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sparklypurplefairy 
9:51am, April 26, 2009
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About Me
sparklypurplefairy
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About Me
"Alluring... Arrogant... In magic she shimmers. Delicious soft whispers, Come hither, come hither! Dark enchantress, wicked delight, A sentry to lure in mortals by night. To come away, come away, Dash softly hand in hand Slip through the veil Off to fairy land. Come, follow me through twining vines and twisted trees... to a secret realm rich with myth and magick. An enchanted place awaits, filled with gossamer fairies and haunting deities. A place where enchantresses weave their spells beneath the light of the full moon, and faeries dressed in their finery stand pensively before gothic arches and twisted trees. This is my world...a world I have created and wish to share with you..."
"Alluring... Arrogant... In magic she shimmers. Delicious soft whispers, Come hither, come hither! Dark enchantress, wicked delight, A sentry to lure in mortals by night. To come away, come away, Dash softly hand in hand Slip through the veil Off to fairy land. Come, follow me through twining vines and twisted trees... to a secret realm rich with myth and magick. An enchanted place awaits, filled with gossamer fairies and haunting deities. A place where enchantresses weave their spells beneath the
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Interests
I am engaged to my partner of 5 years, we live together with our little black cat in a lovely flat in Chester, UK. We are due to get married July 5th 2009 - if all goes well with me. I am still off work, but used to work in a call centre. I am an ex-make up artist and costume designer. I love the theatre but don't get to go very often now. I haven't been able to get up and about for nearly 4 months now but I am eager to try and get back to a reasonable standard of living. I could really do with meeting some new friends who are experienced in dealing with this illness. I love fashion and costumes (mostly regency style and theatre) I love CSI:NY and watching films. I used to be a born-again Christian. But God seems to have left me on my own recently. My family and support network are great with me and my sister, who also is suffering. But most are still very religious, our Grandparents in particular. Our Grandfather is a retired Methodist Minister. That's why I can't stop having a faith, a spiritual side. But I can't see the Light any more...
I am engaged to my partner of 5 years, we live together with our little black cat in a lovely flat in
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Hugbook
Hug
HI there, how r u doon? Haven't seen you in a while.
Funny Face
"Doctor, I have a memory problem!" The doctor says, "When did it start?" "When did what start?"
Present
posted to free to be me about genarits
also realize the date CONGRADTULATION
healing prayers & angels to watch & guide both
0x0
paula
Flower
Haven't seen you on in a bit...hope everything's going ok...
Happy (belated) Birthday!
Tess
Hug
hello hun just wanted to drop you line from one uk member to another
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Photos
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Goals
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Support Groups
Close Fibromyalgia
Since Nov '07 I have been constantly in pain and have now been told I have suspected Fibromyalgia. I am house-bound at the moment, (and I think starting to go a lil' stir-crazy) but having read a lot of info about FM I am feeling confident that there is help and hope out there!
Treatments
- Elavil Not Working
- It used to totally knock me out for about 14 hours but then when I woke up I didn't really feel the effects and so end up taking Tramadol and/or Morphine. I am now off it thank goodness!
- Heat Working / Worked
- I frequently use hot baths, saunas, heat pads and hot water bottles.
- Lyrica Considering
- I really want to try this...my sister is on it and it works wonders for her!
- Morphine Working / Worked
- It's great if you can take as much as you need when you need it - as long as you don't mind not being on this planet. Although I do think you can build up resistance to it as now I think I need to take more to get the same effects.
- Neurontin Considering
- If I could get someone to prescribe me this or Lyrica I would love to try it.
- TENS Working / Worked
- I love my tens machine - it is one of the best things I have found - the only downside is you'd need about 20 to get all of your body out of pain, but great for little flare ups.
- Topamax Somewhat Helpful
- I am still in the early weeks of a trial basis on this ~ but some aspects fo this seem to be working?!
Close Irritable Bowel Syndrome (IBS)
I was diagnosed with IBS around 2 and a half years ago - I changed my diet totally and now find I have hardly any problems with it. Only the occasional flare up but nothing major in a while.
Treatments
- Avoid Certain Foods / Chemicals Working / Worked
- Cut out caffeine totally, reduce dairy and wheat products by around 60% and drink plenty of green mint tea - it's a god send!
- Peppermint Working / Worked
- The capsules are best or even a pack of mints that have a high amount of peppermint oil in them like softmints.
