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  • About Me

    Image of fxs

    fxs

    Male, 74
    Frankfort, IL, USA
    Member since April 21, 2008

    • About Me

      Semi retired DDS -4children, 2grandchildren,married,water & snow skiing,golfer etc.,etc-travel,"LIFE IS TODAY"

      Semi retired DDS -4children, 2grandchildren,married,water & snow skiing,golfer etc.,etc-travel,"LIFE IS TODAY"

  • Recent Activity

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  • Journal

    • My journey with RCC

      Mood April 21, 2008 5:47pm

        I am a 73 year old retired Dental professional struggling to overcome this malady,RCC, that has encompassed my body recently. In the latter …

    Read Journal

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  • Support Groups

    • Close Renal Cell Carcinoma (Kidney Cancer)

      I was diagnosed RCC after falling and breaking my right femur in October,2006 and the the complete tests including a pet scan showed a tumor on my left kidney with metaastasis to the mediastinum, both are inoperable.I have had 3-4 months of Sutent--tha same with Nexavar--with minimal success and major side effects.Currently I was given Toricel for 5-6 months with a slight decrease in size of the tumors-and no aparent increase, and now I am receiving Avastin-a CT Scan in a few weeks for results.

      Treatments

      Chemotherapy Working / Worked
      Sutent-not working/Nexavar minimal reduction of tumors---very severe side effects! Toricel/removed carcinoma- submandibular lymph nodes(muscle and joint pain) and finally Avastin--waiting for CT Scan-sie effects minimal.
      Nexavar Working / Worked
      Minimal reduction in size of tumors.GI Problems, fatigue, malaise,etc.
      Sutent Working / Worked
      Sutent. No real measureable improvement in tumor reduction or overall well being. Mouth sores ,bleeding gingiva,diarrhea,lost 25 lbs.
      Avastin Working / Worked
      Bimonthly treatment for 4 months showed slight derease in size of tumors to date very minimal sie effects.
  • Friends


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