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  • Image of RosemaryDR

    About Me

    Recently retired nurse, midwife and worked as a health visitor for the last 25 years. Living in London. Married 38 years and one daughter, age 33 who has MS. My hobby is making bead jewellery with and for my friends, reading, friends and family. Also my small dog - Lucy. I was diagnosed with polycythaemia 3 years ago, although I have always had a fairly high haemoglobin count. I have been having venesection - a couple of units taken every 6 months or so, & keep well.

  • Recent Activity

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  • Journal

    • Journal Entry for October 30, 2007

      Mood October 30, 2007 7:22am

      Well, I saw the haematology consultant yesterday, and, as I thought, my blood count had gone up - to 17, with the packed cells at 5.  I …

    • Journal Entry for February 28, 2007

      Mood February 28, 2007 8:14am

      28 02 07 Just joined! I was looking for a support group for those with Polycythaemia rubra. I am very well, seeing the haematology specialist …

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  • Hugbook

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    • Hug

      From Ikeepbusy January 23, 2008

    • Good Luck

      From SuzeeQ October 31, 2007

      Hoping and praying that all goes well for you! Let me know. Susan

    • Flower

      From coby October 30, 2007

      thankyou for keeping me updated. t helps knowing i can talk to you and ask for advice. My dads foot and ankle have been broken for 4 months and still not healing. it doesnt seem to of been that long ago, but i do live 6 hrs away from him so time goes quick..wishing you well love coby

    • Hug

      From coby October 28, 2007

      thankyou for your kind words. hope all is well love coby

    • Hug

      From coby October 26, 2007

      thanks for your support. My dad has had a stroke and he is being treated only with aspro to thin his blood....About 9 weeks ago he smashed all the bones in his foot and ankle and the dr wont operate coz of his condition. It kind of sux. They told him they will operate after december 2009, thats if the pcv doesnt get to him first..I find it depressing that they cant do much for him...

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  • Support Groups

    • Close Polycythemia

      As I outlined in my profile - diagnosed in 2003, have always had a fairly high haemoglobin. Retired 2 years ago after 44years in nursing - the last 25 years as a health visitor. I am married (38yrs) one daughter,Deborah who lives near us, she has MS. I live in London with my husband and small dog - Lucy. Hobbies; beading jewellery, (with and for friends), reading, family and friends.

      Treatments

      Phlebotomy Working / Worked
      No problems, approx 2 units taken every 5 or 6 months. Also on daily 75 mg aspirin.
  • Friends

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