I am single woman no kids, 1 dog named "Jack". Been sick for the last couple of years, surgeries, endless doctors and co-pays. Finally I see an end in sight. Been diagnosed with Wegner's "suspect" for now, as they are unsure they will ever be able to identify exactly which autoimmune disorder is reaking havoc with me.
I am single woman no kids, 1 dog named "Jack". Been sick for the last couple of years, surgeries, endless doctors and co-pays. Finally I see an end in sight. Been diagnosed with Wegner's "suspect" for now, as they are unsure they will ever be able to identify exactly which autoimmune disorder is reaking havoc with me.
Red Sox!!!! Patriots!!! Singing, theatre, baking, grilling, gardening, partying, boating, shopping, etc... Girls night out!!! Candles, wine, good movie with a good guy. Sunrises, sunsets preferably over looking the ocean. Hugs!!! Love Hugs, can't get enough.
Red Sox!!!! Patriots!!! Singing, theatre, baking, grilling, gardening, partying, boating, shopping, etc...
September 26, 2008 7:46pm
Ok, so I had my chemo today and figured I'd go home sleep until about 8p, get up, get sick or at least wicked nauseated and so on and so on for …
September 17, 2008 1:34pm
ok, here i go again. GRRRR this feels good to type away as i did the other day, so here i go again.
Had an extrememly bad flare, went to Boston …
September 16, 2008 10:35am
OH man!! I never write journals but hoping this helps me!! Allthough I would like to swear, so if i missspell a word you will know it's a cuss …
May 26, 2008 11:09am
Realize, I commented back to my own entry, when I meant to put it here:-) I'm sure you can all relate to that "brain fog", lol!
May 20, 2008 9:45am
ok, generally I'm positive, but for now, here, I'm going to let it rip! I'm soooo greatful I don't have an illness that is terminal, …
Am i right in understanding that the cancer is back.. I hope to god I am wrong but that is what you are saying isn't it? Damn and blast this stuff to hell.. we will do that.. I'm here with you battling away still and doing great.. Huge hugs to you.. Inka xxx
Missing you...
where o' where art thou? where o' where art thou? Ok Patty you've been hiding entirely too long. Girl, I know you aren't feeling well... I know you aren't really talkative right now... But girl, I'm in this WITH YOU! Talk to me, vent to me, scream to me, ANYTHING!! You want my number instead, because it's too hard to see the screen right now. Just tell me, I'll mssg it to you! But girl, I care about you.. I KNOW what you're going thru. Lemme be your friend!
Sending you my Heart... Miss you so much xoxoxo!
Just sending some hugs your way. Hope you are doing well Dixie39!
Have had scleritis misdiagnosed for almost a year. Painful and debilitating I've just recently been diangosed with Ocular Inflammatory Disease
I have limited Wegener's and currently undergoing i.v. chemo for the last couple of months as all the oral agents didn't work and my vision was being affected. I'm almost 40 (GRRRRRR)and currently on short term disability to try and rest to help put me in remission along with the Chemo. Looking forward to going away to a cabin in the mountains in October with just the gal pals for my 40th.
Just found out today I have Lupus, don't know much else other than what I learned in nursing school 20 years ago! That and my entire body aches, head to toe. I'm already on Cytoxan, Pred, Solumedrol and lots of other drugs for Wegener's Granulomatosis.
