General Update
November 2, 2009 6:30pm
Well, they were really good at the shop last week. It was suggested that I only do Tuesday and Wednesday afternoons for the time being. …
Progress
50 %
tattyhead184
7:35pm Thursday
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About Me
tattyhead184
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About Me
I'm temperal lobe epileptic and partially disabled with spina bifida. The epilepsy is something I've had since having hydrocephalus at birth and menengitis at the age of four. I'm single, in my early forties and live happily alone in my own flat.
I'm temperal lobe epileptic and partially disabled with spina bifida. The epilepsy is something I've had since having hydrocephalus at birth and menengitis at the age of four. I'm single, in my early forties and live happily alone in my own flat.
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Interests
I've been a member of Phab - a charity that integrates the disabled and able-bodied - for 20+ years. I was thinking of leaving at one stage but had my arm twisted to stay. I'm also a regular church attender. I've been going to an ecumenical church for 12 years now. On the music front, my two main favourites are Abba and The Carpenters. I'm also a fan of The Three Degrees to a lesser exent. Since getting the Computer, the internet takes up quite a bit of my spare time. I have a slight interest in trains - I've travelled from England to Austria in the past. I've also travelled on the Eurostar - quite an experience. I like visiting cathedrals - I've visited 14+ to date. It marvels me, to think of the devotion people had hundreds of years ago. I lost my job due to redundancy recently so I've started doing voluntary work for the British Heart Foundation, working in one of their shops. I think that just about covers it but I'll add more if I think of anything.
I've been a member of Phab - a charity that integrates the disabled and able-bodied - for 20+ years.
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Recent Activity
Recently:
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26 hugs given, 12 hugs received, 11 journal comments, 4 journal posts, 1 advice post
Yesterday
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tattyhead184 gave Snowflake138 a little love 5:47pm
I'm sorry to see you're feeling worse than ever. Sending love and hugs in the hope they'll help you feel…
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tattyhead184 commented on lovewins’s journal entry i am trying my best to stay positive but chronic pain is painful 4:17pm
I've had aches and pains in my time but I have to admire you for coping the way you do. Thank you for…
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tattyhead184 commented on klbm’s journal entry stress and the human body 4:13pm
I have to say I admire your will-power. I wish you the best of luck with the chocolate.…
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tattyhead184 commented on danroy’s journal entry something to think about concerning the vns 4:10pm
Try and stay positive Danroy. Things will work out sooner or later.…
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tattyhead184 commented on bloodyandtornkittie’s journal entry Still stuck 4:08pm
With everything you're going through, it's good to know you've got a friend who cares. Don't feel…
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Journal
This entry is private
This entry is private
This entry is private
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An Excellent Christian Group
October 29, 2009 6:28pm
I've just joined an excellent christian group on DailyStrength but I'm the only member so far, apart from the group leader. …
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Hugbook
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Hug
thank you my brother, remember, in the site of god all things are possible...you have a good one.....gods love
Little Love
Hi Tatty, just caught up with your journel entries, please stop having those thoughts of doing away with yourself, i couldnt bear it if you wasnt here on DS!! and how would your family cope with that!! Take Care lots love XX
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Hug
good morning, keep your faith in god, be happy, god loves you, and you have a good weekend.
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Ray of Sunshine
i hope you feel better thx for the hug
I’m With You
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Photos
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Goals
View all in progress Goals
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Support Groups
Close Epilepsy & Seizures
I have temperal lobe epilepsy which was caused by hydrocephalus at birth and menengitis at the age of four. I have complex partial seizures and have been on nine medications altogether - so I'm familiar with side-effects.
Treatments
- Clobazam Somewhat Helpful
- Worked for a while.
- Clobazam Somewhat Helpful
- Worked for a while.
- Dilantin Working / Worked
- I was on this from 1986 until 2007 (alongside most of the others) when it was replaced with Lamotragine
- Keppra Somewhat Helpful
- I had a very bad experience with this one. It put me in a foul mood 24/7 (the last nine months especially). I was on it for two years.
- Lamictal Working / Worked
- I'm on this one at the moment and it's the best one to date.
- Neurontin Working / Worked
- This was ok but I grew tolerent to it over time.
- Tegretol Not Working
- I ended up on the maximum dose and ended up like a zombie. I must have been on this one for around twelve years.
- Trileptal Somewhat Helpful
- This one made me forgetful - I'd forget a morning dose and end up in a foul mood for the rest of the day. (Almost got into trouble once as a result.)
Close Dementia
Hi - It's my Mum who has vascular dementia. She, my Dad and Gran all live together whereas I live a three-hour train journey away. I visit once a month and I'm on the phone to them daily. Mum doesn't really look after herself - smoking, lack of exercise etc - and Dad's getting a bit frustrated. I'm hoping to pick up any information that will be of help to them. I may refer Dad to this website as well. I've joined other support groups on the website and really like what I've found here.
Open Self-Injury
I was born spina bifida and as a result got bulied in my early school days. That's when I started self-harming I think. I tend to do it now when stressed or overly frustrated. I have to take things out on something. I don't cut though.
Open Diets & Weight Maintenance
(The diet's gone to pot for the time being.)With spina bifida I need to maintain a healthy weight, which piled on not long after I turned 40. I'm on blood pressure medication and beta blockers, which I don't think help. I've joined this group before and given up. I really need support.
Treatments
- Eating Healthier Foods Too Soon to Tell
- Lack of will power at the moment. I keep back-tracking and gaining the weight I've lost.
- Eat Less Too Soon to Tell
- It's the eating between meals I need to cut out.
Open DailyStrength Members Community
I've been a member for nearly a year now and have been touched by the amount of support I get.
Open Caring For Aging Parents
My Mum, Dad and Gran all live together, about a three hours train journey from me. Mum has vascular dementia and Gran's pretty frail at 96 years of age. A carer helps wash and dress my Gran each mornong. Otherwise, Dad's pretty healthy and looks after both of them at the moment. If something happens to him though, I don't know what I'm going to do. I'm partially disabled and epileptic myself.
Open Bisexuality
I've been wondering for a long time, what my sexual orientation is. I have temperal lobe epilepsy which can affect sex-drive and complicate matters. I'm hoping to get some help and support here.
Open Internet Addiction
Disability makes it difficult to find 'outside' interests I can do as and when I feel like it - everything's to a timetable. I find the internet a good 'gap filler' and therefore addictive.
Open Stress Management
I've recently spent two weeks in hospital, possibly due to a build-up of stress over time.
Treatments
- Music Working / Worked
- There are certain songs that really reflect the way I'm feeling and others that I find soothing.