- Lose Weight Working / Worked
- I have lost over a stone and this has dramatically helped my IBS.
Open Chronic Pain
Life is just constant pain now and has been for around 8 months and counting.
Treatments
- Marijuana Working / Worked
- The only thing to work other than a tens machine or morphine. But at least the side effects are manageable with weed, morphine is nuts.
- Morphine Working / Worked
- I don't mind taking this but I hate that feeling of being on another planet - not to mention after nearly a solid 2 months on the stuff the withdrawal and comedowns are BAD!
- Physical Therapy Somewhat Helpful
- It's helping, but I feel so bad during and immediately afterwards. But if it *might* make my FMS better in the long run, I'll stick with it.
- TENS Working / Worked
- I've got it on now - I nearly always have wires attached to me somewhere nowadays :D
Open Depression
Type: Clinical (Major) DepressionDepression is the Darkness that resides in my spare room. I have been to the very rock-bottom and back again. And all I can say is, dying really ain't that great. There's no white light or tunnel or peaceful feeling. I'm sorry to say it just stops. There's always another way, you just have to want to find it. And be prepared for a long hard journey back up.
Treatments
- Celexa Working / Worked
- This was the best of all of them. Although I was told they should take a while to kick in, about 3 months. I unfortunately kick started it myself by taking over 400 in a suicide attempt along with 300+ paracetamol.
- Cognitive Behavioral Therapy Working / Worked
- I followed an 18 month course of treatment. It was very helpful, made me confront a lot of issues and work through them until they didn't hurt any more.
- Elavil Working / Worked
- I'm now on Amitriptyline mainly for my Fibromyalgia, but it does work to keep the blues at bay.
- Prozac Somewhat Helpful
- Worked to an extent, but made me feel so doped that I asked to be taken off it. It was stopping the lows but at the price of sacrificing the highs too.
- Psychotherapy Working / Worked
- This was hand in hand with my CBT - a really great tool of the NHS.
- Support from Friends & Family Working / Worked
- Nothing helps me through like my fiance Chris. He is my shining beacon, the promise of a chance to be better.
- Writing Working / Worked
- I find this is very helpful - especially on here, as people from your support network can read and advise you.
- Zoloft Working / Worked
- Was on this after weaned off Prozac. Wasn't too bad.
Open Self-Injury
I have always SI'ed as long as I can remember...even being a little kid I would rip out my hair, bite myself until I bled etc. During and mostly after my suicide attempts of 2006 it got worse than ever. .I used to cut myself so that I wouldn't kill myself. I try to deal with my emotions and issues in a more positive way. it doesn't always work that way though - and we all have relapses!
Treatments
- Art Working / Worked
- I am a jewellery and clothes designer so this is kinda a release for me from all sorts of pain - FMS or depression or stopping me from SI'ing.
- Psychotherapy Working / Worked
- I followed an 18 month course along with CBT. It did work to a certain extent. It helped me curb my urges to kill myself but I continued to self harm throughout it.
- Talking Working / Worked
- This is probably the best tool I found - talking to my fiance or sister. After my suicide attempts, one in particular, I realised my family and close friends were hurting too. Not because of what I'd done, but because they realised I felt I couldn't talk to them rather than do it. This made me talk to them and open up all the more.
Open Financial Challenges
Since March of this year I have been registered disabled and so unable to continue in my usual employment. As it happens I worked for a bank and so with today's climate I would be potentially looking for another job soon anyway.... But we can't get financial help as my partner still works and so we fall out of the many criteria for government help. It's hard to face losing your job, your home, the future you had planned. Especially when I have to struggle physically too.
Treatments
- Budgeting Somewhat Helpful
- If you can cut back on everything you can legitimately do without, then you can find some extra. However, it does not solve all of the problems. The best thing we have found - do not use our central heating. We wear extra layers and hooded jumpers and snuggle up under blankets if we are cold - we simply can't afford the electricity and gas bills.
- Cut Up Credit Cards Working / Worked
- My advice - don't get one. If you have one - pay it off ASAP and cut it up. It is NOT the way to solve your debts!
- Holding a Garage Sale Considering
- I have thought a lot about this - and I would be quite happy to sell stuff like old clothes or shoes etc...plus that way you are recycling which is beneficial to all of us and our planet. Plus if you have a skill like jewellery making or card making - Use it! make your own birthday or Christmas gifts, people appreciate them a lot more!
