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  • About Me

    Image of genebh

    genebh

    Male, 61, Married
    Hull, MA, USA
    Member since April 30, 2008

    • About Me

      Hi. I had a stroke 5+ years ago while my wife was out of town for work. My wife is the best to me & I love her to pieces. My two legs are swollen & tight from edema/fluid, making movement difficult. I believe my sense o' humor has kept me going. Lost my thyroid to cancer...no big deal, so I'm on thyroid med the rest of my so-called life...The State keeps denying me more therapy which makes matters worse & worsen..my legs keep tightening damnit. I am lucky to be alive, with most (my memory sucks) of my faculties intact, except I am in a wheelchair, because my left side is compromised, both arm & leg, & my bladder...not fun, a bad joke. I am a stage 2 diabetic; beginning insulin injections(oboy). One of my diabetes pills caused heart failure, the other kidney failure..I've had both. I have high cholesterol. For reasons I do not understand, I get chills or hot flushes & hiccups. I cannot keep up w/ wardrobe changes & lousy BP; meds seem to control it lately (yay). I am 90% housebound, except for PT, doctor appts. & eating out occasionally, though lately not eating out so much. I would love to talk to other strokeys & head trauma victims...I love my 2 cats, but mrow sometimes isn't enough. I spent a lot of time on Ebay, but eBay's prohibitive lowering of our handling costs sucked & forced us to close. So much for the little guy; eBay was STARTED for us!! Handicap services in Massachusetts are marginal & are frequently run by the mentally deficient, so, yes, I am VERY frustrated & venting could be nice. I am sick of being a cash cow for insensitive medicos, schmucks of all shapes & sizes, & worthless health plans/VNA's & "support" agencies, but I guess it goes with the territory. I didn't deal w/ life that well to begin with, but being a strokey is certainly no kind of life. Friendships don't seem to be on the horizon, but, hey, prove me wrong. MRI's may be SOMEONE's idea of a good time, but not mine... what gives w/ that? PCAS's (helpers) have a half-life of 3 mos. or so, then it's atrophy time again...get me out of here. Stop me before I spread... UPDATE: Our most recent PCA, Tom, is great & almost like family...friendly, helpful, generous, and even cooks for Sara & me sometimes. And, WELL lol. He has been w/ us over a year now. Recently diagnosed w/Congestive Heart Failure; feel like I'm dying, running on EMPTY and afraid of food w/ no clear answers what to eat (more malarky)!

      Hi. I had a stroke 5+ years ago while my wife was out of town for work. My wife is the best to me & I love her to pieces. My two legs are swollen & tight from edema/fluid, making movement difficult. I believe my sense o' humor has kept me going. Lost my thyroid to cancer...no big deal, so I'm on thyroid med the rest of my so-called life...The State keeps denying me more therapy which makes matters worse & worsen..my legs keep tightening damnit. I am lucky to be alive, with most (my memory sucks)

    • Interests

      Movies, new & old, music, eating Asian goodies (except after CHF), Seafood, CSI's, Tony Soprano et al, birdfeeding, my cats (Boomer & Patty Cake), Staying Alive, Avoiding Doctors AND nurses (sadistic biotches except the RARE few)), Cooking + flavorless sodium-free meals, yuck.

      Movies, new & old, music, eating Asian goodies (except after CHF), Seafood, CSI's, Tony Soprano et al,

  • Recent Activity

    Recently:

    • 18 hugs received, 16 hugs given, 13 photo comments, 4 journal comments, 3 group discussion posts

    Today

    • genebh gave JudyWI a "get well soon!" 6 minutes ago

      Judy: So sorry you are ailing. You are in my thoughts. Let Rich take care of you!! You are in good hands.…  

    Yesterday

  • Journal

    • Why are VNA people such IDIOTS???

      Mood October 14, 2009 7:31pm

      VNA PT's are morons, and the Visiting nurses are so thick, but they are part of one's hospital discharge malarky.  Doctors …

    Read Journal

  • Hugbook

    Give genebh a hug



    • Little Love

      From mycat Today

      good one thanx hope you had a nice day it feels like winter outside

    • Little Love

      From JudyWI Yesterday

      Genoooo, I am so sorry about your call. I was at home but couldn't talk, I am so very sick. Rich took me to the doc yesterday and I have sinus, bronchial, and upper respiratory infection. I only slept about 2 hrs last night with all the coughing and wheezing. Doc put me on antibiotics and an inhaler, and I have to call him tomorrow to let him know how I am doing. He said something about the hospital, I said, "OHHHHH NOO!!" He said, "well, we will see"---Soo, your Judala is in a bad way right now and can't really talk,---I will call you as soon as I am able, but it may be a few days. Just know that I am thinking about you and your poor aching mouth. Tight hugs, Sweetie, miss you, and even though I couldn't talk--twas nice to hear your voice. Love, Judy

    • Ray of Sunshine

      From katsupsidedown Yesterday

      You are filled with so much sunshine....hugs, Kathy

    • Hug

      From 1wngsfn Yesterday

      You keep me laughing! Hugs, Debbie

    • Shout Out

      From JudyWI Monday

      Just stopping by to say I hope you are having a decent day and I am thinking of you! Tight huggles for the whole fambily! Judy

    Read Hugbook

  • Goals

  • Support Groups

    • Close Stroke

      genebh hasn’t entered any details for this support group.
    • Close Heart Failure

      Stroke patient who ate for outings had trouble breathing & was drained of 45 lbs. of crap.

    • Open Panic Attacks

      I stop breathing; feel lightheaded/lost; then usually puke & not eat.

    • Open Diabetes Type 2

      I have Diabetes 2; recently went to insulin control/shots

  • Groups

  • Friends


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