingers crossed for you x
carina99
Thanks again, Jan. I am keeping my fingers, toes and everything else crossed but I am trying not to think too far ahead. Danny's social worker will have to find out what is available and then we can look at options. If none of the options suit, then, and only then, will I get back into 'fight mode' {{hugs}}
scarlett5202
keep them coming marion, its great that you can get it out and feel bit better and i appreciate you letting us know how things are going :)
and i'm delighted that danny has adjusted and is being well cared for in the new ward - nothing helps motivation better than an attentive and attractive nurse :)
coming to you, i hope you give some serious consideration to the doctor's advice regarding work - and there's no harm in asking your HR person if such an arrangement can be made while you're going through these really difficult times. i can't see it being a major problem considering its a public organisation, would be different if it was a cold corporation! and its clear from your test results that it is the situation that's so badly effecting your health - not too sure of the depression diagnosis though, i know i'm not a qualified medical practitioner but i'm a qualified depressed person...lol..and i know that someone depressed doesn't run around organising things like the way you've been - a depressed person would've given up :/ ...stress, on the other hand, i'd say a definite and cutting down your workload and spending time working on that would be very helpful.
anyway, those are my ideas anyway, noone is in a better position to judge what's best for you than you, just remember to be mindful of emotions and thoughts in your brain and how they're effecting the rest of your body.
*big warm comforting silverback huggles*
cagedDreams
Thanks, cagedDreams, for your considered reply. Am just off the phone to my Team Leader and have told her I am returning to work tomorrow (rather than wallow in the mire!). However, I have asked for my hours to be permanently reduced so that I can work 4 days rather than 5 (or I will go off sick) so we shall see. I don't think they would allow a TEMPORARY reduction in hours so I have to be careful. Whilst 2 or 3 days might suit me short term, I am not ready to retire yet!!! And, yes, I would concur with your 'amateur' diagnosis that I am NOT depressed (just emotionally and mentally exhausted!)
I am off to do some errands now and clear my head at the same time - walking in the fresh air does wonders for me. Did a meditation this morning for the first time in ages and I just wanted to snuggle up in bed afterwards (decluttering the brain is to be recommended!)
Hope you had a good day and please keep in touch.
*big warm thankful huggles* for my silverback friend
scarlett5202