Computer Crash
November 20, 2009 2:24pm
My computer crashed a couple of days ago and I've had to completely wipe everthing and start all over again. This means completely …
Progress
50 %
tattyhead184
7:55pm
-
About Me
tattyhead184
-
About Me
I'm temperal lobe epileptic and partially disabled with spina bifida. The epilepsy is something I've had since having hydrocephalus at birth and menengitis at the age of four. I'm single, in my early forties and live happily alone in my own flat.
I'm temperal lobe epileptic and partially disabled with spina bifida. The epilepsy is something I've had since having hydrocephalus at birth and menengitis at the age of four. I'm single, in my early forties and live happily alone in my own flat.
-
Interests
I've been a member of Phab - a charity that integrates the disabled and able-bodied - for 20+ years. I was thinking of leaving at one stage but had my arm twisted to stay. I'm also a regular church attender. I've been going to an ecumenical church for 12 years now. On the music front, my two main favourites are Abba and The Carpenters. I'm also a fan of The Three Degrees to a lesser exent. Since getting the Computer, the internet takes up quite a bit of my spare time. I have a slight interest in trains - I've travelled from England to Austria in the past. I've also travelled on the Eurostar - quite an experience. I like visiting cathedrals - I've visited 14+ to date. It marvels me, to think of the devotion people had hundreds of years ago. I lost my job due to redundancy recently so I've started doing voluntary work for the British Heart Foundation, working in one of their shops. I think that just about covers it but I'll add more if I think of anything.
I've been a member of Phab - a charity that integrates the disabled and able-bodied - for 20+ years.
-
-
Recent Activity
Recently:
-
10 hugs received, 9 hugs given, 8 journal comments, 1 discussion post, 1 journal post
Yesterday
-
tattyhead184 gave Snowflake138 flowers 7:59pm
Some flowers to brighten your day Lisa. I'm sorry you're feeling so rough and that I've been out of touch.…
-
tattyhead184 updated their status 7:55pm
I had my flu jab today - and it's working.…
-
tattyhead184 gave GDJ1957 a 'you're welcome' 6:36pm
It's always a pleasure Guy. Thanks for making me feel appreciated.…
-
tattyhead184 wrote a journal entry: Computer Crash 2:24pm
My computer crashed a couple of days ago and I've had to completely wipe everthing and start all…
-
tattyhead184 updated their status 2:17pm
The computer crashed but it's up and running again now.…
-
-
Journal
-
This entry is private
This entry is private
This entry is private
-
General Update
November 2, 2009 6:30pm
Well, they were really good at the shop last week. It was suggested that I only do Tuesday and Wednesday afternoons for the time being. …
-
-
Hugbook
-
Superhero Status
HI Stuart Just want you to know i am still thinking about you. You have been a good friend to me and i just want to thank you for being here....good luck....love you
Little Love
Love your new photo! You look really cute!!! Thanks again for e-card! XXXXXXXXXXXXX
-
Hug
Hi Tatty, worried to death about my youngest daughter!! She has so many problems i wonder how she will ever live a normal life!!! x
-
Thanks
THANKS TATTY IT JUST HURTS SO MUCH. HE HAD CANCER.
-
Rainbow
IT'S DONE I HAD TO PUT ERNIE MY MINI DOXIE TO SLEEP TODAY. GOD TSTTY. IT HURTS AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA;(
-
Photos
-
Advertisement -
Goals
View all in progress Goals
-
Support Groups
Close Epilepsy & Seizures
I have temperal lobe epilepsy which was caused by hydrocephalus at birth and menengitis at the age of four. I have complex partial seizures and have been on nine medications altogether - so I'm familiar with side-effects.
Treatments
- Clobazam Somewhat Helpful
- Worked for a while.
- Clobazam Somewhat Helpful
- Worked for a while.
- Dilantin Working / Worked
- I was on this from 1986 until 2007 (alongside most of the others) when it was replaced with Lamotragine
- Keppra Somewhat Helpful
- I had a very bad experience with this one. It put me in a foul mood 24/7 (the last nine months especially). I was on it for two years.
- Lamictal Working / Worked
- I'm on this one at the moment and it's the best one to date.
- Neurontin Working / Worked
- This was ok but I grew tolerent to it over time.
- Tegretol Not Working
- I ended up on the maximum dose and ended up like a zombie. I must have been on this one for around twelve years.
- Trileptal Somewhat Helpful
- This one made me forgetful - I'd forget a morning dose and end up in a foul mood for the rest of the day. (Almost got into trouble once as a result.)
Close Dementia
Hi - It's my Mum who has vascular dementia. She, my Dad and Gran all live together whereas I live a three-hour train journey away. I visit once a month and I'm on the phone to them daily. Mum doesn't really look after herself - smoking, lack of exercise etc - and Dad's getting a bit frustrated. I'm hoping to pick up any information that will be of help to them. I may refer Dad to this website as well. I've joined other support groups on the website and really like what I've found here.
Open Self-Injury
I was born spina bifida and as a result got bulied in my early school days. That's when I started self-harming I think. I tend to do it now when stressed or overly frustrated. I have to take things out on something. I don't cut though.
Open Diets & Weight Maintenance
(The diet's gone to pot for the time being.)With spina bifida I need to maintain a healthy weight, which piled on not long after I turned 40. I'm on blood pressure medication and beta blockers, which I don't think help. I've joined this group before and given up. I really need support.
Treatments
- Eating Healthier Foods Too Soon to Tell
- Lack of will power at the moment. I keep back-tracking and gaining the weight I've lost.
- Eat Less Too Soon to Tell
- It's the eating between meals I need to cut out.
Open DailyStrength Members Community
I've been a member for nearly a year now and have been touched by the amount of support I get.
Open Caring For Aging Parents
My Mum, Dad and Gran all live together, about a three hours train journey from me. Mum has vascular dementia and Gran's pretty frail at 96 years of age. A carer helps wash and dress my Gran each mornong. Otherwise, Dad's pretty healthy and looks after both of them at the moment. If something happens to him though, I don't know what I'm going to do. I'm partially disabled and epileptic myself.
Open Internet Addiction
Disability makes it difficult to find 'outside' interests I can do as and when I feel like it - everything's to a timetable. I find the internet a good 'gap filler' and therefore addictive.
Open Stress Management
I've recently spent two weeks in hospital, possibly due to a build-up of stress over time.
Treatments
- Music Working / Worked
- There are certain songs that really reflect the way I'm feeling and others that I find soothing.
