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Mdews899 
Well.... she made it thru Christmas at home, after spending the last 2 months almost exclusively in the hospital...let's add another complication of damage from the Remicade therapy she received when this first started oh so long ago...there are now issues with her brain, stroke like symptoms...so we now add rehab to the list of places and doctors to see, poor kid - just needs some slack cut to her, we are loosing ground in this whole education thing, I mean how much can the school keep giving in and postponing the requirements she needs for education. We have learned to take one day at a time, but, there is so much that she wants to do and just seems to not be able to do...I was foolish to think the j pouch would make things better, we may have to look back at an appliance, yet, even this won't take away the new complications, and she is getting thinner and thinner with each passing day. Here is hoping that 2009 will turn some new leaves and maybe so pleasant surprises.
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2 months post take down.....
2 long hospitalizations a couple of infections....
Ok, time to think positive in this spiral....she is going back to school for 2 hours a day come hell or high water on Monday...there comes a time in a patients life where they need to reenter society and leave the security of the hospital...well i hope this is a good move for her....she needs to get back with kids her age...i need to get back to work and bring in the bacon...i hope that we can keep moving forward...yet dread the upcoming cold weather and the various virus' going around...she has gotten so thin, yet we need to keep pushing forward, however, when do you know you have pushed to hard?
On this whole getting her healthy issue.
She came out of the last surgery feeling so good, it almost made us hopeful. Well back into the hospital she is for the last 10 days and who knows how much longer. She is tired of living her life in the hospital, and frankly so am I. We did all the right things, how come her body isn't cooperating?
I keep telling her that she has to go thru some bad to see some good, well I am hoping and looking for the good.
I keep saying "that which does not destroy you, only makes you stronger"
I am feeling like Atlas carrying the world.
UPDATED GOALS
Get My Daughter Healthy
Progress 10%
Encouragements: 1
Add your supportPast Entries
| August 2008 |
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Wednesday, 8/27
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Wednesday, 8/20
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July 2008 |
Tuesday, 7/29
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Goal Updated
oh my .. :( im so sorry i really hope shes doing better now
pokryfky