Get that stupid AD off the bottom lefthand corner!!!
November 13, 2009 9:53pm
Nobody needs that ad going off all hours of the day, because DS is making a few bucks!! Clean up our site!!!
Progress
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About Me
genebh
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About Me
Hi. I had a stroke 5+ years ago while my wife was out of town for work. My wife Sara is the best partner I could ask for. My two legs are swollen & tight from edema/fluid, making movement difficult. I believe my sense o' humor has kept me going. Lost my thyroid to cancer...no big deal, so I'm on thyroid med the rest of my so-called life...The State keeps denying me more therapy which makes matters worse & worsen..my legs keep tightening damnit. I am lucky to be alive, with most (my memory sucks) of my faculties intact, except I am in a wheelchair, because my left side is compromised, both arm & leg, & my bladder...not fun, a bad joke. I am a stage 2 diabetic; beginning insulin injections(oboy). One of my diabetes pills caused heart failure, the other kidney failure..I've had both. I have high cholesterol. For reasons I do not understand, I get chills or hot flushes & hiccups. I cannot keep up w/ wardrobe changes & lousy BP; meds seem to control it lately (yay). I am 90% housebound, except for PT, doctor appts. & eating out occasionally, though lately not eating out so much. I would love to talk to other strokeys & head trauma victims...I love my 2 cats, but mrow sometimes isn't enough. I spent a lot of time on Ebay, but eBay's prohibitive lowering of our handling costs sucked & forced us to close. So much for the little guy; eBay was STARTED for us!! Handicap services in Massachusetts are marginal & are frequently run by the mentally deficient, so, yes, I am VERY frustrated & venting could be nice. I am sick of being a cash cow for insensitive medicos, schmucks of all shapes & sizes, & worthless health plans/VNA's & "support" agencies, but I guess it goes with the territory. I didn't deal w/ life that well to begin with, but being a strokey is certainly no kind of life. Friendships don't seem to be on the horizon, but, hey, prove me wrong. MRI's may be SOMEONE's idea of a good time, but not mine... what gives w/ that? PCAS's (helpers) have a half-life of 3 mos. or so, then it's atrophy time again...get me out of here. Stop me before I spread... UPDATE: Our most recent PCA, Tom, is great & almost like family...friendly, helpful, generous, and even cooks for Sara & me sometimes. And, WELL lol. He has been w/ us over a year now. Recently diagnosed w/Congestive Heart Failure; feel like I'm dying, running on EMPTY and afraid of food w/ no clear answers what to eat (more malarky)!
Hi. I had a stroke 5+ years ago while my wife was out of town for work. My wife Sara is the best partner I could ask for. My two legs are swollen & tight from edema/fluid, making movement difficult. I believe my sense o' humor has kept me going. Lost my thyroid to cancer...no big deal, so I'm on thyroid med the rest of my so-called life...The State keeps denying me more therapy which makes matters worse & worsen..my legs keep tightening damnit. I am lucky to be alive, with most (my memory sucks)
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Interests
Movies, new & old, music, eating Asian goodies (except after CHF), Seafood, CSI's, Tony Soprano et al, birdfeeding, my cats (Boomer & Patty Cake), Staying Alive, Avoiding Doctors AND nurses (sadistic biotches except the RARE few)), Cooking + flavorless sodium-free meals, yuck.
Movies, new & old, music, eating Asian goodies (except after CHF), Seafood, CSI's, Tony Soprano et al,
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Recent Activity
Recently:
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87 hugs given, 27 hugs received, 14 photo comments, 6 journal comments, 4 group discussion posts
Today
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genebh gave jazzkeys a hug 2 minutes ago
I found this group...http://www.dailystrength.org/groups/spiritual-but-not-religious/discussions/messages/8476889…
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genebh gave emmychan a hug 3 minutes ago
I found this group...http://www.dailystrength.org/groups/spiritual-but-not-religious/discussions/messages/8476889…
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genebh gave Elton a ray of sunshine 3 minutes ago
I found this group...http://www.dailystrength.org/groups/spiritual-but-not-religious/discussions/messages/8476889…
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genebh gave 1wngsfn a prayer 4 minutes ago
I found this group...http://www.dailystrength.org/groups/spiritual-but-not-religious/discussions/messages/8476889…
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genebh gave RubellaUmbrella a hug 19 minutes ago
Do you KNIT? Sara belongs to a very lively knitting group if you be interested!! You are a good mind...terrible…
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Journal
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Why are VNA people such IDIOTS???
October 14, 2009 7:31pm
VNA PT's are morons, and the Visiting nurses are so thick, but they are part of one's hospital discharge malarky. Doctors …
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Hugbook
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Go For It
I started a group here which I called the Gardening Gulls, as I live by the beach and I love to garden and wanted to share, share, and share some more. Nobody had anything to say and I wore my mind out trying to stimulate conversation and teamwork. Then it started making me feel very pressured and it was on my mind all the time. Finally, I said that this is not for me....I just couldn't bring about the enthusiasm I assumed everyone had. Beats me what was/is lacking so I hesitate in the name of my emotional well being! lol
Funny Face
you crack me up sometimes...keep up the good work...smiles and hugs, Kathy
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Ray of Sunshine
I understand how that is
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Hug
Hi Gene, have a wonderful day !!!!
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Hug
I applaud you for being so positive despite all that you have been through & thank you for being a friend. I am sorry that I did not reply earlier, I had to use the restroom. My husband is not a drinker, he just has a terrible temper
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Photos
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Goals
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Support Groups
Close Stroke
Treatments
- Physical Therapy Not Working
- Managed by STATE; it is cut short before it actually helps. My left leg constantly WEEPS; VNA has reduced services meant to heal swelling from every day to once a week. What gives?
Close Heart Failure
Stroke patient who ate for outings had trouble breathing & was drained of 45 lbs. of crap.
Open Panic Attacks
I stop breathing; feel lightheaded/lost; then usually puke & not eat.
Open Diabetes Type 2
I have Diabetes 2; recently went to insulin control/shots
