Get out of bed!!!
August 18, 2009 1:13pm
I'm on 3 anti-depression meds and still, last Monday, I couldn't get ot of bed. I wrote in my journal and meditated with with my Buddhist …
Progress
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Gabitol
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About Me
Gabitol
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About Me
I was an AIDS activist in my early twenties, even volunteered in an vaccine trial which turned out to be a train wreck. There's not a lot of grant money to be found in the area of HIV/AIDS, so I started at Brooklyn College to earn a Masters in Public Health and was doing very well until 2006-2007. Early in the year, I started to lose weight. I also was experiencing pelvic pain that I could no longer ignore. I thought I needed another laparoscopy for the endometriosis but ended up in miserable Medicaid where they told me they'd cut my ovaries off if I didn't take crazy birth control. I ran for the hills.I thought I was dying of cancer Even though I was really in no shape to work, I had to find a job and I did. I work with mentally ill/formerly homeless adults in a nuthouse. Pay sucks but the health benefits make up for it. Got a second laparoscopy; did nothing. I kept trying to finish my masters degree, but I couldn't. So now I'm stuck with all this pain and exhaustion. Even though I hate hydrocodone, I have to. I do 12 hours in pain, and 12 hours not. I don't want to develop toleracy which I already have. And these pain specialist! They all think I'm looking to get high! So much discrimination when you pick up opiate meds. Something has to be done about this. Gone through lots of DSMO instillations (brutal)and I still feel like asshell. The family started to notice the weightloss and I'm sure they thought, Oh, look, the drug addict grew up to be a pill popper (I used to be a club kid back in the day.) I'm looking into sacral nerve stimulation but I've read so many horrible stories...
I was an AIDS activist in my early twenties, even volunteered in an vaccine trial which turned out to be a train wreck. There's not a lot of grant money to be found in the area of HIV/AIDS, so I started at Brooklyn College to earn a Masters in Public Health and was doing very well until 2006-2007. Early in the year, I started to lose weight. I also was experiencing pelvic pain that I could no longer ignore. I thought I needed another laparoscopy for the endometriosis but ended up in miserable Medicaid
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Interests
Singing, kitties, The Beatles, Guns n'Roses, stand up comedy, MSNBC, social issues, politics, writing, reading (non-fiction), starting to get a little crazy wih the cleaning. I used to love to party but now I can't drink or eat. I used to work out but now I can't.
Singing, kitties, The Beatles, Guns n'Roses, stand up comedy, MSNBC, social issues, politics, writing,
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Journal
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Hugbook
Little Love
hey girl,How are doing? I hope you are doing better! Happy birthday! I know it's late
Hug
Hope you are feeling better today ! Hugs, Laura
Moment of Peace
hi my fellow new york city ds member associate how are u? i too suffer from chronic pain. i wanna be of support to u and a friend.
Hug
Hello Gab: Well yeah , we all have fibro, we are all great tension holders, the biggest fibro ache is in our pelvic areas........go to my site and start learning how to breath this tension away........it works you just have to do it daily, just like taking a shower, or eating food......trust me you will feel relief if ya breatheeeeeeeee!
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Rainbow
Hi how r u? How is school going? HOw is the IC ?
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Support Groups
Close Chronic Pain
I have been in chronic pain since I got my period (montlhly) and now, for 3 years, I've been in chronic pain due to Interstitial Cystisis/Painful Bladder Syndrome.
Treatments
- Heat Working / Worked
- It got to the point where I was giving myself second degree burns so I had to stop. But yeah, they do help.
- Hydrocodone Working / Worked
- You really have to keep upping the dose; tolerance occurs frequently. And the side effects suck.
- Marijuana Somewhat Helpful
- I've been smoking weed for the last 15 years. I chose to stop because I needed to be articulate and coherent with these idiot doctors.
- Naproxen Working / Worked
- Good for like headaches but not for intractable pain.
- Nerve Blocks Considering
- I want to try the interstim.
- Neurontin Not Working
- Nothing happened
- Oxycodone Working / Worked
- Worked but can't take it at work due to side effects. Additionally, you build a tolerance.
- Ultram Not Working
- I kept taking it and I ended up having a seizure. But I was still in pain.
Open Depression
Type: Clinical (Major) DepressionI need some help getting out of bed and being more positive about life. I hate it when this happens.
Treatments
- Meditation Somewhat Helpful
- Chanting for a sect of buddhism. I think it changes
- Prozac Working / Worked
- Psychotherapy Working / Worked
- Wellbutrin Working / Worked
- Writing Working / Worked
